DianeM
  • Female
  • Norman, OK
  • United States
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Latest Activity

BBrugger replied to DianeM's discussion Decision to Shave in the group Frontal Fibrosing Alopecia
"Thanks for sharing.....I have been playing with the thought of shaving.....my forehead is just slightly less than yours but I definitely have no hair inch wise around my ears.....at this point I can still rock a headband at home.  My concern…"
May 13
Sequingirl replied to DianeM's discussion Decision to Shave in the group Frontal Fibrosing Alopecia
"Meant to write “eight head”, not “right head”!"
May 10
Sequingirl replied to DianeM's discussion Decision to Shave in the group Frontal Fibrosing Alopecia
"I might be there.  Diagnosed almost 7 years ago and still losing hair.  It’s so hateful.  Grew my hair and my hair is curly and the style covers it well enough ...as long as I’m indoors.  Tired of having to wear hats…"
May 10
DianeM commented on Megan's group Christians With Alopecia
"Hi all! As I was reading my Bible this morning, this passage really struck home for me and really encouraged me as I've been struggling with more and more hair loss. I hope these words encourage your hearts too! Do not give up, do not lose…"
May 10
Minter replied to DianeM's discussion Decision to Shave in the group Frontal Fibrosing Alopecia
"@ATB you look fantastic and yes, you absolutely do rock your attitude and hair! Thank you so much for sharing your story and picture. "
Apr 28
maremo replied to DianeM's discussion Decision to Shave in the group Frontal Fibrosing Alopecia
"ATB, you are an inspiration!"
Apr 27
DianeM replied to DianeM's discussion Decision to Shave in the group Frontal Fibrosing Alopecia
"You look fantastic! Thanks for sharing!"
Apr 27
Agneta replied to DianeM's discussion Decision to Shave in the group Frontal Fibrosing Alopecia
"Hi ATB, Your shaved head suits you very well as you have a beutifully shaped head. I have´nt got that head so I would never ever consider to do that. I stick to all my medications and hope for the best until the end,, I admire your courage…"
Apr 26
ATB replied to DianeM's discussion Decision to Shave in the group Frontal Fibrosing Alopecia
"Here is my example of something you could try. It isn't fully shaved so the pattern can show, but I did have the barber shave my 6head to clean up the straggler fuzz. Eyebrows and lashes are all makeup. I wore this style at an outdoor concert…"
Apr 26
ATB replied to DianeM's discussion Decision to Shave in the group Frontal Fibrosing Alopecia
"Hi Agneta, I sometimes get red patches in random spots on my scalp and neck. I can feel the heat and itch when it is happening, and it is challengin to resist touching, which inflames it more. It bothered me more until my diagnosis a year ago;…"
Apr 26
Agneta replied to DianeM's discussion Decision to Shave in the group Frontal Fibrosing Alopecia
"Dear ATB, You look swell! My head has a rather ugly shape and  my scalp is covered with red inflamed skin, wounds and bumps that hurts! So shaving is no option for me and cover my scalp with a wig will make the inflammation worse. When it is…"
Apr 26
ATB replied to DianeM's discussion Decision to Shave in the group Frontal Fibrosing Alopecia
"Hi! My FFA hair loss pattern is similar to yours. Last year I cut my hair from shoulder-length to very short after my diagnosis, then I shaved it all off, and then I had a barber shave a pattern into a micro-short buzz. The pattern looked great…"
Apr 25
Agneta replied to DianeM's discussion Decision to Shave in the group Frontal Fibrosing Alopecia
"Hi AnneMAY, You really put words on my thoughts. It is comforting to "talk" to someone who really have experienced the same feelings and those dreadful panic attacks. I´m on antidepressant since 1,5 year now and at least I can…"
Apr 25
AnnieMay replied to DianeM's discussion Decision to Shave in the group Frontal Fibrosing Alopecia
"Hi Agneta, I could never shave my head either. I'm sure I would like an alien with my very shiny scalp, protruding veins and horrible skin. My scalp is sensitive and I'm a jeans and t-shirt girl so I can't imagine wearing a wig. I was…"
Apr 24
Agneta replied to DianeM's discussion Decision to Shave in the group Frontal Fibrosing Alopecia
"Hi Diane, No I have never considered to shave my head. honestly I would rather be dead. If you shave your head the inflamed scalp wil be very visible.  I am old now (70) and I can still cover the bald areas with hairfibre. The only thing I can…"
Apr 22
BubbaLu replied to DianeM's discussion Decision to Shave in the group Frontal Fibrosing Alopecia
"Thanks for asking that question.  I have been thinking about cutting my hair totally differently than I have ever worn it - very short.  I think I would do that before I totally shave.  "
Apr 20

Profile Information

Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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