Devices561
  • Male
  • Palm Beach, FL
  • United States
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Devices561 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"No. If you are over the age of 60-65 you can consider that. I’m not close to that age group so I haven’t..."
Sep 1
Devices561 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Prior to starting regiment it’s recommend to be screened for TB, hep and HIV. The blood panels you need to monitor are CMP, CBC and lipids. These 3 panels should be monitored before beginning, 30 days after starting medication and then at 6…"
Aug 31
Devices561 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Nice. Is your doctor aware you are taking generic? If so, do they give any feedback regarding dosing, safety, etc?"
Aug 20
Devices561 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hey Nicole, so so sorry to hear that. The good thing is you know that the medication works for you so this is just a slight set back. Look forward to hearing about your recovery! TS"
Aug 5
Devices561 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thank you for the quick response. Will definitely read through them now. "
Aug 5
Devices561 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hey Nicole, are you still on track with titrating off the medication. If I’m reading your post correctly you should be down to one pill by now. Would love to here how things are going as I’m hoping to start doing the same in about 2…"
Aug 5
Deena left a comment for Devices561
"Will do! Thank you for responding so quickly..."
Aug 2
Devices561 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Ok. Well I can’t answer that I’ve never been on anything higher than 11mg. Are you taking generic or branded drug? When you got full regrowth at 15mg why did Derm still up your dose? For what it’s worth my doctor said that he…"
Aug 2
Devices561 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I think that is normal my friend.  That is incredible results for just being on meds since Feb -6 months! I experienced something similar on my beard and it seems to be gradually filling in. I’d just keep an eye on it and if it…"
Aug 2
Devices561 left a comment for Deena
"Send an email they respond within a day usually"
Aug 2
Devices561 and Deena are now friends
Aug 2
Devices561 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"One indicator of responsiveness in the studies showed shorter duration seemed to have better outcomes. In a perfect world I will go into remission after I come off this round of Xeljanz but if not I’m hoping this approach worked in…"
Jul 31
Devices561 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I personally plan to stop after another 2 months and see what happens and likely wait until the more targeted second generation Jaks come to market. I recall Dr Christiano mentioning that getting on the meds before long duration of alopecia…"
Jul 31
Devices561 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Mastros, I couldn't agree with you more. It seems like the more you think about it the worst it gets. At least in my case... I am also on the original medication from Pfizer although I was looking into the generic when I was considering taking…"
Jul 31
Devices561 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Mastros, Great results man. Honestly if you didn’t tell someone they might not even notice the spots you have currently. Are you taking the branded or generic Xeljanz? If you are taking a generic does Dr. King have any thoughts on the…"
Jul 31
Devices561 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It’s all good man. Great to have different perspectives on the forum. I was just asking. Pleasure to meet you.  TS"
Jul 29

Profile Information

Relationship Status:
Married
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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At 11:39am on August 2, 2019, Deena said…

Will do! Thank you for responding so quickly...

 
 
 

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