Chi_Loss
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  • Chicago, IL
  • United States
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Chi_Loss replied to deehayes13's discussion CTP-543 trial--anyone start it yet?
"It took me about 10 weeks to see vellus (that felt like FOREVER) then it slowly darkened and lengthened. Its like watching a pot of water boil...but it does seem to come in steadily once it darkens up. I also had continued shedding when i started,…"
Jan 2
Chi_Loss replied to deehayes13's discussion CTP-543 trial--anyone start it yet?
"i have about 60% regrowth (from totalis) with more vellus coming in on the stubborn parts. i have ophiasis pattern hair loss so sides and back are difficult for me. I am excited to say that the dosage study ends in January and i am moving to the…"
Dec 31, 2019
Chi_Loss replied to deehayes13's discussion CTP-543 trial--anyone start it yet?
"i am in week 10 and no side effects. inital vellus hair has turned darker and more vellus popping up...very excited."
Oct 15, 2019
Chi_Loss replied to deehayes13's discussion CTP-543 trial--anyone start it yet?
"yes i saw that! But I am trying to be patient and manage my expectations. I have had AA on and off for 20 years so you'd think I would have the patience of a saint by now but was super excited to get on the study. "
Sep 5, 2019
Chi_Loss replied to deehayes13's discussion CTP-543 trial--anyone start it yet?
"yes! i am 6 weeks in and am also seeing a bit of vellus on the top."
Sep 5, 2019
Chi_Loss left a comment for LJBMD
"Hi! Happy to chat when you have time.."
Jul 10, 2019
Chi_Loss and LJBMD are now friends
Jul 10, 2019
Chi_Loss liked jenrey85's discussion My Prescription Drug Game Plan!
Jul 10, 2019
Chi_Loss replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"ctp-543 which i believe is a jak inhibtor."
Jul 10, 2019
Chi_Loss replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It is at least 50% loss for this one "
Jul 10, 2019
Chi_Loss replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi! Yes I was. About a 2.5 hour appt. to take bloodwork, ekg, go thru consent  dn verify some thing, etc...Then get meds in my next visit in 2 weeks! "
Jul 9, 2019
Chi_Loss replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi! I have been using this forum for a while to educated myself on my alopecia and treatment options. this is my first time posting. I have recently joined a clinical trial for CTP 543 and it is the least amount of exclusions that I have seen. …"
Jul 9, 2019
Chi_Loss is now a member of Alopecia World
Jul 9, 2019

Profile Information

Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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