Chi_Loss
  • Female
  • Chicago, IL
  • United States
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Chi_Loss and mtran2000 are now friends
Jul 27
Chi_Loss replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"i had pretty decent growth (around 70% from 20%), then it began to fall out again. I was never able to get my insurance to ok an increase in dosage so once it started falling out I decided to  just bail and cut it all off until I found the…"
Jul 22
Chi_Loss replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"i took it for around 15 months at 10mg per day"
Jul 22
Chi_Loss replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"no side effects at all. i did see on another thread that someone in the study had elevated potassium levels.."
Jul 7
Chi_Loss replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"i did the study in indy (3 hours away) and they paused for a month or so but re-upped at end of May with lots of precautions. but this place does only derm clinical trials so no competing trials to prioritize. I'm hoping OH is good. I heard…"
Jul 7
Chi_Loss replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"i was started the trial on 8/2018. now am on the extension study until it comes to market. i was semi responsive to xeljanz and have 95% regrowth now. I had aa (which moved to AT) for about 20 years. no side effects. Ophiasis pattern loss."
Jul 7
Chi_Loss commented on Lexi's group Ophiasis Pattern Alopecia Group
"Hi! I just found this group and can relate to all comments here. i have been on alopecia world for  a while, but the stubborness of the ophiasis pattern (AA to AT) has always been pointed out to me by my derms. i was on xeljanz, but became non…"
Jun 29
Chi_Loss joined Lexi's group
Jun 22
Chi_Loss replied to Missy Gal's discussion Knowing there are others like me.
"i understand exactly how you feel. and I especially remember how it felt when I had my first really bad episode. The good news is that they are understanding this disease more and more and I expect there will be a new drug on the market in the next…"
Jun 16
Chi_Loss replied to nexoo's discussion pf-06651600
"Hi! I am on the dosage trial for the drug mentioned in the link above CTP-543. I was totalis. I started in august 2018 getting 24g/day.  I have 95% regrowth. I have had alopecia on and off for about 20 years. One of the nurses said my growth…"
Jun 16
Chi_Loss replied to deehayes13's discussion CTP-543 trial--anyone start it yet?
"no. i haven't had any  potassium elevations. are you fasted for your blood work? (i am not)"
Jan 28
Chi_Loss replied to deehayes13's discussion CTP-543 trial--anyone start it yet?
"It took me about 10 weeks to see vellus (that felt like FOREVER) then it slowly darkened and lengthened. Its like watching a pot of water boil...but it does seem to come in steadily once it darkens up. I also had continued shedding when i started,…"
Jan 2
Chi_Loss replied to deehayes13's discussion CTP-543 trial--anyone start it yet?
"i have about 60% regrowth (from totalis) with more vellus coming in on the stubborn parts. i have ophiasis pattern hair loss so sides and back are difficult for me. I am excited to say that the dosage study ends in January and i am moving to the…"
Dec 31, 2019
Chi_Loss replied to deehayes13's discussion CTP-543 trial--anyone start it yet?
"i am in week 10 and no side effects. inital vellus hair has turned darker and more vellus popping up...very excited."
Oct 15, 2019
Chi_Loss replied to deehayes13's discussion CTP-543 trial--anyone start it yet?
"yes i saw that! But I am trying to be patient and manage my expectations. I have had AA on and off for 20 years so you'd think I would have the patience of a saint by now but was super excited to get on the study. "
Sep 5, 2019
Chi_Loss replied to deehayes13's discussion CTP-543 trial--anyone start it yet?
"yes! i am 6 weeks in and am also seeing a bit of vellus on the top."
Sep 5, 2019

Profile Information

Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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