Cassidymain
  • Female
  • Westfield, IN
  • United States
Share
  • Blog Posts
  • Discussions (25)
  • Events
  • Groups
  • Photos
  • Photo Albums
  • Videos

Cassidymain's Friends

  • Danny
  • ChiTi2017
  • Livia18
  • Jeremy

Cassidymain's Discussions

PF 06651600 Trial

Started Feb 21 0 Replies

I just wanted to create a post to document my experience on the PF 06651600 study. I’m not sure how good i’ll be about posting but i’ll make updates when anything happens. It’s a year long…Continue

Gifts Received

Gift

Cassidymain has not received any gifts yet

Give a Gift

 

Cassidymain's Page

Latest Activity

Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I’ve posted about it before with more details but i don’t remember the exact name of the study off the top of my head. This is the last phase and it’s been fast tracked so results are really good! It’s a jak inhibitor…"
Sep 13
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi hellopeesha! Yeah i’m very happy with where i’ve gotten from having almost nothing! I’m definitely trying to be patient but it can be hard when i feel like i’m regressing or will never get to full regrowth. I want to get…"
Sep 12
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Christophers_mom! That’s so comforting to hear, i hate feeling alone in this. I also feel like the spots i shed the most are the areas around my hairline/temples that already don’t have much hair to begin with! I can’t figure…"
Sep 12
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you Meedo! I’m really happy with where i’ve gotten and i know even if the spots don’t completelt disappear my hair will soon enough be long enough to hide them a bit, but i’m so ready to stop struggling with it!…"
Sep 12
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi everyone, i know i’ve been posting a lot lately but i just don’t know who else to ask. I’ve been on the trial drug for about 6 and a half months and i have a lot of growth but some spots have almost none at all and o have seen…"
Sep 10
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Frida! it is definitely stressful, I’m also on a study where i can’t control my dosage and also don’t even know what my dosage is! I’ve been on it for over six months now and don’t have full regrowth yet, I have…"
Sep 5
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"People who have grown their hair back, what does normal shedding look like? I have recently gotten mine back and for the first few months i saw zero shedding whatsoever. Now i’m starting to see some hair fall and i don’t know what a…"
Sep 4
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Yeah my dosage has been the same so it can’t be that but i hope it’s just temporary, i can’t handle losing much more mentally. I’m already changing my diet once i saw the shedding, it makes sense to support my body in ever…"
Sep 1
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"because it’s a trial they really just want to see how well the medication itself works, they tell you things like drink a lot of water and don’t over exercise but that’s mainly so the blood tests stay normal. i haven’t asked…"
Sep 1
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you! The study is a year long so i’m only at the half way mark. That’s why i find it weird that i’d be shedding if i still take medication daily. I’m wondering if that’s happened to anyone else. The medication…"
Sep 1
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I also want to add that i’ve been eating more things recently that i used to avoid like the plague, like dairy, gluten, and sugar. I don’t know if my body is reacting to that at all? I don’t know what to do :/"
Aug 31
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hello everyone, i’ve been in the phase 3 trial for pf-06651600 for just over 6 months and it’s been going really well. I’ve had almost complete regrowrh with very little noticeable side effects and i’ve been really encouraged…"
Aug 31
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It’s actually a jak 3 inhibitor! The results seem to be really good with less side effects. It’s been fast tracked so it seems to be looking good for getting approved. Phase three ends beginning of 2020 and then there’s a two year…"
Jul 14
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Kat, im on the trial for the PF-06651600 drug! It’s in the works to be the first approved drug made specifically for alopecia. i’m in the trial for the last stage :) "
Jul 12
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you for responding! Congratulations on full regrowth that must feel amazing "
Jul 12
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Do you recall how long it took for him to get terminal growth? "
Jul 12

Profile Information

Relationship Status:
Single
About Me:
I wasnt sure whether to put alopecia totalis or universalis because ive lost 99% of my hair but i still have some eyebrows, upper eyelashes, armpit hair, and some pubic hair.

Edit: All my eyebrows and eyelashes have grown in since i wrote this. dont have arm and leg hair or head hair, only very short fine white hairs that havent gotten any longer on my arms and a bit on legs, none on head, lost a small patch on my pubic area awhile ago and that is growing in some.

Saw this growth after treatment for chronic ebv/lyme. Am getting second treatment soon and will see what happens :)
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall

You need to be a member of Alopecia World to add comments!

Join Alopecia World

  • No comments yet!
 
 
 

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

AlopeciaWorld.com: It's hair loss support at its best!

© 2019   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service