Carlie
  • Female
  • Newcastle, CA
  • United States
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  • NicoleT
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Carlie's Discussions

Latest on LDN? Any new users?

Started Oct 18, 2017 0 Replies

I have had Alopecia Totalis for a year. I started LDN about 45 days ago and I'm pleased to say that I have little vellus hairs all over my head. I'm also using minoxidil 7% with a steroid topically…Continue

The continuous search for help.....

Started this discussion. Last reply by Carlie Sep 25, 2017. 3 Replies

Hello everyone,I have been reading your posts for over a year now and finally decided to join in. I am 66 and last year I lost all of my hair, out of the blue, over a period of 1 week. I have a close…Continue

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Latest Activity

Carlie replied to NicoleT's discussion Xeljanz from India
"You probably have a sensitive stomach. Look into probiotics and other natural neutralizers, see if that helps."
yesterday
Carlie replied to NicoleT's discussion Xeljanz from India
"Sometimes I feel a little nauseated, but I seldom take my meds with food. Maybe try eating something first."
Friday
Carlie replied to NicoleT's discussion Xeljanz from India
"Apparently it was. "
Friday
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Finally got a notice that my parcel was released from customs and on hold for $87.00 duty taxes."
Wednesday
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Who did you order from, Mouree at Beacon is not responding to my order request emails?"
Wednesday
Carlie replied to NicoleT's discussion Xeljanz from India
"My DHL package was released from custom. I had to pay $87.00 for duty taxes to get it moving again. Such a racket!"
Wednesday
Carlie replied to NicoleT's discussion Xeljanz from India
"Hi Lu391, who are you using at Aspar?"
Wednesday
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Great, he's the best. Where are you located?"
Tuesday
Carlie replied to NicoleT's discussion Xeljanz from India
"Noaki, here's his information. I would order directly from him instead of going through Indiamart. Hardik Akbari Aspar Pharmaceuticals, G-1, Vidhi Palace A, Surat - 395004, Gujarat,…"
Tuesday
Carlie replied to NicoleT's discussion Xeljanz from India
"Check with AsparPharma, I've heard someone had success with them. They are a large company like Beacon."
Tuesday
Carlie replied to LJBMD's discussion Shipments from Beacon
"LJBM, was DHL the courier?"
Tuesday
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Ahmed, I have sent several emails to Mouree at Beacon, that seems to be the point of contact there but I have not heard from them. I have another contact but he is a little more expensive. Scroll through my posts and you will find information on…"
Tuesday
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Because Pfizer has the patent on Xeljanz and there is not a generic version available in the US or Canada. Pfizer tried to stop the production of the exact same medication under different names in India and failed. Several of the people on this site…"
Jul 6
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Ask your dermatologist about this program. Maybe they have a similar program at UCLA. https://www.ucsfhealth.org/about/our-340b-story"
Jul 6
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Football fan. Yes, it's infuriating. I am attaching the invoice from my Walgreens order. The price is 5800 for 60 tabs. They are sending me another bottle tomorrow, so hopefully that will hold me over until my India order clears customs."
Jul 6
Carlie replied to LJBMD's discussion Shipments from Beacon
"Hi Smitty, was your shipment DHL?"
Jul 6

Profile Information

Relationship Status:
Single
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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