"Thank you for your explanation. My piece, too, is a bonded hairpiece but I chose to have them put clips in because I had continuous problems with the piece lifting off my forehead (tape AND glue). The piece was attached to my head with…"
"I love the way you change up your style every 6 months.... so I suspect your replace your unit every 6 months or so? Since you tape the crown, might I be bold enough to ask if you shave the top of your head or if your FFA has gone back that…"
"Wait for it.... M&M’s were among the highest candy containing TD.... I guess it’s all the food coloring! I just found out that the Estée Lauder Moisturizer and Georgia Armani makeup that I use also contains TD! All…"
"Wait for it.... M&M’s were a month the highest candy containing TD.... I guess it’s all the food coloring! I just found out that the Estée Lauder Moisturizer and Georgia Armani makeup that I use also contains TD!…"
"I agree, it has been really quiet on here. I agree with Kandy 15 that many have possibly gone to the Facebook page, although I don’t see any familiar names on there. I think those of us that have been dealing with this for a while…"
I have had the scalp tenderness and it hurts for days - then I have a bout of hair loss - mostly off the crown now. I also get the itchy scalp, but that hasn’t happened much lately. I live in coastal…"
You are right - this is an AWFUL disease and one that nobody really understands... currently no cure and no defined reason that we get it. I know that it affects each of us differently and my defining moment was when I had been…"
I am a 65 year old woman that has dealt with Frontal Fibrosing Alopecia for about 11 years. It started after Botox injections in my forehead and hasn’t stopped. My hair has receded about 3 inches over 11 years. So happy to have found this group.
Thank you and I hope your hair system goes well. I tried to find someone who did this but I think I am now well past that. It's beilliant to hear of all These strong women coping well and owning the problem. Take care
You sent a message wondering others used Botox, I have never used it.....we are all so individual and have out own triggers........I figure it is inflammation and lowering inflammation is the best we can do.....I have been using a canabis tincture applied directly twice a day that has helped soooooo much....almost all of the redness is gone and my hairline is looking almost normal. Good luck on your inquiries.
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