Amy-Rose
  • 26, Female
  • Auckland
  • New Zealand
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Amy-Rose's Discussions

Making fun of alopecia?

Started this discussion. Last reply by Rose Marie' Oct 6, 2013. 4 Replies

I was browsing through google images this evening in search of inspiration for t-shirt designs I will be designing for the Alopecia Aotearoa event in New Zealand when I came across something rather…Continue

Tags: hurt, anger, alopecia

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About Me:
I'm small, energetic, motivated, creative and 20 years old. Was diagnosed with AA at the age of 15, and lost all of my hair at 19. Now I'm rocking one and 1/4 eyebrows, wigs and turbans.

Passionate about inspiring others with poetry and graphic design, and to put a smile on faces of those living with Alopecia.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Amy-Rose's Photos

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Amy-Rose's Blog

10 awesome perks about alopeica

Posted on February 25, 2015 at 2:00am 6 Comments

This is a link to my blog, with things that I think are awesome perks. I had a laugh writing them, so enjoy! 10 Awesome perks about Alopecia

Dreams We Sew

Posted on August 29, 2013 at 12:20am 5 Comments

Some day,

We'll stop looking for the answers,

And maybe,

Wear our hearts out on our sleeves,

But it's hard to make them see, and—

Just look at who are we,

Don't judge us as you please, we aren't weak,

Oh no.

 

And the dreams we sew,

We'll start to move mountains—

The world will be in the know,

And the more we grow—

The more they will see us, and greet us

We'll…

Continue

One step closer to making a difference

Posted on May 22, 2013 at 2:02am 34 Comments

After going from having small bald patches that would grow back over a few months, to losing 98% of my hair and half an eyebrow—the journey has been far from easy. I look back now, and cringe over how I would stress out when I discovered tiny little patches that were covered by the thick head of hair I once had.

How I would whinge because my hair was too thick, boring and normal when I was younger, along with other image issues.

How I would kid with my best friend whether he'd…

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Paint Me a Picture

Posted on March 26, 2013 at 8:16pm 13 Comments

Paint me a picture,

Of what life should be,

A world where it's people don't judge what they see.

Your hair is all gone,

It's alien—it's strange,

You find that your world has started to change.

Why is the question,

You keep in your mind,

Where are the answers you struggle to find.

A while it will take,

To accept this is you,

To challenge yourself in all that is new.

Two eyes and a nose,

A mouth and ears too,…

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Comment Wall (14 comments)

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At 8:30pm on August 10, 2014, Mary said…

Thanks for the reply Amy-rose! I'll check out theIr website anyway x

At 3:43pm on January 28, 2014, Rishabh Sanghvi said…

Dedicated to you Amy,

She never showed her fears,
Or let you hear her cries.
She never showed the tears,
That fell down from her eyes.

She never looked for pity,
Or sympathy from you.
That's why she'll always be,
The strongest girl I ever knew.

At 2:01pm on January 1, 2014, Lexi said…

Oh, it would be a Freedom!! Gorgeous.  No can afford!!  Thanks - Happy healthy New Year to you.

At 9:13pm on December 30, 2013, Lexi said…

Hey, Amy-Rose....pictures 10 and 12 = what wig are those two pictures?  Is that a real tattoo on the back of your neck area?  So pretty.  Very pretty. 

At 9:59am on September 29, 2013, kimberly dean said…

Hi Amy-Rose. I'm just wondering what brand and style the blonde wigs are in your pictures? They look great on you! I'd love to try and get myself one

At 11:56pm on July 14, 2013, Mary said…

Welcome to the International Alopecia Day Group! I would LOVE to have New Zealand in the photo slide show this year! (And, someday I hope to visit New Zealand...it's at the top of our list!)

At 8:54pm on June 24, 2013, Todd said…

Hi Amy Rose. I had pretty good results with the ExTrac UV laser (308 nano meters) 3 times a week for about a year. Probably about half my hair came back and has remained for over 2 years now. It's normally used to treat eczema, but can work off label for AA. See if any of your local dermatologists have one and then try to convince them to use it on you.

Todd

At 7:59pm on May 22, 2013, Kate said…

I'm in Helensville but I have a car, where are you?

At 5:18am on May 22, 2013, Kate said…

HELLO! I just read your blog and it made me smile, well done you! It it feels like a great weight lifted. It also means you can now officially buy crazy wigs and wear whatever you feel like whenever you feel like! Anyway, I've just arrived in Auckland and I'm here for another 6 weeks so was just wondering, if you fancy meeting up for a coffee or something let me know! x

At 3:32pm on April 30, 2013, LeslieAnn Butler said…

Hello and welcome, Amy-Rose!
How are you today?
Leslie Ann

 
 
 

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