AlopeciaDestroyedMyLife
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AlopeciaDestroyedMyLife's Discussions

Xeljanz (Tofacitinib Citrate): My experience on the trial

Started this discussion. Last reply by Nat yesterday. 7447 Replies

I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.I thought it would be nice for everyone if I documented my progress on here. Xeljanz is a Jak3…Continue

Tags: xeljanz, trials, treatment, tofacitnib, citrate

Got dumped because of my alopecia

Started this discussion. Last reply by Stars-r-Aligned Jun 23, 2016. 39 Replies

I had another alopecia episode and my eyebrows fell out again. This has had a dramatic impact on my appearance. I was scared to tell my then girlfriend but eventually plucked up the courage to tell…Continue

I can't take it anymore

Started this discussion. Last reply by Rose Marie' Jul 3, 2014. 6 Replies

I have pretty no hair anywhere my only pride and joy were my eyebrows which grew back after steroid injections 2 years ago with full regrowth in 2 weeks. In the past few months they have all fallen…Continue

Please bring back chatrooms (disappeared with no explanation)

Started this discussion. Last reply by AlopeciaDestroyedMyLife Jul 6, 2014. 3 Replies

Alopecia World please bring back chatrooms there are no alopecia chatrooms anywhere on the internet. Chatrooms are the best support someone can get online as its in real time. Bring them back please.Continue

 

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Latest Activity

Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have a co-pay card, my pharmacy tried to get it thru the system. But since it's a co-pay savings card - insurance has to approve. My insurance - Cigna - denied. "
yesterday
Christopher's_mom replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"The co-pay does not work for people who are on government insurance programs for which medicare may be. However, Pfizer does have a hardship program for people who cannot afford the medicine."
yesterday
Christopher's_mom replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I Googled "Xeljanz Co-Pay card" and was led to the website. It was so simple online that I thought it couldn't possibly be real. They texted me the the expiration date, BIN #, Group # and Member ID #. I gave that info to my pharmacy…"
yesterday
Christopher's_mom replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"In my opinion, it is your doctor's responsibility to work to get you approved. Having said that, my son's physician asked him to write a personal accounting of the effects alopecia is having on his life to include with his photo and appeal…"
yesterday
chris_s replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"congratulations on your success; your son is the youngest person I've come across to date using (I assume oral) xeljanz.  I hope you have continued success with both regrowth and side effects, thanks for sharing!"
yesterday
Theresa replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Christopher's_mom - thanks so much, this is helpful. I'm afraid that as it stands right now, my derm is leaving it up to me to write the case.  I see her next week and I will insist that she take pictures and help me with the case.…"
yesterday
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I found that even if my insurance covered it (I have medicare) the co-pay would be more than I could afford. "
yesterday
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi, how did you get Xeljanz with a Co-pay card? I got one from my derm. but my insurance still blocked it. I have Cigna. Thanks"
yesterday
Christopher's_mom replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Theresa, My son has alopecia and we have BC/BS PPO who covers the drug. Initially it was declined. The derm photographed my son's head and wrote the appeal letter including the photo. They declined and provided research materials to support…"
yesterday
Theresa replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Nicole - I'm curious about what BCBS plan covers Xeljanz.  I had CareFirst and I was able to get approval for them to cover Xeljanz. Because of the significant raise in bi-weekly deductions for health insurance, I switched to BCBS on…"
yesterday
Emeli701 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Nice post!"
Sunday
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"for myself, 10mg/day did nothing for 3 months. 20mg/day started showing results within a month. Talk to your doctor about it."
Saturday
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"actually I did micropigmentation. 5 or 6 sessions in total. I started while I started Xeljanz and I didnt know what will work.  I think it's useful yet it's hard to find what exactly your pigment is because when after you do it…"
Saturday
Brock replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"mscoops... we are in the exact same boat.  I was diagnosed with aa in July.  I got the steroids shots in my one spot and was hopeful.  In September it went crazy.... I lost about 40 percent of my hair by December.  Multiple…"
Friday
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I think its normal, as normal can be w this disease, keep on xeljanz , it will get better and improve be patient. The inflamation is still going while the xeljanz is kicking in"
Friday
Cocopuffz17 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Change your diet and supplement properly. https://www.alopeciaworld.com/forum/topics/aa-for-3-4-years-partial-au-for-1-2-years-i-have-100-regrowth-on it works and I will prove it fully as i continue. Ask yourself when have you seen results…"
Friday

Profile Information

Relationship Status:
Single
About Me:
Lost all my hair when I was 18, eyebrows , beard, everything other than some parts on my chest.

I am on the study with the new drug Xeljanz for alopecia.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (13 comments)

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At 2:04pm on August 21, 2018, MindOverMatter said…

Hi AlopeciaDestroyedMyLife,  I have sent you a friend request...I hope you don't mind.. but you seem to be the mind all knowledge on this forum when it come to taking Xeljanz... I like you am from the UK and at the minute there is no one else I can turn to for some advice or help with taking Xeljanz in the UK..!

At 6:45am on April 19, 2017, Davy said…

Hi brother,

I live in Uk, Manchester, and have been under Xeljanz through dr. king

for more than a year now. Do you have a mobile phone, I would like

to talk to you about Xeljanz in UK, apparently it is available for

compassionate use. Have you heard about that?

Plese if possible send me a whatsapp message at the +393286266248.

very appreciated

At 9:22pm on May 20, 2016, Stressedmom said…
My daughter is on Xeljanz oral for 5 months. She is experiencing rapid regrowth since month 4 and while patchy, hair is dark and soft and her own healthy hair regrowth. The doctor is blown away with the progress.
This truly is a miracle if only for the hope that we really needed to have that one day this could be reversed.
At 2:17pm on January 26, 2016, The_Flyest gave AlopeciaDestroyedMyLife a gift
Gift
Thanks for doing this on the forum, keep up, be great
At 3:29pm on December 20, 2015, Hope finder said…

Hi ADML

I hope your progress is being maintained. 

I'm new to this forum but I have been monitoring it since you started it. I have to commend you on your work. You have encouraged thousands based on the over 225,000 views.

You could even say that you are a pioneer. I never suspected you of being a conman because of the press, Pfizer are a multi billion dollar company who do not need crooks selling snake oil and you have been a member for quite a while prior.

What got me hooked was the letter you received from Pfizer confirming Turkey Xeljanz is genuine and affordable.

If you accept me as friend I hope you would be able to further discuss how I could obtain Xeljanz in Turkey.

Whether you accept me as a friend or not you should be truly proud of your work.

At 2:37am on October 1, 2015, Naresh said…
This is Naresh from India. How can I get tofacitinib citrate. Please reply me
At 7:38pm on July 6, 2015, LittleSadEyes said…

At 7:19pm on July 6, 2015, LittleSadEyes said…

At 8:42pm on January 20, 2015, lusha22 said…
Hi:) I sent a friend request... Would you mind if I asked you a few questions? I'm 37 yo female with AU.
Thank you!
At 4:25pm on December 22, 2014, itzmejudy said…

Thanks for friend request.. Hope you are doin well.

 
 
 

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