AlopeciaDestroyedMyLife
  • Male
  • UK
  • United Kingdom
Share

AlopeciaDestroyedMyLife's Friends

  • MindOverMatter
  • Shad
  • Livia18
  • Sara
  • AreataSince2010
  • Shaku
  • Sad1995
  • itsucks
  • Youknow
  • Omar Hamzeh
  • magmck
  • Annie London
  • Mohammed
  • maireadcg
  • Jake

AlopeciaDestroyedMyLife's Discussions

Xeljanz (Tofacitinib Citrate): My experience on the trial

Started this discussion. Last reply by kevin 2 hours ago. 7757 Replies

I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.I thought it would be nice for everyone if I documented my progress on here. Xeljanz is a Jak3…Continue

Tags: xeljanz, trials, treatment, tofacitnib, citrate

Got dumped because of my alopecia

Started this discussion. Last reply by Stars-r-Aligned Jun 23, 2016. 39 Replies

I had another alopecia episode and my eyebrows fell out again. This has had a dramatic impact on my appearance. I was scared to tell my then girlfriend but eventually plucked up the courage to tell…Continue

I can't take it anymore

Started this discussion. Last reply by Rose Marie' Jul 3, 2014. 6 Replies

I have pretty no hair anywhere my only pride and joy were my eyebrows which grew back after steroid injections 2 years ago with full regrowth in 2 weeks. In the past few months they have all fallen…Continue

Please bring back chatrooms (disappeared with no explanation)

Started this discussion. Last reply by AlopeciaDestroyedMyLife Jul 6, 2014. 3 Replies

Alopecia World please bring back chatrooms there are no alopecia chatrooms anywhere on the internet. Chatrooms are the best support someone can get online as its in real time. Bring them back please.Continue

 

AlopeciaDestroyedMyLife's Page

Latest Activity

kevin replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"tc that's what i think also it does not look like an alopecia autoimmune areata for my part in 2 months I had more hair and most of us it's like his it would be bald spot it a hair density less but no bald spot"
2 hours ago
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Quand quelqu'un est fragile, il faut être doux et patient."
2 hours ago
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Rapunzel (notice I left out the sad) :) Thank you for sharing your pics. I know and understand how hard it was for you to post your pics, but consider it a first courageous step to healing...step by step. So now you have change to change your…"
2 hours ago
kevin replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"exactly frida! How long have you been losing your hair? apart from the hair is hair falling too? I do not think that it is auto immune because in general you have totally bald spots like pieces and as you go bald completely in 2 months. so I would…"
2 hours ago
kevin replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"exactly frida! How long have you been losing your hair? apart from the hair is hair falling too? I do not think that it is auto immune because in general you have totally bald spots like pieces and as you go bald completely in 2 months. so I would…"
2 hours ago
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I think we all understand it's related to leaky gut. Fixing it is hard and not easy, different for everyone ."
2 hours ago
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Rapinzel, i think that it is it is more likely to be TE, unless you have a spot where it is totally bald.  That should be encouraging as TE can be resolved within months when the underlying cause is dealt with. To me it sounds as though…"
2 hours ago
AnakinWildstar69 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"OKAY...I THINK I HAVE THE SOLUTION TO THIS ALOPECIA AREATA,TOTALIS,UNIVERSALIS ""DISORDER"""....I'VE DONE A LOTTTTTT OF RESEARCH INTO THIS PARTICULAR AUTOIMMUNE DISORDER, AND HERE'S WHAT I'VE COME TO…"
3 hours ago
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Rapunzel (notice I left out the sad) :) Thank you for sharing your pics. I know and understand how hard it was for you to post your pics, but consider it a first courageous step to healing...step by step. So now you have change to change your…"
3 hours ago
AnakinWildstar69 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"again, "John Bergman-Autoimmunity-2018"..youtube video.  enjoy =D "
3 hours ago
AnakinWildstar69 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi. ALWAYS CHOOSE LIFE. Suicide is for the weak-minded. I've had AU for 16 years, and I've survived it without one tear shed. I even got microblading along with micropigmentation on my scalp and it looks great. I rarely wear hats/beanies…"
3 hours ago
Natalie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Magmck I will let you know how I get on. Regards Nat"
4 hours ago
Natalie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Frida Thanks for the advice very helpful. Much appreciated.  Nat "
4 hours ago
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"So what do I need to do now?  If this dug is too powerful for me, so what is left? WHat to do with this awful thinning? It is noticeable. People asking, people see this difference. I don't meet with people who knew me before... "
5 hours ago
kevin replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"for the moment you do not do anything, because you only have sparse hair so no hole, because using a drug you can worsen the fall. no doctor will prescribe xeljanz or a powerful medicine. you do not even know if your fall will stop. I was not…"
6 hours ago
Brock replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I think we all go through this phase.  I know I did.  I did until one day the kindest person I know was diagnosed with terminal cancer.  She was only 12 years old and suddenly it whipped me into shape and appreciate what I have. Im…"
6 hours ago

Profile Information

Relationship Status:
Single
About Me:
Lost all my hair when I was 18, eyebrows , beard, everything other than some parts on my chest.

I am on the study with the new drug Xeljanz for alopecia.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (13 comments)

You need to be a member of Alopecia World to add comments!

Join Alopecia World

At 2:04pm on August 21, 2018, MindOverMatter said…

Hi AlopeciaDestroyedMyLife,  I have sent you a friend request...I hope you don't mind.. but you seem to be the mind all knowledge on this forum when it come to taking Xeljanz... I like you am from the UK and at the minute there is no one else I can turn to for some advice or help with taking Xeljanz in the UK..!

At 6:45am on April 19, 2017, Davy said…

Hi brother,

I live in Uk, Manchester, and have been under Xeljanz through dr. king

for more than a year now. Do you have a mobile phone, I would like

to talk to you about Xeljanz in UK, apparently it is available for

compassionate use. Have you heard about that?

Plese if possible send me a whatsapp message at the +393286266248.

very appreciated

At 9:22pm on May 20, 2016, Stressedmom said…
My daughter is on Xeljanz oral for 5 months. She is experiencing rapid regrowth since month 4 and while patchy, hair is dark and soft and her own healthy hair regrowth. The doctor is blown away with the progress.
This truly is a miracle if only for the hope that we really needed to have that one day this could be reversed.
At 2:17pm on January 26, 2016, The_Flyest gave AlopeciaDestroyedMyLife a gift
Gift
Thanks for doing this on the forum, keep up, be great
At 3:29pm on December 20, 2015, Hope finder said…

Hi ADML

I hope your progress is being maintained. 

I'm new to this forum but I have been monitoring it since you started it. I have to commend you on your work. You have encouraged thousands based on the over 225,000 views.

You could even say that you are a pioneer. I never suspected you of being a conman because of the press, Pfizer are a multi billion dollar company who do not need crooks selling snake oil and you have been a member for quite a while prior.

What got me hooked was the letter you received from Pfizer confirming Turkey Xeljanz is genuine and affordable.

If you accept me as friend I hope you would be able to further discuss how I could obtain Xeljanz in Turkey.

Whether you accept me as a friend or not you should be truly proud of your work.

At 2:37am on October 1, 2015, Naresh said…
This is Naresh from India. How can I get tofacitinib citrate. Please reply me
At 7:38pm on July 6, 2015, LittleSadEyes said…

At 7:19pm on July 6, 2015, LittleSadEyes said…

At 8:42pm on January 20, 2015, lusha22 said…
Hi:) I sent a friend request... Would you mind if I asked you a few questions? I'm 37 yo female with AU.
Thank you!
At 4:25pm on December 22, 2014, itzmejudy said…

Thanks for friend request.. Hope you are doin well.

 
 
 

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

AlopeciaWorld.com: It's hair loss support at its best!

© 2019   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service