Alo-mom
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  • Palm Desert, CA
  • United States
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Alo-mom's Discussions

Eyebrows

Started this discussion. Last reply by lea May 31. 3 Replies

So I think I have found a great item and I would like to share with the group. The brand is called my brows.It is a stencil that I am trying out for the group. I have placed it on the back of my…Continue

Reliable Wig Repair

Started this discussion. Last reply by Bon Jul 17. 3 Replies

Good morning to you all. I need feedback on how people struggle to get their wigs repaired. For a long time I have believed that we are faced without many sources to make this happen. To me being…Continue

Tags: repairs, wig, hair, Human

How many out there would like to be given some worth while guidance if you are planning on wearing wigs?

Started this discussion. Last reply by Bon Feb 22. 4 Replies

I have been a member of AW for many years and don't believe that folks know how to order or look for a wig. I may be wrong, but all I know when I was new to AA I was without honest and sincere…Continue

Tags: with, wigs., right, it, get

Where can we find a group in the Tacoma Washington area for a childrens support group.

Started this discussion. Last reply by Alo-mom Jan 10. 2 Replies

I have a friend who wants to start a non profit for wigs children in the Tacoma area and I told her I would ask around and see if there was one. Any input would be greatly appreciated. ThanksContinue

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Latest Activity

Alo-mom replied to ssuzanne's discussion New and really scared
"As the mother of a daughter that lost all their hair to Alopecia, she too had the most beautiful thick hair ever.  10 years later my heart still aches but she came to grips with the loss due to the support system she had around her. First, you…"
Sep 12
Alo-mom replied to Catgirl's discussion Looking for a good but reasonable wig shop
"Check out the website silkorlace.com They sell gently used and new human hair wigs at discounts. "
Sep 10
Alo-mom replied to ken123's discussion WHEN WILL XELJANZ BE FDA APPROVED?
"That is a very good question. You could call Phiezer and ask them, They have a 1-800 number and maybe ask to speak to someone there that works with Xeljanz. I would be very interested myself. Stay safe"
Sep 7
Alo-mom replied to Leanna's discussion Wigs
"Seems odd that they are starting at you just because you wear a wig. Do you think that maybe it does not look natural and they notice that?. There are so many Synthetic and Human hair wigs that look so real you cannot tell. On the other hand there…"
Aug 17
Alo-mom replied to 559Courtney's discussion Mixed Feelings about my Alopecia
"Hello from a mom whose daughter has Alopecia Universalis. I am not a psychologist, but here are my thoughts. I believe that the growing and losing of your hair over time causes you to not totally accept it. It is like being on a roller coaster. My…"
Aug 17
Alo-mom replied to kimmy68's discussion Alopecia
"A good source of information is the National Alopecia Areata Foundation. There is a genetic link no doubt but it is  not a given. I have a son that does not have it and both my xhusband and I did not have it, however his mother did have a form…"
Aug 17
Bon replied to Alo-mom's discussion Reliable Wig Repair
"Hi! Are you replying to me? I'm sorry I haven't been on this site nearly often enough as this pandemic thing has caught my attention and energy.  I do have a specialist in Seattle that might be of assistance.  Thank you and stay…"
Jul 17
Alo-mom and ariel are now friends
Jul 8
Baroness replied to Alo-mom's discussion Reliable Wig Repair
"My hairstylist taught me how to care for and maintain my wigs.  If I have any issues I just go to her.  Is there a hairstylist in your area that you could maybe reach out to?  Or maybe a cosmetologist school or instructor?  A…"
Jun 9
lea replied to Alo-mom's discussion Eyebrows
"Pictures be great too."
May 31
lea replied to Alo-mom's discussion Eyebrows
"Thanks, how is going with this product? have you used in warmer humid weather?"
May 31
Alo-mom replied to Patchylatchy's discussion who has information on when will we have drug available
"Hello, are you a member of the National Alopecia Areata Foundation. They are the best resource for information regarding medications and clinical trials. They have a great website and you can call them anytime."
May 20
Alo-mom replied to Yolanda Pigatt's discussion Alopecia California
"Good morning, i am a phone support volunteer for the National Alopecia Areata Foundation. There are several, I am one in the Palm Springs area. Hope you are doing well."
May 20
BreeShanice replied to Alo-mom's discussion Eyebrows
"Thanks for posting! I've been looking for something for my thinning brows since I'm not into makeup. "
May 12
Alo-mom replied to Jessica's discussion What make-up do you use?
"Take a look at a product called MY EYEBROW sold by Madam Madeline. They are an amazing company I I buy lashes in bulk from them. I recently tried MY EYEBROW, it is a tatoo that lasts up to 5 days. They come in different colors, different sizes and…"
May 5
Alo-mom replied to MeenaRamona's discussion Anybody try Newlacecu vacuum wig?
"I have.a couple suggestions. First before you order from them you can see they are overseas. That being said it might take a bit more investigation on your part. I do not see what type of hair is being used. The wig cap looks good but that does not…"
May 1

Profile Information

Relationship Status:
Married
About Me:
When my 22 year old daughter developed AU I really struggled to find her the best hair pieces possible. I found that salons for the type of wigs she wanted were in the thousands of dollars. I decided to do my research for over a year for human hair factories in China. I decided to go to China and found the best factory and met with the owner. My goal is to bring this knowledge to those who want to wear a wig. My passion is to help others to live a full and confident life. I would be glad to help anyone find the best human hair wig for medical hair loss at a price point that hopefully can work. These are all custom made and all hand tied units. Thank you for taking the time to read about my journey. All my best Lisa
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (7 comments)

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At 6:47am on February 22, 2020, Bon said…

Alo-mom, please excuse computer changes your alias to ALL-MOM but not until I post. :(. 

At 6:44am on February 22, 2020, Bon said…

Hi again, I AGREE not enought hair dressers know how to customize faux hair! Luckily Collier Design in Seattle does just that and does it well.  I am learning how to use the soft velcro wig band (?) to keep my wigs in place.  So!  I have Jon Renau wigs and Renee of Pairs. My favorite one is the best Renau that has silicon in a U shape from hairline almost to crown and open wefting throughout the rest of it. It is airy and light.  Looks VERY natural though my hair is silver...no one has guessed it is faux. ALL 8 of my other wigs are uncomfortable purchased at various wig salons sold by owners who know little if anything about styling. I have gone on YouTube to learn how to customize. Again I worked in a wig salon for about two years 100 years ago (just kidding!) but I can't remember what we did other than have fun! (:  Collier Design in Seattle does a fantastic job. I have another appointment on March 5th to have my biohair cut and/or buzz cut. I did it on the left side below temporal area to side burns to see what it looks like..hmmm.....may try a shorter version of my now unwearable hair instead....only issue I have is I am SICK of finding long strands everywhere..but I digress. All-mom, besides the monofilament, open wefted synthetic wigs.....WHAT ELSE SHOULD I BE LOOKING FOR?  I will purchase another synthetic similar to my most comfortable one described above. However, I want them to retrofit it with more silicon around hairline if possible. Also, WHAT IS THE BEST WIG GRIP BAND to buy. I have a nice one, thin/soft that I bought from Collier but unless I wear it at hairline in front (scarring area with no hair at temples) and just above my ears which makes my ear stick out a touch it slips up and into the wig.  PLEASE ADVISE? Thank you again for being there with you wisdom and expertise! If I weren't 71 I'd go back into business simply customizing wigs!  Be well, Bon

At 9:44am on February 20, 2020, Bon said…

Good Morning All-mom thank goodness, so appreciate you friending me!  Any advise you have re: faux hair is appreciated and head wraps, etc. I still have hair but profuse loss scarring around hair line.  Have rare form; Lichen Planoparlisis (thank you very much!)  (:  So I am a retired hairdresser with a cabinet full of high end wigs of various colors and styles always have loved them; problem is that my scalp is so tender that even chemo caps irritate especially when I dance and perspire a bit!  I went to Collier Design they specialize in hair replacement (non invasive) pieces and alternatives.  They are looking into retrofitting my current wigs with silicon around hair line.  My biopsy derm doc prescribed a topical cortisone liquid which I use but told her since I am super healthy in every other way, I'd choose to lose hair rather than take what she suggested. I immediately went to my nautropath who suggested LDN and LDA.  Very interesting research.....I have been on LDN for about 2 1/2 weeks am starting LDA on Monday. I also got my hair cut.  It was beautiful thick natural curly lovely silver color now broken minaturized barely any depth to color, well you know the story. So!  Am moving into acceptance through prayer, meditation, not hiding it and sharing it with friends. I divorced after 36 years in 2014, Luckily I meant a wonderful man in 2015 prior to the beginning of hair loss and he loves me no matter what.  I think it's very important that we don't suffer in silence!  I am not my hair though it is mine and I am not my emotions though they are mine.  Right?  Be well and thank you AGAIN for responding. 

At 3:43pm on August 10, 2017, Karla said…
Hi can you please recommend me a few contacts / websites in china
I'm desperate to find a blonde wig
Thanks
At 10:57am on March 7, 2017, asp2014 said…

Hey, Thanks for your reply. Currently I'm not living in the states but will very soon. I'm also a citizen in case that has anything to do with receiving help from Xelsource. My concern when I apply for the hardship program is getting stuck in the bureaucratic muck. Since a handful of folks have already been in the trenches I was hoping I could get the ins and outs to have a seamless and hassle-free experience. It's great to hear that the folks over at Xelsource are nice and helpful.  

At 3:27pm on June 4, 2016, Lexi said…

Hi....when you buy from China, do they also have online website to order from? 

At 10:06pm on March 27, 2016, LeslieAnn Butler said…

Hello and welcome!

How are you and your daughter today?

 
 
 

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