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AM's Discussions

New Clinical Trial - PF-06651600

Started this discussion. Last reply by AM on Saturday. 8 Replies

Anyone taking part or heard of the Pfizer Clinical trial in phase 2B/3?  I have alopecia and it got really bad over the last year - likely due to stress and bad sleeping habits.  Within a span of 2-3…Continue

tofacitinib - safety concerns? Balancing risk vs reward?

Started Sep 8 0 Replies

hi all - I’m new to this forum but unfortunately not new to alopecia. I’ve had AA for sometime now but have had success with patches coming back. I know that stress has been the main trigger for me…Continue

Stress Related Alopecia? Any thoughts would help...

Started this discussion. Last reply by Nat Sep 7. 12 Replies

 am a male that suffers from alopecia. My first bald spot was in grade 8 and it grew back a few months later. In 2013, my sister passed  very unexpectedley away suddenly and i took on a new job (dumb…Continue

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Latest Activity

AM replied to deehayes13's discussion CTP-543 trial--anyone start it yet?
"I am contimplating the PZier trial.. not sure what the difference is?"
yesterday
AM replied to deehayes13's discussion CTP-543 trial--anyone start it yet?
"How are the side effects?"
yesterday
AM replied to AM's discussion New Clinical Trial - PF-06651600
"Do you know if JAKs can impact conceiving or pregnancies?"
Saturday
kevin replied to AM's discussion New Clinical Trial - PF-06651600
"hello nor there is also the ctp 543 and he a step ahead and better result against I doubt that it is in 2022 because there is still a test phase is the last phase 3 I say more 2024 if all is well. ctp 543 is a derivative of ruxolitinib and jak to…"
Oct 7
AM is now friends with Cassidymain and JeffreySF
Oct 7
Nor75 replied to AM's discussion New Clinical Trial - PF-06651600
"This is not a new trial. The medication is in development since 2016 and will expectedly be marketed in 2022. In the trials nobody had any side effects. It will be the standard treatment for AA."
Oct 7
AM replied to Cassidymain's discussion PF 06651600 Trial
"Hey Cassidymain - I recently got approached to be a part of this trial in Canada. I am not sure I want to do this as I am worried about the potential side effects... would you be okay to chat privately? I am based in toronto Canada ...and going…"
Oct 6
Fingers_Crossed replied to AM's discussion New Clinical Trial - PF-06651600
"There is someone on the xeljanz thread who is in this trial. Cassidymain . You could reach out to them for more information.  The side effects and risks that one is willing to take is such a personal decision. Personally, I would do anything…"
Oct 4
AM replied to AM's discussion New Clinical Trial - PF-06651600
"Thanks - did you read this somewhere?  I was speaking to a derm yesterday who mentioned the same thing?"
Oct 4
Nor75 replied to AM's discussion New Clinical Trial - PF-06651600
"In appr three years we will all be treated PF-06651600. It is the breakthrough med."
Oct 4
AM replied to AM's discussion New Clinical Trial - PF-06641600
"You're right it is PF-06651600!..."
Oct 3
chris_s replied to AM's discussion New Clinical Trial - PF-06641600
"I have no input, but are you sure you have the drug name/number correct? there are a few with similar names, and the one you posted isn't turning up any google results Generally these trials are very closely supervised so the risk is low.…"
Oct 3
AM posted a discussion

New Clinical Trial - PF-06641600

Anyone taking part or heard of the Pfizer Clinical trial in phase 2B/3?  I have alopecia and it got really bad over the last year - likely due to stress and bad sleeping habits.  Within a span of 2-3 weeks I was losing hair rapidly - lost all my eyebrow hair, eyelashes etc.   I have been approached to take part in the trial but am worried about the potential side effects (this is likely a JAK2 or JAK3 drug).  They say that this is supposed to be 'better' then tofa but again, unsure if I want to…See More
Sep 30
AM replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Where do you get your meds from? What dose are you on?"
Sep 18
Mike Staffieri RHN and AM are now friends
Sep 17
AM commented on Mike Staffieri RHN's blog post Modified Coimbra Protocol...high dose vitamin D for Immune modulation
"Hey mike - I am also in toronto Canada and struggling with alopecia - sent you a friend request - it would be great to connect and learn more. This is all new to me - I’m 36."
Sep 17

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Relationship Status:
Single
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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