Moms with daughters who have Alopecia

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Moms with daughters who have Alopecia

This group is meant to bring moms together who have daughters with alopecia.  We can share ideas and insight.   My little one is seven and she has the best attitude.  All she cares about is laughing and playing and do cartwheels.  Her name is Lilly.  She is my inspiration to finding peace while continute to search for ideas.

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Latest Activity: Jun 19, 2019

Discussion Forum

My daughter just diagnosed at 9 months?!?

Started by Monica2016. Last reply by pterese Jan 11, 2016. 1 Reply

Hello my name is Monica and my daughter was just diagnosed with alopecia areata from like a 1 min apt with a dermatologist! I just cant get over how this Doctor didn't even get closer than an arms…Continue

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Comment by pterese on January 14, 2016 at 8:03pm

What do you mean purple under eyes?  

Comment by pterese on January 13, 2016 at 9:06pm

I believe you should test for

1.  candida

2.  parasites

3.  heavy metals

4.  vitamin levels

5.  food allergies

6.  C reactive protein (inflammation)

7.  fungal infections

This is a start.  It can rule out certain things that cause leaky gut and autoimmunity.  

Comment by Lexi on January 12, 2016 at 8:42am
Hello all. Im a mum to triplet girls. I have one of my girls with Alopecia Totalis. Just after her first birthday her hair started falling out. within two weeks it was all gone. she is now 2.5 years old and have little blonde eyelashes growing back. We have been to several dermatologist who just keep prescribing creams. i have tried all the creams, but they dont seem to be doing much. started seeing a Trychologist how has given us La Tyrosine powder. Your body naturally generates this amino acid, however alopecia suffers lack this amino acid. Alexandra has been on it for 6 months. she has hair growing on her eyebrows and eyelashes, and some facial hair, its still baby hair and blonde.do any other mothers believe that diet plays a significant part?
Comment by Magdalene on January 11, 2016 at 9:23am

Thanks pterese! That is pretty much what I think too... we are now consulting a doctor who analysis her hormonsystems into detail (Endokrynologist) and a holistic  working doctor who surveils everything. My daughter had Cortison-therapy too, but it did not help at all, only side-effects! She said "no", esp. because she is a semi-professional athlete. She tries to balance her diet, hard because she lives in a host-family right now... we will do what we can. It is nerv-wrecking. I do not sleep. So sorry for you and the 7-year-cutie. Shouldn't be like that... 

Comment by pterese on January 10, 2016 at 4:01pm

Hello Magdalene,  I am in the same exact place with my 7 year old.  It is heartbreaking to watch, no doubt.  I am wondering if she has changed her diet in any way?  Here is what I have learned:

1.  Autoimmune disease is caused by inflammation

2.  Inflammation is caused by

a.  candida leaking from the intestines

b.  parasites

c.  heavy metal toxins in the blood

d.  food allergies that you may not be aware of

e.  poor diet:  too much sugar, too much gluten, processed foods

f.  stress

It takes time to figure out which one of these is the trigger. I am convinced there IS A TRIGGER.  Bloodwork will be a start to try and eliminate some of those listed above.

Comment by Magdalene on January 9, 2016 at 3:35pm

Hello. I am new. My daughter was diagnosed AA just a month ago. She is 18. She had the most beautiful hair one can think of... now it is almost gone. She is tough, but... well. The worst is yet to come. We live in Germany. I just wanted to say hello, no chat-power left ...: ( I am hopeful to get some inspiration and hope here. I am not really used to be in chatrooms...

 

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