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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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No, it really doesn't itch, only occasionally. I guess I am lucky. Thanks for the tip on Good Person. Are you happy with them (tatoos)?
Yesterday I bought a chubby eyebrow pencil from Clinque - I think I can learn to do it but what a PAIN!! (especially when I go out, forgetting that I didn't put it on!!!!)
Interesting about the clobestasol - I also think my hair is thinning on the scalp but maybe it's an illusion? .... Because the redness is gone now. My dermatologist said to takke the 2 pills together - 400 mg total/day. I questioned that also but she stuck to the 2 together.
The Protopic is alittle sticky as the base is like vaseline. But I only put it at my hairline where the redness exists around the follicles. I am looking into a compounded prescription with the tacrolimus in a Cetaphil lotion base. My derm wrote a script for it but I have yet to get a cost. Will let you know. . .
I am only taking 200 mg of Plaquinil once per day. Are you both taking a total of 400 mg per day?
Chris, I also wear bangs, glad that is working for you. Because of that I probably did'nt notice the hairline. I started wearing them VERY long to cover the eyebrows - I am terrible at applying pencil - Now that I know what this is, I will look into the tatooing and finding someone who can do the individual lines so it looks more natural. In the meantime I have been using Clinique's eyebrow powder when the bangs get cut too short.
My dermatologist told me to use the Clobestasol solution once/day or every other day. The scalp where I apply it immediately cleared up but now I can see how terrible\y thin that area is. Pam, my dermatologist is in Hillcrest and she has one another patient with this. She also said this usually affects women with diaabetes or postmenopauseal. She was suprised when I said I went thru that 30 years ago when I was 40.
Right now I am in Palm Desert and will try to find someone who "specializes" in FAA - Pam, I will interested to know what you think of your dr at UCSD>
Chris, I can't believe the comment your dr made-really professional. I guess they just don't know anything about this.
I think my dermatologist said 2 months also to see if it is working. She took lots of photos. The nausea is really bad and I am taking the 2 pills at night w/food. It comes and goes, and gets better if I keep something in my stomach every hour or so-like applesauce, rice, 7up, etc So much for the diet.
Two years ago, when the eyebrows started, I began taking Thyroid pills and biotin (vitamin) plus using biotin shampoo. Obviously
those things did not work.
Your comments are appreciated. Pam, my email is Jkeller39@aol.com
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