Comment

Comment by Jules UK on February 9, 2013 at 6:19pm

Hi Liz, I stayed at the Travelodge at Salford Quays. It was about 10 mins from the hospital but I needed the satnav! It was clean and modern and only £20! I took my breakfast with me (cheap and cheerful, that's me) so can't comment on the restaurant attached. When do you go? I was impressed with Salford Royal -staff friendly and helpful. Good luck!
And welcome to Simone. X

Comment by Liz on February 9, 2013 at 4:25pm

Hallo again :o) Did anyone who has seen Dr Harries at Salford, stay the night in a hotel? If you did, what one and would you recommend it? xx

Comment by Simone NJ USA on February 9, 2013 at 3:09pm

Hi Susanne;

I started juicing with fruits and vegetables each day and started slowly exercising..I have cut out my red wine, sadly.. ..hardly any sugars...does anyone know if juicing would affect FFA as it is sugar from the fruits. However, it's supposed to be healthy to juice..I still have a not of inflammation going on which I hope will stop soon. Celia, my Derm is giving me corticosteroid injections to halt the inflammation..we will see...has anyone had these & seen a slowing of inflammation?

Comment by Susanne on February 9, 2013 at 3:06pm

Liz - redness.

Comment by Liz on February 9, 2013 at 2:59pm

How do I know if have any inflammation or not?
x

Comment by Susanne on February 9, 2013 at 2:51pm

Welcome, Simone and hi, everyone. Celia, I have to say, I've been better at reducing my wine intake, but I haven't stopped it completely. We have to have some pleasure in our lives. There are mixed messages about red wine as inflammation-reducing/inflammation-inducing. I'm trying to only have that glass with food. What a lot of people are saying about sugar fits with what my nutritionist told me about having to be sure I don't have so many sugar highs and lows - she thinks that's part of what got my system out of wack because I often eat breakfast, don't have a good lunch, but then eat again in the evening. I've never had diabetes, but my dad has had some blood sugar issues, bordering on diabetes and he's completely controlling it with diet and exercise. So I'm trying to be moderate in my sugar-intake (only small treats after having eaten something real), limit alcohol and then I'm still off gluten. I'm also eating some beef stock every day which I make myself (lots of minerals and gelatin, which is good for hair and skin.) My hair loss seems to have slowed down and for the past several days I've had no inflammation at all. I'm sorry if I'm repeating myself too much, but I just wanted to post an update. The tricky thing is that I've made quite a few changes, so it's hard to say what's helping, but it does seeem to be helping. Time will tell... All the best to everyone!

Comment by Simone NJ USA on February 9, 2013 at 1:13pm

Hi Celia:
I noticed a patch of hairloss at the let temple 1 1/2years ago and thought it was from stress. I didn't think much about it. Then last year Dec I noticed the right side temple starting to recede as well. In Jan I started to see the hairline receding. So I went to the dermatologist in Feb & was diagnosed with FFA. This has been very hard for me as I'm sure for everyone else in the forum. This is new to me so day by day I try to find strength to accept it...my eyebrows are still intact..and yes, lol, I would love to be in a sunny climate right now...lol...thanks for support..

Comment by Liz on February 9, 2013 at 9:51am

My mum reckons that the hormones we absorb might have a part to play. Those such as in the contraceptive pill and in the foods we eat. I'm a big milk drinker and I dont think this can be good and the stuff they feed animals before slaughtet would makybe make us wince if we knew the details. Does anyone have FFA more on one side than the other? The right side of my head is at least twice as affected than the left.Half my right eyebrow has gone too. In addition to this I have problems with other righthand areas of my body. My right eye, my gall bladder etc. Does anyone have gall stones? Also, a weird question I know, how many of us are left handed?
xx

Comment by Simone NJ USA on February 9, 2013 at 9:16am

Hi Debs: I'm new to this forum as I have recently been told I have FFA. I'm scared as concerned and always looking for more information. Right now I am able to get away with not wearing a wig & am interested in experimenting. I live in the US & wondered where you got your wig...or If you tried hair pieces to the from only? Thanks ..

Comment by Debs on February 9, 2013 at 8:39am

Celia, hi there, I have been back at work after my 5 week break so I have not been online for a few days... I have now been in the wig at work for a week, I was at work this morning and it is unbelievable that I can stand right next to someone chatting away and they are asking me where I had my hair done!!!! PJ, I did not have any problems with my health at all in the run up to getting FFA, I did not have any stressful events either... when I noticed the initial recession on my temples I just thought it was the menopause starting and part of the ageing process. It is so good that there are now 38 of us to share info with. Good on Celia for starting this group up.

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