Vancouver Alopecia Areata Support Group

Information

Vancouver Alopecia Areata Support Group

Hello Vancouverites! Connecting is one of the best ways to feel happier and become more informed! Come as you are, whether you are shy or outgoing. This is a genuine and fun group where all of us - new to alopecia or experienced, hair-wearer or au natural, seeking treatment or not - all come together and be supportive, informative, and positive for one another. After 4+ years of running this group, I can say for sure that you'll feel better after a meetup! :)

Come to our monthly meetups, or, start by joining this group and be in the loop of upcoming meetups! Sometimes I include alopecia news / remedy / stories too.

If your kid / teen has alopecia, please contact us and we'll put you in touch with other parents! It'll be, I believe, quite awesome for your child :)

Location: Vancouver
Members: 91
Latest Activity: Jan 12

Upcoming Meetups

This group gets together monthly at one of the members' homes - a cozy, positive, and fun environment, for those with alopecia. We are here to support one another, and every meetup has been amazingly mood-lifting.

Join us here and we'll send next meeting details to you in a group email!

You can always get a hold of us via AW messaging or at alopecia.vancouver[at]gmail.com

We are affiliated with CANAAF (Canadian Alopecia Areata Foundation).

Next meet up: We meet about once a month. Please email Tanya at the emil address above!

Comment Wall

Comment

You need to be a member of Vancouver Alopecia Areata Support Group to add comments!

Comment by Deeann on August 25, 2017 at 2:18am

I have a couple questions about Canadian healthcare if some of you can answer. You do or don't get funding for a wig? How long does it typically take to get an appointment with a dermatologist? Has any GPs every suggested seeing other types of doctors, i.e. - Rheumatologists or Endocrinologists? 

Comment by Deeann on August 25, 2017 at 2:16am

Comment by Deeann on August 25, 2017 at 2:15am

Kristina - so good to hear from you. We are definitely kind souls who understand. Tanya has asked about September 17th as a day to meet in a few weeks. Let us know
If that will work. Depending on where you live, someone may be able to meet with you one on one too.

Comment by lea on August 24, 2017 at 3:43pm

PS Kristina hi I think there is a meet next month, maybe pm Tanya about. I hear you how can feel bad about losing hair at the beginning was very scarrey and depressing for me. The groups helped me a lot! Hope to see at next meet and if ever have any questions, need support, vent etc msg me.

Comment by lea on August 24, 2017 at 3:38pm

Just wanted to say thank you all in this group, is very special to me! And have been thinking about how we thought of next saying what we like about this condition and a big part is meeting all the great people I don't I would have otherwise and realize power of support of others and meeting. I'm shy and used to be alot more, but think alocepia made me get out of my shell so to speak to meet others! Another bonus I don't think I'll ever have to color gray hair! ;-) =) Thanks all

Comment by babyk23 on August 15, 2017 at 7:13am
Hello everybody!
My names kristina and I'm 20 years old. I've just recently been diagnosed with alopecia areata. I'm so happy I found this support group in my city and I'd like to come to one of the meetups! I've already sent an email to the above address. Looking for kind people to talk to about my hair loss and how to cope. Sometimes I feel terrible because I'm so young and losing my hair, but it's something out of my control and there's nothing I can do besides different treatments. My hair loss went unnoticed, I'd often dye my hair, almost every month, I only noticed more hair coming out in my brush but I thought nothing of it. I've always shed a lot of hair because I had thick hair, so I thought nothing of it. Then one day at dinner, my boyfriend found a bald spot! Then 3 more when we sifted through. As of today, they are growing (I think) and another one has appeared. I'm just looking to interact with some kind souls who are expieriencing the same thing as myself. I'd feel much better coming to a meetup.
Comment by Tanya on August 4, 2017 at 3:31am

Hi Hayley!

Welcome to the group! We have a meetup coming up on August 19th, Saturday. Email me for details! alopecia.vancouver at gmail.com

My alopecia progressed from AA to AT/AU over the years too. I struggled with it for many years, until I decided to "have fun with it" (with the help of this group :)) We may have different or similar perspectives, stories, and journey, but we inspire each other, that's for sure!

xoxo
Tanya
 

Comment by HayleyL on August 3, 2017 at 10:56pm
Hello all!
I was diagnosed (officially) at 17 was AA and for the past 11 years when my life gets out of control I go into an active falling out stage which has always been able to be reversed by Kenalog Injections. A lot of things have been bad in my life lately and I had a large spot form .. 2 months later and I'm sitting in my derms office and I got the news that I've progressed to Alopecia Totalis.. my hair is coming out in chunks and I'm at about 60% hair loss on my head now.. I had some very dark days but I've come to terms that my head does not define who I am as a person and it sure doesn't make me any less of a woman. I'm looking forward to making new connections in this group because with losing all my hair I'm going to have a lot of questions with what is to come! :) Hayley
Comment by Tanya on July 24, 2017 at 2:18pm

Dear All, I just realized that Roxanne is (most likely) Roxie, whom I've spoken to on the phone. We talked about our alopecia experiences. Roxie, if it was you who posted about the shampoo, I'm sorry about deleting your post! We are extra sensitive to "products that cure alopecia" because we get spammed by hair-growing products all the time.

Please message me privately (you got my email girl!) or come to a meetup....we are receptive of products that help, just that it needs to come from someone we know and trust :)

Sorry again about jumping to conclusion! And thanks Deeanne for pointing this out to me! Haha. Good group balance! xoxo

Tanya

Comment by lea on July 24, 2017 at 1:13pm

yes, thanks Jeffrey

 

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