Seattle Area Alopecians

Information

Seattle Area Alopecians

A Group to get people with alopecia in the seattle,Wa area connected. So possible have get togthers? or Lunch?

Location: Seattle
Members: 52
Latest Activity: May 31

Discussion Forum

Meeting end of 3/2020 or in 4/2020

Started by lea. Last reply by JeffreySF May 31. 5 Replies

Hello all, Wondering who would be up for meeting end of March - April? Also if possibly online through Skype or Zoom, as an online option with people living all over too. ThanksContinue

Get together

Started by lea. Last reply by Bon Feb 17. 9 Replies

Hi all, Like to meet if people are up for and wonder if later in March or in April work? Thanks so much

Tags: #Newfriends, #Meet, #Alocepia, #PNW, #Support

Podcast and a local meet

Started by lea Nov 18, 2019. 0 Replies

ed to share two things:1)  Deeann has a podcast ! It’s great to listen to, anytime and. Please check out and share: …Continue

Alopecia caused by Adderall XR?

Started by AAlife Mar 13, 2018. 0 Replies

Anyone out there taking Adderall XR and noticed hair thinning and loss?Continue

Comment Wall

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Comment by lea on February 22, 2020 at 3:30pm

Dear Bon, 

I am sorry for typo with my first message to you and how may have missed some of mine/delay. I have messaged you my number and been seeing if there are any scheduled upcoming WA meets without luck yet. Please call or text me. As I am not always on this site and connecting directly may be clearer and quicker.

 

I get driving not far and traffic in the area can be awful. I take public transport and Lyft etc can be more stress-free. And nice thing Sounder runs out of Everett south and area is getting better with alternatives. I have found the train, etc. to be relaxing if have time to take it.

I will be caregiving next month on weekend in Snohmish and could meet for a bit. Right now have to say tentative; as I been having some health flares and feeling over stretched.

Lastly, I will try see about if others are able /want to meet.

Comment by Bon on February 17, 2020 at 9:04pm

I would attend for sure.  I live in Everett and don't like driving long distances but I have just been diagnosed with Lichen Planopaliris. I have tried repeatedly to get a response from someone but perhaps since I'm new to this site it's me.  I am moving into acceptance through prayer, meditation, support from friends and being open about it and not always hiding it. PLEASE, someone respond to this. I'd really appreciate it.  Bon

Comment by lea on February 12, 2020 at 1:27am

PSS Bon and all who are interested :

  1. NAAF has meets and local leaders for support and lists of people in WA. NAAF.org June S. rjsecreto@comcast.net
  2. also checkout AlopeciaSupportGroup.org for upcoming meets /events.
  3. If I hear of any will share too.
Comment by lea on February 12, 2020 at 12:19am

PS please excuse typos talking to my phone, no excuse after long on the way home. Thanks 

Comment by lea on February 12, 2020 at 12:18am

Hi Bob,

Thank you ! I’m sorry about diagnosis I don’t know that one and shall research. I haven’t had an official term for what I have, since I got disillusioned with the dermatologist - it was super expensive and they didn’t really know anything about alopecia, that I didn’t and no “bed aide manner”. This was after a long line of specialist, that were similar  too...Lastly, I get how having a diagnosis/knowing something is relieving.

Alopecia areata except I can I have the opposite over. And haven’t condition term for it. lol So glad you use condition too, (Dislike the term disease with alopecia..) I concur that counting blessings, working on health and getting support and opening up can be helpful, as well as acceptance. Secondly, I do know personally can be challenging and empowering to meet others.

I live more south sound, may I ask if  would you be open to going more south? However sometimes am north, there are others and be happy to meet. Also even more north know someone.

Thirdly, feel free to reach out to me via private message if you want and anytime.Thanks and wish you a great week too. hugs!

Comment by Bon on February 9, 2020 at 1:52pm

P.S. I don't have Facebook.

Comment by Bon on February 9, 2020 at 1:51pm

Hi Lea,

I am learning my way on this website trying to connect with your group. I live in Everett.  Last week I was diagnosed with Lichen Planopiliris.  A rare form of scarring hairless/alopecia. The photo was taken in 2017 I don't have a more recent one but will upload one ASAP.  I would very much appreciate a meet up of some kind so I can connect and learn how best not cope but accept and live with this condition.  Currently, I am opening up to my friends.  I am blessed in many ways.  Super healthy, lots of close friends, belong to AA and have an excellent Naturopath who has put me on NDL and a topical steroid, the latter for two weeks to calm the inflammation.  At least I know what's going on and can stop the testing and doc appointments.  Please let me hear from you? Thanks and create a great day for yourself and those around you, Lea.

Comment by lea on January 7, 2020 at 1:03pm

Happy 2020 and hi all ~

Wanted to share some happenings and groups:

1) From the ASG they will be live streaming via Facebook, a documentary. Please share (i have cameo in it too)

JAN11
Sat 12:00 PM PST · 

B) They have in person meet;

FEB1

https://www.facebook.com/pg/alopeciasupportgroup/events/?ref=page_i...

2) NAAF created a closed facebook group for people in the NW to connect and asked all to drop line where they live. If like to help others connect with those that are close to etc. .  https://www.facebook.com/groups/northwestwaalopecians/?ref=share  

Please check out and share !

And I will share more connections with Alopecians etc in the near future.. 

Wishing all healthy happy new year,

Lea

#ALOPECIASUPPORT #ALOPECIASUPPORTGROUP 

Comment by lea on May 15, 2019 at 11:51pm

Yes, Deeann thanks. Maybe if people are interested in meeting up drop a line here.

Comment by Deeann on May 14, 2019 at 12:10am

Thank you for posting Lea. Looking forward to seeing you at NAAF, and to meeting others in this group. 

 

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