Ophiasis Pattern Alopecia Group


Ophiasis Pattern Alopecia Group

Members: 60
Latest Activity: Feb 18, 2019

Discussion Forum

I'm cold

Started by Sunflower25. Last reply by Sassydiana Jul 6, 2015. 7 Replies

My hair loss seems to be fully in this pattern now - gone above both ears and down around the bottom of my hair line.  I'm missing about 2.5 inches from the bottom up.  I wanted to ask, does anyone…Continue

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Comment by RossG on March 13, 2017 at 3:10pm
First of all, i hear you on the "discouraged." As much as we want and need to stay positive, sometimes the freakin mirror or some bad communication can wreck us! We have to constantly remind ourselves we are not our hair (or lack thereof). Our character and personality are not made of hair. Any other person who doesnt see this is not very wise. Unfortunately, most kids your age arent exactly brimming with wisdom, are they? I guess this is why you want a solution asap. I totally wish i could report that my daily visualization and meditation have restored mine--but the best i can say is that the bald spots above my ophiasis line have mostly filled in. However, below the line is still shiny and bald. What i'm TRYING to do is to focus on the positive (the spots filling in) and not dwell on the bad part (no regrowth in bottom half of head). So try to stay locked in on how the loss seems to be slowing down bc that is relatively awesome! Accupuncture, huh? I have been wanting to try that and you have officially inspired me to go for it! Anything specific i should know for when i set it up?
Comment by Ragan Toppan on March 13, 2017 at 11:44am
I have had Alopecia Ophiasis now for about a year and it has really gone down hill. I have had little to no regrowth and I keep hearing that I will go completely bald. I'm so discouraged. I'm 15 and at the height of my insecurities. I'm currently using 3 methods of treatment with only more hairloss. I would recommend ACCUPUNCTURE to anyone who is also struggling because I have noticed that it is reducing the hairloss. I'm also on a topical application and a pill. The wind is my enemy and I'm scared to take my hat off. Any suggestions or anything that would help? I NEED ADVICE PLEASE HELP
Comment by RossG on February 26, 2017 at 9:50pm
Thanks bananarama! I needed to know it's possible. I'm gonna make an effort at this visualiztion stuff but for it to work apparently i must truly believe. So if i dont have all my hair back by say, tomorrow morning, then i'll assume it's bullshit. Hehe jk I guess i better give it more time than that. Thx again for real.
Comment by Lexi on February 26, 2017 at 9:14pm

Bananarama, your TODAY picture looks much improved.  Congrats on that.  Almost normal by far.  Wish I could say the same, but sadly not.  

Comment by Bananarama on February 26, 2017 at 8:28pm

By the way, today's pic is not how I wear my hair normally. I sloppilly put it up in an attempt to deliberately show all the bald patches! 

Comment by Bananarama on February 26, 2017 at 8:26pm

Hey Ross, if it helps, I've found my alopecia has gotten significantly better. It's never gone away fully, but I used to not be able to hide it very well and now I don't even think about it. So you can see, here's some links to pics. June 2013 Today (Feb 2017). I was getting steroid shots for a couple months in 2013 and I was getting brutally sick because of it, so I stopped doing that. Now I just focus on eating right, taking my vitamins, and keeping my scalp healthy. Good luck! 

Comment by RossG on February 26, 2017 at 2:17pm
Hello fellow ophies! Hope no one is offended, but i'm trying to keep a sense of humor through this. I'm still in my introduction to the world of alopecia, something I didn't even know existed until last October when the hair above my ears and back of my head began falling out. A couple of the higher up bald patches have since filled in while one patch in the back top of my head stubbornly persists. The rest of the lower part of my head remains smoothly bald with no peach fuzz. I recently read all about the anagen and telogen phases and was hopeful that my hair may return when a new anagen phase begin, which for me could be in the next few weeks. However, I have also read a few places online where Ophiasis "prognosis is poor." So, in about one hour of reading I went from feeling very optimistic to being extremely depressed. Then I found this site, and it has lifted my spirits. For many years I have been in the habit of eating very healthy, and I am fortunate to have enough spare time to spend exercising quite a bit. I mention this only to say I am not convinced a change in diet or supplements would do much for me. Currently, I do still hold out hope that I can get these hair follicles working again through positive thinking and visualization. Specifically, Jose Silva's mind control method and general meditation are two things i hope may help. Have any of you had any luck with your Ophiasis reversing, or do you know anyone who has ever had a severe Ophiasis pattern become full of hair again for any lasting time? Finally, is hair transplant by using someone else's hair even a realistic option for us? Thank you for any help you can give me. I feel the love from you guys already. :)
Comment by Dolly on April 5, 2016 at 2:36am

Low Dose Naltrexone

Comment by Lexi on April 4, 2016 at 6:44pm

what is it????

Comment by Dolly on April 4, 2016 at 7:01am

Anyone tried LDN? I read good things about it.


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