Newly Diagnosed with Alopecia

Information

Newly Diagnosed with Alopecia

This group is for people who are new to alopecia. It's a place to learn the essentials of coping and how to continue living life to the fullest despite the condition. More experienced alopecians are also invited to offer support and guidance.

Members: 545
Latest Activity: Feb 9, 2020

Tips for Coping with Alopecia from Day One

1. Love yourself unconditionally, with or without hair.

2. Consult a physician when you think your hair loss has become excessive or abnormal.

3. Get a second or third opinion if you need confirmation of a physician’s diagnosis.

4. Educate yourself about alopecia (hair loss), its many possible causes, traditional and alternative treatments, treatment costs, possible side-effects, and other options (e.g., wigs, scarves, etc.).

5. Remember that bald is beautiful, too.

6. Seek the advice of your physician and people who love and care about you before making decisions about treatments or lifestyle changes.

7. Join an alopecia support group to receive insight and inspiration from others who are living with hair loss.

8. Give others who may also be concerned (e.g., your employer, school, or church) appropriate information about your condition.

9. Maintain your emotional well-being by learning positive strategies for coping with depression, rejection, ridicule, stress, anxiety, and other negative feelings and experiences. Also develop conflict management skills, and other strong interpersonal skills, which you can use when dealing with people who choose to remain ignorant or insensitive. In other words, see a professional counselor, if you must.

10. Live life to the fullest, which includes allowing yourself to truly love and be loved and taking full advantage of the new opportunities alopecia opens to you.

Cheryl Carvery and richard jones (rj) encourage you to share these 10 helpful suggestions with others who are dealing with alopecia.

Discussion Forum

Scaring Alopecia

Started by Peace Apr 20, 2017. 0 Replies

Newly balding

Started by Momuv2. Last reply by Momuv2 Aug 23, 2015. 2 Replies

just diagnosed and scared...

Started by Catia. Last reply by Aly Dec 18, 2014. 5 Replies

How do I do this?

Started by MelodyAutumn. Last reply by PamFitros@boldlybaldwomen.com Nov 18, 2014. 6 Replies

Development of AA

Started by Cam. Last reply by PamFitros@boldlybaldwomen.com Nov 10, 2014. 1 Reply

New to this...

Started by ladyeury. Last reply by wtfsamikinz Nov 8, 2014. 2 Replies

Just diagnosed

Started by Kteacher. Last reply by alopeciamommy Nov 1, 2014. 9 Replies

Children with alopecia in New Zealand

Started by MummyWendy. Last reply by alopeciamommy Nov 1, 2014. 1 Reply

Getting Past the Pain - Three Things You Need to Know

Started by PamFitros@boldlybaldwomen.com Oct 13, 2014. 0 Replies

Sad

Started by bobbi. Last reply by BarbaraK Oct 5, 2014. 8 Replies

B-12 shots

Started by Michelle Jun 27, 2014. 0 Replies

Just realized it's probably not coming back...

Started by SBXBlackJade. Last reply by Angie Jun 16, 2014. 1 Reply

Question About AA and Eyelashes

Started by Michelle. Last reply by Kathryn Jun 11, 2013. 6 Replies

It's been a (long) Year

Started by Marissa. Last reply by Fay May 28, 2013. 5 Replies

New to this World

Started by Jackie E.. Last reply by Catia May 28, 2013. 9 Replies

Trying to learn how to move forward

Started by Lindsay Rossi. Last reply by Lindsay Rossi Apr 12, 2013. 3 Replies

Unpigmented regrowth?

Started by Jaclyn. Last reply by Annette Mar 30, 2013. 9 Replies

Comment Wall

Comment

You need to be a member of Newly Diagnosed with Alopecia to add comments!

Comment by Liliana on July 3, 2008 at 11:11pm
Hi everyone! Like some of you here, I have been living with this condition for the past year, I am 34 years old, and I have never even heard about this condition until it happened to me, and it has been a real ride, still adjusting to my now 'new' life, having one constant worry, having a strong impact on my selfsteem, wondering whether I will ever get my hair back, having days when I am hopeful and others when I am not.. I have some regrowth in some of the patches, but I notice my hair thining out through out, so I wonder where I would be 5 months from now, I just feel like it's taking all of my energy.. :(

I can relate with Sandra, having difficulty sharing this even with family members, I too have told my Mom a friend and my husband naturally since day one, but I have a hard time opening up and having to deal with people feeling sympathy or feeling sorry for me.
Anyway, I am new to this site, and it will take me a few days to get familiar and get to know some of you, but I thank you gratelly for your welcoming support!
Comment by Michelle on July 3, 2008 at 10:00am
Hi everyone! I've had AA since '97, turned into AT, and now back to AA.....I HATE this condition...but I'm here and open to talk to anyone that may need a little "pep" from day to day! shellbell6208@yahoo.com
Comment by betsy slagle on July 3, 2008 at 9:44am
Hi All - I've been AU since 2000 and prior to that in'97 I did every tx. known to medicine and actually had a regrowth for 2 yrs.; but then my hair completely fell out and that was it for me - I embraced these "tips" and decided to wear a wig or not - wear a hat or not - and now I carry pamplets in my car and whenever someone thinks I have cancer I give them a pamplet on Alopecia Areata !! Acceptance is the key, but it sure takes awhile and knowing we're not alone really helps. hugs to all and by the way I'm a pretty single woman age 62 in good health with two grown daughters. I live in Baltimore, Maryland. Betsy
Comment by RENEE on July 3, 2008 at 9:32am
I have been living with alopecia for roughly 30 years. I am available to anyone who might just need someone to vent to during this hard time of adjustment.
Comment by Steve on July 3, 2008 at 8:07am
I've been AU since age 3. Growing up with AU was hard, sometimes, but there were times when peoples' attitudes kind of hit me right between the eyes. One time, at around the age of 15, I was in a department store pet shop looking at turtles (this was when you could actually purchase red-eared sliders) and two elderly gentlmen approached me and said, "How do you get your scalp to be so shiny?" At first, I was offended until I realized they were dead serious. They really wanted to know! So I said, "Hot water, soap and a wash cloth." They thought I was being flip with them! "No," one of them said, "What kind of wax do you use? It looks great on you and we want to know what kind of wax you use." I looked him right in the eye. "I didn't even know there was a wax I could use. Really, I just scrub it every day in a shower, towel it off and that's it." They were insulted! And they sulked away muttering about "disrespectful punk kids!" I watched them go and wondered what I did wrong.

Point: You can let other peoples' opinions get you down, but you need to know that is your choice. You have to choose to let ignorant, inconsiderate boneheads define who you are. Don't fall into this all-to-easy trap. You didn't choose to be an alopecian, none of us have, but you CAN choose to not let what other people think define who you can be.
Comment by LeslieAnn Butler on July 2, 2008 at 10:26pm
Hi Everyone,
I have had alopecia for over 30 years and I am here for support. Let me know if you need to talk! I also have written a book for women with alopecia called "If Your Hair Falls Out, Keep Dancing!" Find out more on my page.
LeslieAnn
 

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