Moms with daughters who have Alopecia

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Moms with daughters who have Alopecia

This group is meant to bring moms together who have daughters with alopecia.  We can share ideas and insight.   My little one is seven and she has the best attitude.  All she cares about is laughing and playing and do cartwheels.  Her name is Lilly.  She is my inspiration to finding peace while continute to search for ideas.

Members: 10
Latest Activity: Jun 19

Discussion Forum

My daughter just diagnosed at 9 months?!?

Started by Monica2016. Last reply by pterese Jan 11, 2016. 1 Reply

Hello my name is Monica and my daughter was just diagnosed with alopecia areata from like a 1 min apt with a dermatologist! I just cant get over how this Doctor didn't even get closer than an arms…Continue

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Comment by Julie on February 7, 2019 at 6:16pm

Hi,

Can you please tell me how your treatment has gone for your daughter since using LDN? My 11 year old lost 90 % of her hair this past December due to Alopecia.  A friend of mine told me about LDN and I am currently reading the book "The Power of Honest Medicine".  its all about LDN.  I am super curious.  I hope to heat back from you!

Comment by pterese on May 18, 2016 at 12:59am

Comment by pterese on May 18, 2016 at 12:58am

Hello,

My daughter has been using LDN for 14 weeks and has an entire head of baby blonde regrowth!  Please join the group LDN Users for more information.  We are very pleased with her results.  LDN is working!

Comment by pterese on January 16, 2016 at 10:41pm

And another link on LDN. This is a youtube video and the information sounds hopeful. https://www.youtube.com/watch?v=l8sWzoLtop4"

Comment by pterese on January 16, 2016 at 7:58pm

Here is another important

http://www.ldnresearchtrust.org/

Comment by pterese on January 16, 2016 at 7:44pm

Here is a link on Low Dose Naltrexone

http://www.ldninfo.org/

Comment by pterese on January 16, 2016 at 7:21pm

I have been researching for two days straight.  Not so new for me, but I feel I have found something significant.  There is a drug called LDN, or low dose Naltrexone that seems to have much success in growing back hair due to Alopecia.  The best news is, minimal side effects!  I refuse to put my daughter on Methotrexate.  This drug however seems like a very promising option in autoimmune disorders, as is does NOT suppress the immune system. Apparently many doctors do not include it in treatment options.  I am going to see how I obtain more info.  Nautropaths so use it sometimes, according to my research.  You can find lots of info on google.  I am actually in a good mood today.  I think I have found something that holds a bit of promise.  When I go the the dr. on Monday, I am going to inquire.

Comment by pterese on January 15, 2016 at 1:53pm
I am grateful to have this group. I propose we continue to share ideas and insight. I have not gone a day without tears, worried for my daughter. Now that the c reactive protein test confirmed she is inflamed I a determined to uncover why. Food allergy blood test results next week. I took her off dairy and gluten months ago. All organic now. It has been two and one half months and hair still rapidly falling. She wears a wig to school now. It breaks my heart. I will continue to share any discoveries. I believe there are many triggers and some biggies are candida, food sensitivity, metals in blood, thyroid, fungal infections, stress. It takes time to uncover the triggers.
Comment by Magdalene on January 15, 2016 at 11:18am

Hi there. I just say hi and that is it today... I just cannot talk about it like that. takes time. but nice to know there is someone out there. I'll be back. Take care. M.

Comment by pterese on January 15, 2016 at 9:31am
Thank you for your answer. I so feel the same way. I have shared with my family that I am mourning my daughters hair. It is very emotional. I am determined to get it back and I believe it can be done.
 

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