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Alopecia Totalis

Join today to meet, support and share information and resources with others who are also living with the complete loss of scalp hair.

Website: http://www.AlopeciaWorld.NET
Members: 181
Latest Activity: Jan 10

Discussion Forum

Medication

Started by Solita. Last reply by Solita Jan 10. 7 Replies

im having such a hard time coping...

Started by Maria Reeve. Last reply by Paige A Schuck Sep 21, 2010. 9 Replies

hot weather

Started by Alexis. Last reply by Mary Hynes Jul 28, 2010. 8 Replies

Comment Wall

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Comment by Leah Larson on July 7, 2010 at 9:49am
I have been wearing my vacuum for 3 months now and absolutely love it! I get so many compliments and feel more confident and secure. I will never go back to wearing a wig!
Comment by Nicole Ezard on July 6, 2010 at 10:22pm
I have alopecia since I was four, I have had AA, and AT , and univeralis, I am now 31, and just shaved what hair I had left on my head, as it will soon be all gone, it is such a hard process, to go back to no hair, as it has been twenty years since I have been like this, I have gotten by with a postice to cover the patches, and is in the process of shopping for a new wig. What is this vacum wig ? Where would I get one? Toronto Ontario
Comment by Kerryluvshair on April 9, 2010 at 1:01am
Is anyone here from Southern California?
Comment by Kerryluvshair on April 9, 2010 at 1:01am
I have had no hair half my life. I would do anything to see hair grow back on my head.
Comment by Hilary on March 17, 2010 at 2:41am
hey i am a 17 year old girl and have no hair on my head either. I dont wear wigs because i love to stand out in the crowd and be me! I thought having alopecia was so hard until my dad died. Trust me alopecia isn't the worst thing ever. Love it.
Comment by khalid khalil on March 9, 2010 at 3:58pm
dude atleast we went all the way thru with it llol we got a lil bald and said screw it allor none
Comment by emad monther alsa'adi on February 15, 2010 at 3:37pm
hi every one
Comment by Leanne Sam on February 4, 2010 at 4:16pm
I was reading this blog a bit and noticed a lot of pain people have been experiencing.
To all of you just remember your still you and that it is only hair, people with hair will still faults with themselves. Nobody in this world is perfect and every one as things they don't like about themselves. You need to move past this and focus on your the important things in life, at least your alive for one. I have a rare disease that causes many problems, my is covered in warty things, red blotches, I have never had eyelashes or eyebrows, I did have hair until I was 19. I lost mine to chemo andd it never returned. I have also had my left leg amputated in 2004, and have had a broken arm for the past 2 years that will not heal. My hair is the least of my worries! In all reality people love you for who you are on the inside and what they see, focus on your good points and just accept the way things are, you can't change it so you may as well move on and be the best you can be! This site is a wealth of infomation and support and that is great, but please remember if you need to bitch, bitch, every one needs to do this, it is part of the healing! Just my opinion, and it is hard to see someone suffer over something they are not to blame themselves for. It is in your DNA, and this path was choosen for you long before you left the womb. Cheer Up and get out and enjoy life! Cheers!
Comment by Margo on January 31, 2010 at 2:30pm
Hello all my fellow Alopecians!
I have had AT for going on 2 yrs now and still struggle with accepting my appearance...some days more than others. I periodically visit this site but haven't been very active in it and my counselor thinks I should be for support. I know we all need eachother being that we all share this condition and I want to thank all of you out there that have been so positive and supportive to others! Anyway, I lost all of my hair, then eyebrow,eyelashes and everything else shortly after my divorce. Since then I've pretty much isolated myself outside of work. Everyone at work knows because I started wearing scarves. I work in a cleanroom environment so it doesn't really work to wear a wig anyway. I got two wigs shortly after my hair loss and was never comfortable in them especially after some not so positive feedback from family and friends so I pretty much just wear hats. I was wondering about anyone's experience with those vacuum wigs, are they better? Another question I have is, does anyone else have any experience with how to go about dating with AT? I'm 47yrs old, and haven't seen anyone at all since my divorce 2yrs ago. It's lonely and sometimes I don't feel like anyone out there will be attracted to me much less want a relationship!? I don't want to grow old alone!
I'm sorry I don't mean to be throwing myself a pity party, it's just one of those downer days I guess. I think we may all have those now and again. Some people out there have it a lot worse off than us! Anyway, thanks for listening and my love goes out to all of my fellow bald friends!! Margo
Comment by Flin on January 29, 2010 at 4:00pm
Hello guys...
I have AT for about one year now and I am still trying to copy with it. Actually I have to admit that things are going better lately, I am gaining my self-confidence again although I have my downs. I recently finished my studies and am now looking for a job. I got an interview invitation for a job which would be great for me, but I am worried about getting the job because of my baldness. I decided to go with a wig because I think that maybe the employer will choose the one who doesn't look "sick" and therefore I don't want to have this disadvantage. I did not wear until now a wig, but now I would like to get one. Does anybody know where I can get one of these vacuum wigs in Germany, because I tried once the conventional ones but they really are not convenient. I would like to have a wig which gives me freedom, I may need to wear a mask or a protection hat because I am a chemist and may work in the lab. I live in Germany and going through web pages here I could unfortunately not find someone selling these wigs here in Germany. Does anybody know who I can contact or to whom I can refer to in order to get one of these vacuum wigs which really look like true hair and which you also can style i.e. make a ponytale. I would appreciate any advice so much.

I wish to everybody strength, it is a difficult situation but we have to keep on walking. Life is too valuable, we should really try to do our best, try to be strong and go out there and show them that we ARE here too.
My best wishes to everyone.
Flin
 

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