I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.

I thought it would be nice for everyone if I documented my progress on here. 

Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.

The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results. 

I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.

 

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I finally heard from Mouree today. She said that EMS will begin shipping on July 15, and I will get my meds soon. Of course, she thought they would start shipping in May and then June. I just hope this newest email is correct.

Will I get an email before Beacon ships my meds, or will they just show up?

Canadians who buy from Beacon: (asking for a friend)

1. Do you need a prescription to order tofacinix?

2. What is the protocol for getting the shipment through Canadian customs?

Appreciate any help you can give - thank you so much!

How do you live with universal alopecia? I am always rejected by women and they all tell me except me ... it is really heavy to live with this cross .. what are you doing .. it is honestly how long it will take xelianz or tonifanix to give me back life ... in your opinion I leave on August 1st. a word of comfort only you can understand me

How do you live with universal alopecia?
I am always rejected by women and they all tell me except me ...
it is really heavy to live with this cross .. what are you doing ..
it is honestly how long it will take xelianz or tonifanix to give me back life ... in your opinion I leave on August 1st. a word of comfort only you can understand me

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