Discussion for frontal fibrosing alopecia? Anyone?

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Shell- this site has been very helpful to me as well.   

The format of this site is not the MOST user friendly but I’m getting better at it.  Go to the top of the home page and click on Groups.  There is a specific group just for FFA and all discussions in that group are specifically FFA sufferers.  

There are LOTS of helpful discussions.   

I have FFA.  Diagnosed 7 plus years ago....starting to lose more...so bizarre...seeking solutions other than hats and headbands and considering just ditching my beautiful bio hair, full and curly but fading in bang area fast...don’t want bonded system, don’t like taping hair onto my forehead and hoping it stays...maybe shaving and getting a gorgeous lotus full head henna crown!

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