Using Enbrel, Humira, and other immunosuppressants - Alopecia World2024-03-28T11:39:51Zhttps://alopeciaworld.com/forum/topics/using-enbrel-humira-and-other?commentId=2022678%3AComment%3A1245004&x=1&feed=yes&xn_auth=noI'm aware of the research goi…tag:alopeciaworld.com,2015-02-26:2022678:Comment:12450042015-02-26T22:26:11.580Zkastababyhttps://alopeciaworld.com/profile/YoKasta
<p>I'm aware of the research going on currently; apparently my forum post was very prescient (note that I asked this question in 2009, a full year *BEFORE* Dr. Christiano disclosed her reserarch findings - and I knew that the treatments fit the AA mouse model 10 years *BEFORE* anyone bothered to start investigating it (having access to the medical library at Vanderbilt University and their research labs, I was able to read unedited journal submissions with all the raw data included - lucky…</p>
<p>I'm aware of the research going on currently; apparently my forum post was very prescient (note that I asked this question in 2009, a full year *BEFORE* Dr. Christiano disclosed her reserarch findings - and I knew that the treatments fit the AA mouse model 10 years *BEFORE* anyone bothered to start investigating it (having access to the medical library at Vanderbilt University and their research labs, I was able to read unedited journal submissions with all the raw data included - lucky me!)</p>
<p></p> Lucia - Did your hair come ba…tag:alopeciaworld.com,2015-02-19:2022678:Comment:12438582015-02-19T22:04:42.437Zj.g.andersonhttps://alopeciaworld.com/profile/jganderson
<p><span>Lucia - <span>Did your hair come back? This happened to me after less than 6 months on Humira. </span></span></p>
<p><span>Lucia - <span>Did your hair come back? This happened to me after less than 6 months on Humira. </span></span></p> Ann- Did your hair come back…tag:alopeciaworld.com,2015-02-19:2022678:Comment:12437012015-02-19T22:03:59.189Zj.g.andersonhttps://alopeciaworld.com/profile/jganderson
<p>Ann- Did your hair come back? This happened to me after less than 6 months on Humira. </p>
<p>Ann- Did your hair come back? This happened to me after less than 6 months on Humira. </p> There is research now looking…tag:alopeciaworld.com,2011-02-06:2022678:Comment:5524792011-02-06T01:38:12.778ZPhyllis Tankelhttps://alopeciaworld.com/profile/PhyllisTankel
There is research now looking at drugs that are used for rheumatoid arthritis, celiac's disease, diabetes, etc. to see if they will work in alopecia to grow hair. These diseases seem to have a lot in common. The research is being done at Columbia University and some of the drugs they are using are Orencia as well as methotrexate, etc. It looks promising but these trials have a long way to go. I agree it does seem to make some sense.
There is research now looking at drugs that are used for rheumatoid arthritis, celiac's disease, diabetes, etc. to see if they will work in alopecia to grow hair. These diseases seem to have a lot in common. The research is being done at Columbia University and some of the drugs they are using are Orencia as well as methotrexate, etc. It looks promising but these trials have a long way to go. I agree it does seem to make some sense. how long did your daughter in…tag:alopeciaworld.com,2011-02-06:2022678:Comment:5523862011-02-06T01:34:02.539ZPhyllis Tankelhttps://alopeciaworld.com/profile/PhyllisTankel
how long did your daughter in law have alopecia before she went on the sulfasalazine?
how long did your daughter in law have alopecia before she went on the sulfasalazine? Enbrel is extremely expensive…tag:alopeciaworld.com,2011-02-05:2022678:Comment:5519262011-02-05T14:03:35.854ZKaren Smithhttps://alopeciaworld.com/profile/KarenSmith
Enbrel is extremely expensive and my daughter-in-law had to fail other drugs for her RA before they would give her this drug. My daughter has used sulfasalazine and is having regrowth. She had to stop it at thanksgiving due to a rash and is still growing hair.
Enbrel is extremely expensive and my daughter-in-law had to fail other drugs for her RA before they would give her this drug. My daughter has used sulfasalazine and is having regrowth. She had to stop it at thanksgiving due to a rash and is still growing hair. Doctor is thinking about putt…tag:alopeciaworld.com,2011-02-04:2022678:Comment:5513262011-02-04T17:51:36.285ZCarmen Willeyhttps://alopeciaworld.com/profile/CarmenWilley
Doctor is thinking about putting me on Soriatane for scarring alopecia (lichen kind). Has anybody heard of this or on it???
Doctor is thinking about putting me on Soriatane for scarring alopecia (lichen kind). Has anybody heard of this or on it??? My son has been on a large do…tag:alopeciaworld.com,2011-01-09:2022678:Comment:5318492011-01-09T03:56:28.544ZConnie - Chris' Momhttps://alopeciaworld.com/profile/ConnieJacobs
My son has been on a large dose of immunosuppressants (200mg Azathioprine) for a year and a half due to ulcerative colitis (which was discovered after he lost most of his hair). He was AU for almost a year and is now experiencing re-growth, although it keeps moving around. At first the sides started to come in, but nothing on top. Then the sides started falling out again and began growing on top. Through this he has mostly re-grown his eyebrows and eyelashes and even has splotchy hair on his…
My son has been on a large dose of immunosuppressants (200mg Azathioprine) for a year and a half due to ulcerative colitis (which was discovered after he lost most of his hair). He was AU for almost a year and is now experiencing re-growth, although it keeps moving around. At first the sides started to come in, but nothing on top. Then the sides started falling out again and began growing on top. Through this he has mostly re-grown his eyebrows and eyelashes and even has splotchy hair on his legs.<br />
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Because of a recent flare-up (and his inability to tolerate the other medications, and the doctors reluctance to have him on high doses of steroids again) he has now started Remicade infusions, a TNF treatment that requires a 2-3 hour IV infusion. We're watching to see if it has any effect on his hair, but it's definitely not something you would get an insurance company to pay for, for alopecia. We had to fight to get them to pay for his and the hospital told us it runs about $20,000 per infusion (he needs 8 this year). I also wouldn't risk the side effects to simply re-grow hair, one's health is much more important. There does however seem to be some interest in the world of research to see if there is an answer somewhere in the treatment of other autoimmune diseases, as I recently registered him in the Alopecia Areata Registry, giving his medical and family history, and we were immediately contacted to see if he was willing to take part in the Second Tier Registration where they take blood samples and have an in-depth form filled out by us and his dermatologist. We will, of course, be participating, as I can only pray that something good will come out of everything he's been going through. I did not have any side effec…tag:alopeciaworld.com,2010-12-31:2022678:Comment:5294922010-12-31T18:11:44.426ZAnn Geehttps://alopeciaworld.com/profile/AnnGee
I did not have any side effects from the sulfasalazine. I was taken off of it because it was not working for my RA anymore - but I think I will talk to my doctor about the possibility of taking it again for my AU. Not sure whether there might be an issue with the combination of Enbrel and the sulfasalazine. Happy to hear that her hair is coming in. Thank you for your input! Happy New Year!
I did not have any side effects from the sulfasalazine. I was taken off of it because it was not working for my RA anymore - but I think I will talk to my doctor about the possibility of taking it again for my AU. Not sure whether there might be an issue with the combination of Enbrel and the sulfasalazine. Happy to hear that her hair is coming in. Thank you for your input! Happy New Year! I am a nurse and did alot of…tag:alopeciaworld.com,2010-12-31:2022678:Comment:5294712010-12-31T16:28:25.170ZKaren Smithhttps://alopeciaworld.com/profile/KarenSmith
I am a nurse and did alot of research with risk versus benefits before making the decision to put my daughter on sulfasalazine. It seemed less risky than the methyl. and steroid combination that the dermatologist originally suggested. You have to be on 3gms a day for 4 months before you will see growth. You have to be followed with bloodwork but many people tolerate it quite well. She is experiencing hairgrowth. The problem we had is that she developed a rash over thanksgiving. Noone was sure…
I am a nurse and did alot of research with risk versus benefits before making the decision to put my daughter on sulfasalazine. It seemed less risky than the methyl. and steroid combination that the dermatologist originally suggested. You have to be on 3gms a day for 4 months before you will see growth. You have to be followed with bloodwork but many people tolerate it quite well. She is experiencing hairgrowth. The problem we had is that she developed a rash over thanksgiving. Noone was sure what caused it but we took her off of the drug to be safe. It was most likely a virus and not related. Her hair is still coming in and the derm that I just took her to said that it may have been enough to jump start the regrowth. She wears a wig and is happily going on with her life but would love to have her hair back if possible. I think accepting the condition does not mean giving up on finding a cure!! These autoimmune diseases cluster so we have to look for cures. She has since developed a vitamin b-12 deficiency which is autoimmune also.