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Permalink Reply by hagster on February 18, 2018 at 12:23am

No experience, but ... Derm has offered me lots of immunosuppressent drugs.  I have 3 different autoimmune diseases, so it doesn't make sense to me to suppress my system further and risk the side effects.  I have always declined.  

I don't even want to put my body thru squaric acid treatments.  Even the RA drugs like Humira don't work a lot of the time for what they're supposed to work on.  

Even Xeljanz topical is off the table (for me) as studies have not shown any promise for AU patients hair regrowth.  

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Permalink Reply by Djp on February 18, 2018 at 3:32pm

Thanks Hagster. Squaric acid was something that did actually work for me. 

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Permalink Reply by Carlie on February 18, 2018 at 1:02am

There are several discussions about it. Type it into the discussions and see what comes up. I asked my doctor about it but she didn't think it was a promising as xeljanz. I would try it if I couldn't get xeljanz, that or methotrexate.

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Permalink Reply by Djp on February 18, 2018 at 3:37pm

I cannot afford Zel and would not qualify for the hardship route. Am in spontaneous remission after losing everything within 8 weeks in fall of 2014. Started growing back in patches summer 2015. Wig free since October 2017. We will see what the cyclosporine does for lashes and brows as well as prevention. 

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Permalink Reply by AU2021 on February 18, 2018 at 10:29am

I tried it without success.

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Permalink Reply by Anna on February 18, 2018 at 3:42pm

I tried it for AU without any success. Methotrexate as well - nothing. The only side effect I experienced was extreme fatigue - which was quite overwhelming.

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