I was reading your response and got tears in my eyes. I am newly diagnosed (2 days ago) and have been struggling so much with this. I am trying to keep everything in perspective because I know it could always be worse. Your post touched me because I know there are other people out there who can understand what each of us is going through and we can find support in each other.
Try to keep in mind that there is a range of things that can be done, as the first answer said, the condition is different for everyone and just because it seems to be going fast now does not mean it will continue that way. Also, there are cases with one flareup, then regrowth and never another flair. One of my close friends had that happen. It has been year now and she never lost hair again. (She is over 70 now)
hello! im' sorry you're going through this. i would suggest getting a punch biopsy from your dermatologist, this will let you know for sure if you have it or not, then they can start trying to help you. your doctor can start giving you steroid injections (they do not always help,) you can also look into squaraic acid treatment. with this your dr will burn the inside of your arm with squaraic acid. then your body builds up antibodies to help fight that burn. you then get a lesser solution of the acid which you apply to your scalp areas. this does burn! a lot! but it does seem to slow down the hair loss, because your body will be focusing on fighting the burn rather than attacking your hair follicles. everyones AA is different, i dont know for sure, but your situation does sound like AA. my hair falls out in circular shapes anywhere from the size of a dime, to the size of my palm, and its random where its going to occur. luckily i do not have scarring alopecia, which makes it impossible for your hair to grow back because the follicles are destroyed, so my hair does come back. it will usually grow back after about 10 weeks after it falls out, then by then there is another group of bald spots. it totally sucks! i saw a specialist at UCI in southern california. she put me on xeljanz and after 3 months it is working! only problem is insurance does not approve it for AA yet... so my insurance has denied my coverage. this medicine is very expensive. 1200/month! i am going to appeal it, and also file for a hardship appeal with xelsource... i suggest you seeing your dermatologist, try and find one that specializes in hair loss. try and get on xeljanz (make sure you are healthy first!! it does have side affects.... although i have not had any, its a high risk medicatioin..) from there, try and get your insurance to cover it. appeal and appeal again, and ask your dr about the other options. i hope this helps. let me know if you have any questions! sorry this is happening to you, i know how hard it is =( good luck with this!! were getting closer to a real cure! stay strong!