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Rupunzel, Rupunzel let down your sweet hair.... (So she did, but it all fall off).
Gosh I don't even know where to start. Crying won't do anything so I may as well just start with the facts.
29, AA, currently experiencing my 3rd Aaa outbreak... My first was in 2009; patches in the back & sides. 2011 small patches in the front, 2014 shedding mostly from my fringe, crown @ receding from my temple area.
I've been emotional, but pragmatic.
I've created a spreadsheet of my bloodwork over the last 7 years. Interestly I can find correlation between incredibly low Vit D & B12 and my AA outbreaks.
That said, like many my AA seems to have no other visable triggers (eg: diet, emotional, medication, diet). Stress is part of my life (and my job) but again, there has been no correlation recently.
I'm not coping so well.
I'm doing the typical stuff...tears in the shower when my hair is all over the walls.
...I'm avoiding washing my hair purely because of the trauma of then having to "confront it". I'm so sick of my hair being...everywhere.
I'm taking vitamin; trying hair loss tonics, B12 injections, high dosage oral Vit D.
Booked in for cortisone treatment (injections) again; though this was only effective during my first bout, when I was living in the USA. It appears in Australia the FBA don't allow such high/strong cortisone doses.
I'm trying to change my diet; I'm vegetarian (Always have been. Typically healthy diet). But I've read about gluten & diary effects of hairloss.
Oh & I'm changing my oral contraceptive as i e read research that suggests Levongestual has common side effects of hair loss.
So. That's a tiny part of me.
I'm fluctuating between sinking & drowning. In reality, as logical as I am. As pragmatic as I'm being... I'm not the first to be on this journey. I'm not unique in my experience. But my hair keeps alling out; and being anything but vain seems too much to ask at the moment.
Replies to This Discussion
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Permalink Reply by Lyndsey Pitchford on
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I am sorry you are going through this difficult time right now. I also have AA that reoccurs time and time again. I am currently on my 4th bout f sever hairloss.
Unfortunately there does not often seem to be a pattern and I certainly cannot really sport one with my hairloss and regrowth. Though it might be worth talking to a doctor about what you have noticed with your blood work. I cannot myself say if it means anything and that there is something that could help stop the fallout out as I'm not an expert but what I can tell you is that you are not alone and you can find some wonderful support in this community. It might be worth searching through the forums to see what diets etc have helped others but I must warn you that for many people treatments and special diets do not work. I don't say this to be mean just so that you don't get your hopes up too much as I know that that is the difficult thing with AA like how we have it, your hairloss stops and your hair grows and you get your hopes up and then it all happens again. But I do think you should do some research and give things a try as you will always be wondering what if or not.
Good luck with everything! xxx
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Permalink Reply by Rose Marie' on
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Hi
Lets face it Alopecia 'Sucks'...but you don't. Because you are a pragamatic person I would definately try to be proactive around what you want to do. At this time there is no known effective cure. Yes, Cortisone/Prednisone does work, but you can't stay on those drugs long term, so unless you are in a natural remission your hair will fall out again once you stop taking those medications.
Vanity isn't really at play here. I believe it is more about lack of control. If you could be told that you would loose your hair every year for the next five....you would hate it but you would work around this and make life decisions to help yourself. But because you have no control and are sort of waiting to see what will happen, it becomes paralyzing...you start to feel helpless. That is a horrible place to be.
My daughter has regrown and lost her hair 6 time in the last 11 years. We don't focus on her hair coming and going as she just can't control that. What we do is focus on is, what we can control. Work out what you want to do in all areas of life while dealing with your hairloss. How do you want to present yourself...scarf, hat, wig...nothing. Your choice. How are you going to explain this to people? Do you want to explain this to people? Start doing the preparation on what's next.
Find answers for yourself.... and know without a doubt you can do this and do it well.
Hugs
Rosy
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