Off-Label Tofacitinib in Ireland? - Alopecia World2024-03-28T23:40:41Zhttps://alopeciaworld.com/forum/topics/off-label-tofacitinib-in-ireland?commentId=2022678%3AComment%3A1629460&x=1&feed=yes&xn_auth=noYes, we managed to contact dr…tag:alopeciaworld.com,2021-12-08:2022678:Comment:19525212021-12-08T11:07:30.366ZKasiahttps://alopeciaworld.com/profile/Kasia
<p>Yes, we managed to contact dr Catriona. thanks </p>
<p>Yes, we managed to contact dr Catriona. thanks </p> Hello Kasia - very sorry that…tag:alopeciaworld.com,2021-08-17:2022678:Comment:19485612021-08-17T21:56:15.318Zhellopeeshahttps://alopeciaworld.com/profile/hellopeesha
<p>Hello Kasia - very sorry that I’m only seeing this now. Did you find what you were looking for? If not, the dermatologist you can contact is Dr.Caitriona Ryan at the Institute of Dermatology in Ballsbridge, Dublin. She’s fantastic!</p>
<p>Hello Kasia - very sorry that I’m only seeing this now. Did you find what you were looking for? If not, the dermatologist you can contact is Dr.Caitriona Ryan at the Institute of Dermatology in Ballsbridge, Dublin. She’s fantastic!</p> Hi hellopeesha!
Would you be…tag:alopeciaworld.com,2019-11-24:2022678:Comment:16294602019-11-24T01:55:10.652ZKasiahttps://alopeciaworld.com/profile/Kasia
<p>Hi hellopeesha!</p>
<p>Would you be able to share doctor name who prescribed you Xeljanz in Dublin?</p>
<p></p>
<p>Thank you!</p>
<p>Hi hellopeesha!</p>
<p>Would you be able to share doctor name who prescribed you Xeljanz in Dublin?</p>
<p></p>
<p>Thank you!</p> Hi Magmck
Thanks for the det…tag:alopeciaworld.com,2019-09-28:2022678:Comment:15573432019-09-28T17:45:39.713ZNataliehttps://alopeciaworld.com/profile/Naomi753
<p>Hi Magmck</p>
<p></p>
<p>Thanks for the details I will make contact.</p>
<p></p>
<p>Regards</p>
<p></p>
<p>Natalie</p>
<p></p>
<p></p>
<p></p>
<p></p>
<p></p>
<p>Hi Magmck</p>
<p></p>
<p>Thanks for the details I will make contact.</p>
<p></p>
<p>Regards</p>
<p></p>
<p>Natalie</p>
<p></p>
<p></p>
<p></p>
<p></p>
<p></p> Hi hellooecia.
Thank you so…tag:alopeciaworld.com,2019-09-13:2022678:Comment:15366732019-09-13T18:52:43.065Zmagmckhttps://alopeciaworld.com/profile/magmck
<p>Hi hellooecia. </p>
<p>Thank you so much for taking the time to reply. Hopefully Natalie has read my reply and as you can see. I’ve started taking xeljanz also ... just in the last few days. It will be probably 4 months before I get the opportunity to meet De Singh and meantime I will need to have my blood monitored I think or my anxiety levels will go through the roof. There is a good Facebook page xeljanz and alopecia and is encourage you to join if you haven’t already. Someone on the…</p>
<p>Hi hellooecia. </p>
<p>Thank you so much for taking the time to reply. Hopefully Natalie has read my reply and as you can see. I’ve started taking xeljanz also ... just in the last few days. It will be probably 4 months before I get the opportunity to meet De Singh and meantime I will need to have my blood monitored I think or my anxiety levels will go through the roof. There is a good Facebook page xeljanz and alopecia and is encourage you to join if you haven’t already. Someone on the site is self medicating as I am and have me the details for the Dermatologist in London. How exciting for you to have so regrowth so early on! What dose are you on ? </p>
<p> Have started taking 15 mg from beacon - 1 pill in the morning. And 2 at night. I also have topical minoxidil which I have also started using in conjunction. </p>
<p></p>
<p>Pleased for you that you are responding and no reason whatsoever that you won’t carry ont o full regrowth. Best of luck !:-) </p> Natalie.
My GP has agreed to…tag:alopeciaworld.com,2019-09-13:2022678:Comment:15365752019-09-13T18:44:17.039Zmagmckhttps://alopeciaworld.com/profile/magmck
<p>Natalie.</p>
<p></p>
<p>My GP has agreed to refer me to Dr Sarita Singh at Chelsea and Westminster Hospital in London. There is a long waiting time (4 months +) to be see as aNHS patient. She has agreed to see me and Following on from the referral will provide guidance to my GP re blood monitoring and as a result he has agreed to to monitor my bloods. You can enquire st the email address below - </p>
<p></p>
<p>pa@singhdermatology.com</p>
<p></p>
<p>pkease let me know how you get…</p>
<p>Natalie.</p>
<p></p>
<p>My GP has agreed to refer me to Dr Sarita Singh at Chelsea and Westminster Hospital in London. There is a long waiting time (4 months +) to be see as aNHS patient. She has agreed to see me and Following on from the referral will provide guidance to my GP re blood monitoring and as a result he has agreed to to monitor my bloods. You can enquire st the email address below - </p>
<p></p>
<p>pa@singhdermatology.com</p>
<p></p>
<p>pkease let me know how you get on </p>
<p></p>
<p>x</p> Hey magmck and Natalie,
I'm s…tag:alopeciaworld.com,2019-09-12:2022678:Comment:15359422019-09-12T22:25:11.557Zhellopeeshahttps://alopeciaworld.com/profile/hellopeesha
<p>Hey magmck and Natalie,</p>
<p>I'm sorry to hear that you're having trouble finding dermatologists willing to prescribe.</p>
<p>I found one in Dublin and am on Xeljanz for 7 weeks now, but that's all covered as I'm an Irish resident/citizen, otherwise it'd be nearly 3000 EUR per month.</p>
<p>All I'd say to you is this - if I found one in Ireland, you'll totally find one in the UK.</p>
<p>Here's a few ideas:</p>
<p>- Ask your GP for a directory of dermatologists across the UK - I'm sure GPs…</p>
<p>Hey magmck and Natalie,</p>
<p>I'm sorry to hear that you're having trouble finding dermatologists willing to prescribe.</p>
<p>I found one in Dublin and am on Xeljanz for 7 weeks now, but that's all covered as I'm an Irish resident/citizen, otherwise it'd be nearly 3000 EUR per month.</p>
<p>All I'd say to you is this - if I found one in Ireland, you'll totally find one in the UK.</p>
<p>Here's a few ideas:</p>
<p>- Ask your GP for a directory of dermatologists across the UK - I'm sure GPs have catalogues of specialists.</p>
<p>- Google around for UK dermatologists who specialise in alopecia. Contact each and every one of them.</p>
<p>- Google UK-based dermatologists who have worked on trials with Xeljanz. Because they've worked with it, the fear of prescribing it won't be as daunting, as they understand the drug, have seen its safety profile first hand, and might be more inclined to prescribe (as is the case with my derm, far as I can tell).</p>
<p>- Often this comes down to fear of being sued as the drug's currently unlicensed for alopecia. Maybe there's some sort of waiver that you could offer to sign, where the derm feels assured that you'll never sue them for any associated health risks/problems.</p>
<p>- Start a new thread and replicate the title of this one but change it to UK. That's how I found my derm - through very helpful and good people on here :)</p>
<p>I never thought I'd any hope of finding someone either. 7 weeks in and I'm feeling totally fine. Small bit of fatigue in mornings and waiting on first blood results since starting, and regrowth started this week. Keep up the search guys I promise that it'll pay off!</p> Hi Natalie.
Send me a wee m…tag:alopeciaworld.com,2019-09-12:2022678:Comment:15359402019-09-12T20:50:21.140Zmagmckhttps://alopeciaworld.com/profile/magmck
<p>Hi Natalie. </p>
<p>Send me a wee message and</p>
<p>we can chat x</p>
<p>Hi Natalie. </p>
<p>Send me a wee message and</p>
<p>we can chat x</p> Hi Magmck
Apologies for the…tag:alopeciaworld.com,2019-09-12:2022678:Comment:15359262019-09-12T19:24:43.796ZNataliehttps://alopeciaworld.com/profile/Naomi753
<p>Hi Magmck</p>
<p></p>
<p>Apologies for the delayed response. </p>
<p></p>
<p>I am not getting on very well. Still unable to find a London based Dermatologist to support me. I read that you have found a Dermatologist to support you whilst taking Xeljanx, would be good to have their details if you don't mind please.</p>
<p></p>
<p>Also there is an event taking place at Wimpole St, W1 on 22nd September 2019 called Get Ahead of Hair Loss 2019. apparently it's an opportunity to get all the latest…</p>
<p>Hi Magmck</p>
<p></p>
<p>Apologies for the delayed response. </p>
<p></p>
<p>I am not getting on very well. Still unable to find a London based Dermatologist to support me. I read that you have found a Dermatologist to support you whilst taking Xeljanx, would be good to have their details if you don't mind please.</p>
<p></p>
<p>Also there is an event taking place at Wimpole St, W1 on 22nd September 2019 called Get Ahead of Hair Loss 2019. apparently it's an opportunity to get all the latest in hair loss and treatments. I will be attending. Fingers crossed.</p>
<p></p>
<p>Regards</p>
<p></p>
<p>Natalie</p> Hi
How are people here getti…tag:alopeciaworld.com,2019-09-10:2022678:Comment:15333692019-09-10T18:53:07.160Zmagmckhttps://alopeciaworld.com/profile/magmck
<p>Hi </p>
<p>How are people here getting on ? Ive found a</p>
<p>London based Dermatologist and my GP has agreed</p>
<p>to refer me and she is seeing me as an NHS patient and my GP has agreed</p>
<p>to monitor my bloods. So progress at last ! So let’s see what happens now that I’m taking xeljanz ! :-) </p>
<p></p>
<p>Hi </p>
<p>How are people here getting on ? Ive found a</p>
<p>London based Dermatologist and my GP has agreed</p>
<p>to refer me and she is seeing me as an NHS patient and my GP has agreed</p>
<p>to monitor my bloods. So progress at last ! So let’s see what happens now that I’m taking xeljanz ! :-) </p>
<p></p>