New to AA - Alopecia World2024-03-29T05:27:22Zhttps://alopeciaworld.com/forum/topics/new-to-aa?commentId=2022678%3AComment%3A1184659&x=1&feed=yes&xn_auth=noHi Soisy,
My condition starte…tag:alopeciaworld.com,2014-05-04:2022678:Comment:11846592014-05-04T13:36:27.542ZEllen Chineryhttps://alopeciaworld.com/profile/EllenChinery
<p>Hi Soisy,</p>
<p>My condition started when I was 20 years old, about five years ago. At that point in time, I was going through some stressful things. This included struggling with an eating disorder, and trying to maintain an unhealthy weight! Within a year I lost all hair on my body! I have been living a much healthier lifestyle over the past three years. My hair grew back completely, and now I just have some (about 7) patches on my head. I totally agree that there may be some link between…</p>
<p>Hi Soisy,</p>
<p>My condition started when I was 20 years old, about five years ago. At that point in time, I was going through some stressful things. This included struggling with an eating disorder, and trying to maintain an unhealthy weight! Within a year I lost all hair on my body! I have been living a much healthier lifestyle over the past three years. My hair grew back completely, and now I just have some (about 7) patches on my head. I totally agree that there may be some link between stress/diet and the hair loss. The way I see it, is that I always had this condition in me, and the stress I was putting on my body was the catalyst for the hair loss to begin. I don't think this is case for everyone, because this condition is so sporadic and unpredictable! But yes, I agree, for some of us, it may be related! For me, I just try to do my best to maintain a healthy lifestyle, which makes me feel like I'm doing something other than being sad about it! lol Good luck!! :)</p>
<p>-Ellen :)</p> Yes, it was interesting that…tag:alopeciaworld.com,2014-01-28:2022678:Comment:11505372014-01-28T05:40:45.687ZPamhttps://alopeciaworld.com/profile/Pam27
<p>Yes, it was interesting that for my son his AA started after he was mugged - maybe the shock to him emotionally played a part in it......</p>
<p>Yes, it was interesting that for my son his AA started after he was mugged - maybe the shock to him emotionally played a part in it......</p> you might be right. ive read…tag:alopeciaworld.com,2014-01-27:2022678:Comment:11504992014-01-27T19:23:48.027ZSoisyhttps://alopeciaworld.com/profile/Soisy
<p>you might be right. ive read someplace where it says that with this condition, stress and certain diets can cause episodes of hairloss. has anyone ever experinced this? when it first started i thought it was becasue i was seriously dieting. and i was dropping weight very quickly. then the spots occured.</p>
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<p>you might be right. ive read someplace where it says that with this condition, stress and certain diets can cause episodes of hairloss. has anyone ever experinced this? when it first started i thought it was becasue i was seriously dieting. and i was dropping weight very quickly. then the spots occured.</p>
<p> </p> something occurred to me the…tag:alopeciaworld.com,2014-01-27:2022678:Comment:11508212014-01-27T19:15:56.786ZPam D.https://alopeciaworld.com/profile/PamD
<p>something occurred to me the other day...I have never, ever, stressed about this condition; I have always accepted it and have been thankful that a) it doesn't hurt and b) it won't kill me. I have never been someone who stresses or worries about things I can do little about; I guess it's just the way I'm wired. I don't know if this is why I have periods of re-growth, or if it is a cycle I go through, but maybe not stressing about it helps. My eyebrows have thinned, but I have never lost my…</p>
<p>something occurred to me the other day...I have never, ever, stressed about this condition; I have always accepted it and have been thankful that a) it doesn't hurt and b) it won't kill me. I have never been someone who stresses or worries about things I can do little about; I guess it's just the way I'm wired. I don't know if this is why I have periods of re-growth, or if it is a cycle I go through, but maybe not stressing about it helps. My eyebrows have thinned, but I have never lost my lashes or eyebrows completely; for the first time in 2 years, the hair on my forearms is growing back, which I think is odd, but this condition is odd, isn't it? One of my friends has had AA for 20 years; she lost her eyebrows 2 years ago and has only one set of eyelashes. As I said, this condition seems to be different for everyone.</p> thank you all for your help.…tag:alopeciaworld.com,2014-01-27:2022678:Comment:11508682014-01-27T13:35:24.663ZSoisyhttps://alopeciaworld.com/profile/Soisy
<p>thank you all for your help. as i see paticene is the key here lol. somehting i have to learn. as for now i wear my wigs and just try to keep a smile on my face. for the most part its ok. whats really getting to me is the fact that when im home and i have my scarve on my head i look bald. and to me it makes me look sick.. and now im scared that my eyebrows might go away (no sign of that yet) or my eye lashes. have this ever happened to anyone of you? i may be too hard on myself but im sure…</p>
<p>thank you all for your help. as i see paticene is the key here lol. somehting i have to learn. as for now i wear my wigs and just try to keep a smile on my face. for the most part its ok. whats really getting to me is the fact that when im home and i have my scarve on my head i look bald. and to me it makes me look sick.. and now im scared that my eyebrows might go away (no sign of that yet) or my eye lashes. have this ever happened to anyone of you? i may be too hard on myself but im sure with time i will learn not to be afraid.</p> Hi Soisy,
I pray that everyth…tag:alopeciaworld.com,2014-01-26:2022678:Comment:11503102014-01-26T19:44:09.008ZJameelah Fernandershttps://alopeciaworld.com/profile/JameelahFernanders
<p>Hi Soisy,</p>
<p>I pray that everything works out for you. I would like to suggest two books "Metamorphosis by Julia Crittendon and "If Your Hair Falls Out Keep Dancing" by Leslie Ann Bulter. These two books really uplifted and encouraged me to understand that there is life after hair loss. I am totally bald and I have learned to find the bright side. Thank you Ann Im going to check out your blog.</p>
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<p>Hi Soisy,</p>
<p>I pray that everything works out for you. I would like to suggest two books "Metamorphosis by Julia Crittendon and "If Your Hair Falls Out Keep Dancing" by Leslie Ann Bulter. These two books really uplifted and encouraged me to understand that there is life after hair loss. I am totally bald and I have learned to find the bright side. Thank you Ann Im going to check out your blog.</p>
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<p> </p> I think everyone's experience…tag:alopeciaworld.com,2014-01-25:2022678:Comment:11487062014-01-25T02:30:50.166ZPam D.https://alopeciaworld.com/profile/PamD
<p>I think everyone's experience with AA is different. I'm one of the lucky ones in that I have lost 80% of my hair twice and (most) of it has come back; right now I am experiencing a regrowth, but it has taken months (since August) to get it to where it is now (80% back). I sincerely hope your hair comes back, but it could be a battle to figure out what works for you and you need a lot of patience because it is a slow process. When mine starts to grow back, it comes in in areas, usually the…</p>
<p>I think everyone's experience with AA is different. I'm one of the lucky ones in that I have lost 80% of my hair twice and (most) of it has come back; right now I am experiencing a regrowth, but it has taken months (since August) to get it to where it is now (80% back). I sincerely hope your hair comes back, but it could be a battle to figure out what works for you and you need a lot of patience because it is a slow process. When mine starts to grow back, it comes in in areas, usually the crown first; the last is around the edges. My hair looks pretty good right now, but if I wear a hat, I still look bald because the edges are still coming in; I'm not even sure they will come completely back. I have made peace with the fact I don't ever expect to be free of this condition and I am thankful for any time that I have hair on my head; 2 years ago I had accepted that I would be bald, then my hair started to grow back. Anyway, my main reason for writing again was to tell you to have patience; this is not an easy condition to deal with. If you are lucky and your hair starts to grow again, it probably won't come in all over all at once and when an area starts to fill in, it comes in slowly. Good luck; I wish you the best. </p> Hi Ann. thank you for your ki…tag:alopeciaworld.com,2014-01-24:2022678:Comment:11481262014-01-24T13:34:44.727ZSoisyhttps://alopeciaworld.com/profile/Soisy
<p>Hi Ann. thank you for your kind works and letting hear about your journey. mine is just starting. i cant wait to i get to the point where i can take off my wig and NOT put my scarve on right after. where i can walk around my house with my bald head, and actually let my family see me for once. im afraid to show my 8 year old becasue she might get scared for me. my boyfriend took me to the dr. and when he had me take off my wig infront of them i wanted to cry.. but i really love this site and…</p>
<p>Hi Ann. thank you for your kind works and letting hear about your journey. mine is just starting. i cant wait to i get to the point where i can take off my wig and NOT put my scarve on right after. where i can walk around my house with my bald head, and actually let my family see me for once. im afraid to show my 8 year old becasue she might get scared for me. my boyfriend took me to the dr. and when he had me take off my wig infront of them i wanted to cry.. but i really love this site and you guys are really helping me cope and i really thank you for that. they say that this is hereditary. im not sure who in my family has it. but since ive found out i have been asking around. so far noone as of yet.</p>
<p>Ann did you hair ever attempt to grow back? im scared that mine will never come back. i dont know if i can deal with being bald forever :0(</p> Soisy - I know what you mean.…tag:alopeciaworld.com,2014-01-24:2022678:Comment:11481772014-01-24T05:06:16.566ZAnnhttps://alopeciaworld.com/profile/Ann701
<p>Soisy - I know what you mean. I totally went through this thing afterwards to where I beat myself up like "why did you have to ask for more? this is ur fault blah blah blah!" … but really it was me coping because if i hadn't HAVE asked, I would've beat myself for not doing so. I just didn't have anyone around me to talk about this with. My nana has universalis, but we dare not discuss such things in the family, and honestly - I saw her for the first time without a wig last yr and I'm almost…</p>
<p>Soisy - I know what you mean. I totally went through this thing afterwards to where I beat myself up like "why did you have to ask for more? this is ur fault blah blah blah!" … but really it was me coping because if i hadn't HAVE asked, I would've beat myself for not doing so. I just didn't have anyone around me to talk about this with. My nana has universalis, but we dare not discuss such things in the family, and honestly - I saw her for the first time without a wig last yr and I'm almost 30. My hair was pretty much gone on top and I decided to just shave it all off in 2012. That has been a journey and I feel like I was so blessed to find alopecia world last yr …. I did some pretty risky things once I saw they injections weren't as effective to me … have since stopped, taking baby steps to talk about all that in the open. I just started blogging, literally this week/last week about my journey and how it's led to sooooooooo much stuff - good, bad, all of it. It took me a while to look in the mirror at myself, taking pictures of myself bald was hard until finding this site … honestly sometimes it's still hard to see me… idk if hard is the right word, maybe 'interesting….' because it's like "woah, that's me... with no hair under that hat and it's obvious…what???" lol but I'm working on it … shoot, even just writing you now is making me think of blog topics lol but if u ever wanna talk/message more, let me know! and my blog is baldgyrlmemoirs.com …have a good night!</p> thank you, i was tempted to a…tag:alopeciaworld.com,2014-01-23:2022678:Comment:11469312014-01-23T14:39:59.723ZSoisyhttps://alopeciaworld.com/profile/Soisy
<p>thank you, i was tempted to ask for more injections. it just seemed like the ones he gave me wouldnt do anything and wasnt enough, to actually get all around my head lol.. right now im almost completely bald except for a few strands here and there. i cant stand to even look at myself without my wig on. its a mess.</p>
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<p>thank you, i was tempted to ask for more injections. it just seemed like the ones he gave me wouldnt do anything and wasnt enough, to actually get all around my head lol.. right now im almost completely bald except for a few strands here and there. i cant stand to even look at myself without my wig on. its a mess.</p>
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