I wasn't able to find much about narrowband UVB treatments on this forum so I thought I'd post our experience for the record, in case anyone else is looking at it. I think there is some older technology called PUVA that some have used, but I believe this is notably different.

When my son reached about 90% hairloss his dermatologist suggested we try narrow band UVB. The reason it wasn't suggested before is because there wasn't enough exposed scalp.

The treatment is in an upright booth, I think very similar to a stand-up tanning setup. It is exclusively UVB, as opposed to UVA, so the risk of skin cancer is not significant compared to actual sun exposure. He would go into the booth and cover everything except for his scalp. I'd dress him in pants, socks, long sleeve shirt, gloves and we'd position a towel over his face. He also needed to wear special goggles. The treatments started at 10s every 2 days and increased in duration and intensity up to 2.5 minutes every 2 days. We went for approximately 4 months, maybe 5. There were a couple of instances where we were away and he went as long as 6 days without treatment. Visits to the treatment center were always very quick in and out.

The premise of UVB is that it is a local immunosupressant. I know it is used in psoriasis and other skin issue.

I believe we went approximately 1.5 months before we started seeing vellus hairs over the entire scalp. After 2 months we had colored terminal hairs mostly covering scalp with a few bare patches.
After 3 months we had a full scalp of terminal hairs.
after 4 months we had a lot of hairs longer than 1" with shorter hairs everywhere else
it wasn't long after that that he had his first haircut in nearly 2 years!

we stopped treatments at the end of July, and went until mid december without finding any new outbreaks. Since then it has been a lot slower progression than his initial outbreak, with the system responding quite well to spot treatments with clobetasol.

I think the UVB treatment made a big difference in response. I definitely noticed that the areas that were slower to come back were the spots where he was holding the towel on, and weren't getting as much if any exposure during treatment.
One other nice side effect is that his scalp got a nice tan, which helps in overall appearance while waiting for growth to happen.

The treatment wasn't overly cumbersome for us, as we found a dermatology clinic near home that was able to offer the treatment and had operating hours we could work with. For a person who lived outside of the city, or did not have a conveniently located treatment center it would be difficult due to the frequency of treatments.

Hopefully this helps someone!

Views: 457

Reply to This

Replies to This Discussion

Had UVB sessions last year for granuloma (another auto-immune skin disorder) on my entire body. Quit when I got burned from a still low level treatment. Made my granuloma worse and 8 months later I was diagnosed with AU. So ... draw your own conclusion.
I went through Puva treatment in Dublin Ireland in the mid 1980's when I had AA as a kid. Probably 40% loss. After 6-8 weeks of treatment 3 days a week I regrew all my hair. This regrow the lasted about 2 months and the patches would start up again. They rubbed some clear strong alcohol smelling liquid on my head prior to treatment and then I'd sit in a booth for a period of time. I recently enquired about getting this treatment again in Dublin but was told it has been discontinued due to "safety" reasons ! I reckon they are being overly cautious myself.

My derm had me start phototherapy yesterday. I had been getting steroid injections from May until last month. Last month he started me on cyclosporine as most of my scalp is bald. A little nervous about the phototherapy, especially since you can be burned. My clinic was clear to explain to me I need to wear the same clothes coverage each treatment but didn't offer any type of facial coverage or eye protection. Glad to hear it worked out for your son though.

I'm surprised that they didn't offer or require you purchase some sort of goggles. this type of exposure can seriously damage your eyes. Both of the clinics we went to required specific goggles (I purchased them from a local medical supplier)

I believe PUVA treatment was discontinued due to safety reasons, but UVB treatment is considered much safer

Great post! Thanks for sharing.You can have a look at the hair extensions

RSS

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service