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My husband doesn't think I should be looking at wigs :(
"I don't know why you are looking at those wigs, you don't need one yet"...
Am I wrong, but I just feel like seeing what is available for me can't be a bad thing. I don't know the timeline on my AA..and I want to be prepared.
It is quite overwhelming all the choices with this.. treatments or not, what kind of treatments. Even accepting it, or not. (not that that would change anything) Then there is the choice of shave or not, then scarves, wig, hat, nothing....I'm just trying to think this all out beforehand.
I started the steroid treatments (1st one), but I am seriously thinking of NOT continuing them. From what I have read from others, the injections may help, but stopping them, my hair may fall back out anyways. I just don't know if it's worth all that.
Any suggestions/personal experience with the treatments?
Am I wrong, but I just feel like seeing what is available for me can't be a bad thing. I don't know the timeline on my AA..and I want to be prepared.
It is quite overwhelming all the choices with this.. treatments or not, what kind of treatments. Even accepting it, or not. (not that that would change anything) Then there is the choice of shave or not, then scarves, wig, hat, nothing....I'm just trying to think this all out beforehand.
I started the steroid treatments (1st one), but I am seriously thinking of NOT continuing them. From what I have read from others, the injections may help, but stopping them, my hair may fall back out anyways. I just don't know if it's worth all that.
Any suggestions/personal experience with the treatments?
Replies to This Discussion
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Permalink Reply by soniamarry on
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Hi Diana,
I think it is perfectly natural to be weighing all of your options. i think the key here is that you want to be prepared. Because Alopecia varies from person to person and day to day, you want comfort in knowing that whatever comes your way...you will be ready for. I still have most of my hair, but i have done the research on the treatments and went shopping for a wig because you just never know what is going to happen or when. For me, just sitting at home hoping and waiting was not an option. I needed to go out and shop around and look at my options for scarves, hats, and wigs, because i needed to have the comfort that all hope was not lost just because my hair went. I needed to know that i could face the world and still be beautiful even if all my hair was gone. I wound up buying a beautiful wig with some highlights and a funky new cut that symbolized a new start for me. I have not switched to wearing it every day, but i do wear it out at times and i like the fact that i can have that as a back up just in case. I did do the injections for a bit, and i did have some growth. My spot became relatively smaller than it was. Now i am doing this topical solution which smells just aweful so i really don't know what is worse. But my wig is my security blanket and there is nothing wrong with that so i say go for it and have fun doing it! :)
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Permalink Reply by Karen Smith on
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Get a good wig and have it on hand. Alopecia is so unpredictable. We had one custom made for my daughter in 9th grade and she did not need it by the time it came in. Her hair fell out suddenly 3 years later and it was a great thing that we had it.
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Permalink Reply by Diana Carter on
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Thanks for the good advice! This is so much easier knowing I have people I can ask. Feeling prepared does give me that security of being ready for what is to come. I don't suppose wigs are covered on most insurance plans? This is so cool..it's like my Alopecia Bible book of answers! Love Alopecia World!
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Permalink Reply by Kimberly Duncan on
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Diane, I have done the same thingI have several picked out just in case. I have almost ordered them but chickened out at the last second. But I understand you wanting to have a back up plan. Since AA is so unpredicable I would rather be safe then sorry. I alsl agree I love this web site if it wasnt for this website I so not beleive I would ever leave my house. My big thing is price of wigs Iove the human hair wigs but they are way out of my budget.
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Permalink Reply by Gail on
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With all due respect, your husband isn't the one losing his hair. Look at all the wigs you can and make a choice for when the inevitable happens. I had my wig purchased and waiting for the time I could no longer hide the hair loss and made the transition in one big jump. I have purchased multiple wigs over the last year and have found "favorites," which kind to buy again and which to avoid. Continue the treatments if you feel they are beneficial and producing results, but give that enough time also. These things don't happen overnight.
"Acceptance," if there ever is such a thing, happens in baby steps. I kept what was left of my hair chin length for a while and "wrapped" it to fit under the wig. After a while, I realized that was ridiculous and cut to about 1 inch all over. These days, I periodically take the clippers and give myself a GI buzz. I doubt I will ever go to the skin - I like the feel of the fuzz, plus it allows me to keep an eye on the comings and goings of the hair I still have.
This is all individual preference. Don't feel pressured by what others are doing. Do what feels right for you.
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Permalink Reply by margaret staib on
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Gail, that is an awesome response! You said it perfectly!! Diana, this road is one that no one can tell you which way it's going to take you. Took me a long time to LOVE my wigs. I bought one when I had a full head as well. Now it's funny I don't like that one because it reminds me when I had hair. I now let her sit on top of the closet lined up with all the other ones. (I have 5, some women buy shoes, I now buy and spend my $ on wigs :) )I will never get rid of it because "she", sophia, my girls named them all, is a part of my journey. All I can say is try and have fun with it. You know when they say if you fight something it is more painful? Well, I wish I did not fight the shopping for the wigs in the beginning but, I guess that's all part of the acceptance process isn't it? Now i have fun with it. I almost bought one the other day with red highlights in it but chickened out. Next time, baby steps :)
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Go for the red, Margaret! I did and like it better than my natural color (whatever that is...). I get compliments all the time.
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:) You have inspired me. Maybe a birthday present for myself, a little red for the holiday! :)
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I am thinking about getting a red wig myself. I used to love changing the color of my hair every few months, and I loved it auburn. See no reason why I cant do it now also :)
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Permalink Reply by Brandi Badzinski on
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Hi Diana,
i think it is perfectly normal to be looking at wigs this early. its better to be prepared and be ready.
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My husband was in denial about my AA more than I was. He just wanted everything to be normal. One day I was able to explain to him that the day might be coming soon that I could no longer depend on my natural hair and it wasn't fair of him to insist that it was the only acceptable thing. I got a few wigs anyway and he realized it was okay. Now he compliments me on how nice I look in them. I think he just didn't know as much as I did about AA and initially thought I was overreacting.
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Permalink Reply by Tallgirl on
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With men and family members, I think it can also sometimes be a matter of acceptance (much later worry for them than we have already been experiencing for months or years) and money for all future wigs. They hope that a treatment or two can have it over and done with, yes? Also, a new color or style or thickness makes people HAVE to start asking some questions that they are nervous answering.
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