Hello everyone. This is my first post here on Alopecia World. I am confused about my diagnosis, and was wondering if anyone here has had a similar experience.

I am 32 years old, and I first noticed my hair was falling out around memorial day this year. I do believe that the hair loss was very rapid. I started a new job in February, and I have pictures around that time with me with plenty of hair. So anyway, I immediately made an appointment with my doctor, in which I was given a blood test. My thyroid function was normal, and my TSH and TS4 was tested. So my doctor referred me to a determatologist. THe dermo took a biopsy of my scalp and diagnosed me with lichen planopilaris.

Meanwhile, why I has having the blood test and the biopsy, I started having pain in both of my eyes. The pain would appear two hours after I woke up, and would remain the rest of the day. My eyes felt heavy and at times my vision was blurry for a few seconds before I shook it off. I went to my eye doctor, who is an opthomalogist but no longer practices, and all he did was prescribe new glasses. He did say that my eyes were very dry. I do not believe he inspected my optic nerve in great detail.

So I went back to my original general practictioner and discussed my eye problems. SHe basically said that I had alopecia and that I was over reacting about the eye problem. I've been reading information on the internet about hair loss and other autoimmune disorders, particularly lupus. It took great convincing to make my doctor test me for lupus. I did feel like the doctor and staff were amused at my over reacting of the situation. I guess since they have all their hair and their eyes don't hurt, they absolutely cannot relate to me.

So I went for the blood test, and immediately after the blood test was taken, I started to have pain in my knees, ankles, hands and wrists. I hope my autoimmune blood test comes back with something besides alopeica, just to explain the other symptoms that are appearing one after another.

So I guess my question for everyone is this: are my symptoms listed above just my overreacting and I really do just have alopecia, or do you think there is another autoimmune disease that is contibuting to my hair loss?

I'm glad I found this forum. My hair has always been my favorite part of my body, and it is ironic that this is the one part of me that I lose. I am so discouraged and angry at the world. I hope to gain support from eveyone here. Thank you.

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Hang in there it is very hard at times and frustrating. I have two autoimmune diseases and it developed late for me too. In 2007 at age 35 I was diagnosed with crohns/UC and then from feb 2011 to may 2011 I lost all my hair rapidly to Alopecia Universalis. They tested me for lupus as well but I am grateful to say it was negative. A lot of my symptoms including brain lesions resulted from medications like Remicade. Try to stay optimistic and keep moving forward best you can, this is a wonderful site and I was grateful to find it as well. take care

Hi, this is my first time replying or posting also. I was just diagnosed with LP and then AA, so not sure which diagnosis to believe. I started noticing scalp itching and hair shedding about a year ago. I have had 5 different diagnoses. I spent lots of money on blood tests that all came back normal. I had all the autoimmune tests too. I know there are a lot of autoimmune disorders that can contribute to the alopecia. It's a good thing you did the tests just for peace of mind. The hair loss is very psychological and emotional for me as well. I know what you are going through. Keep in touch and maybe we can help each other out through this. What kind of treatment did your dermatologist give you for the LP?

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