I recently started 15 mg of liquid iron (ferric pyprphosphate) since my Ferritin level was 33 and I have frontal hair loss (scarring alopecia, probably autoimmune...Derm Dr. gave me the Clobetasol Propriante and I've been using Rogaine for about 3 years.   Still hair line is creeping back.

After 2 months of taking iron (I don't eat much red meat; lots of veggies, etc),  my Ferritin level went DOWN to 26 (range is 16-288) and I wanted to get it to 50.

My other labs:

    Saturation %    -       17% (range  16-45%)

     Iron Binding (TIBC)  338 (range   250-450)

     Total Iron  was 121 prior to Iron supplementation,

                   now 57 (range   45-160)

My primary care dr. doesn't think I need iron supplementation.  (I just told her I was on 15 mg of iron from an acupuncturist/functional dr)

Am I wrong saying my iron levels are low? Other than my  TIBC, am I nuts?  I'd like to take more iron. My PCP wants to me to do invasive procedures like colonoscopy/endoscopy though I have no digestive issues at all .  I don't have any big signs of anemia, but would like to catch this before something like that happens.   Ruling out internal bleeding (I'll try to get a fecal stool test from her),  how much more iron can I take that would be safe? 

 I can't get answers from any drs...no one wants to deal with this. (why we must turn to support groups and extensive research)  I'm going to get blood tested again in about 6-8 weeks.   I stopped taking the iron supplement 2 days prior to fasting blood work.  Any help/feedback/advice would be greatly appreciated. 

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Hi,

My ferritin level was 5. To increase it, I was taking 4 iron pills per day each 60mg. Plus vitamin C. I was able to increase ferritin to 60 over 4 months. 

I reduced my iron i take to 2 pills/day and ferritin dropped to 30. 

I just want to say that 15mg of liquid iron is not enough. 

Good luck!

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