Hopeful after a visit to Cleveland Clinic - Alopecia World2024-03-28T23:29:16Zhttps://alopeciaworld.com/forum/topics/hopeful-after-a-visit-to-cleveland-clinic?feed=yes&xn_auth=noNo, I can’t imagine it. My 15…tag:alopeciaworld.com,2019-02-11:2022678:Comment:14481342019-02-11T21:06:46.575ZLJBMDhttps://alopeciaworld.com/profile/LJBMD
<p>No, I can’t imagine it. My 15 yo daughter has been suffering with AA since 12/27/18 and continues to loose a lot of hair; she has lost about 70% or more. We are panicked. What was Dr. Bergfeld like? Did anything help you? </p>
<p>No, I can’t imagine it. My 15 yo daughter has been suffering with AA since 12/27/18 and continues to loose a lot of hair; she has lost about 70% or more. We are panicked. What was Dr. Bergfeld like? Did anything help you? </p> Don't you just love the "it's…tag:alopeciaworld.com,2019-02-11:2022678:Comment:14483652019-02-11T18:32:46.564ZSabineTawnihttps://alopeciaworld.com/profile/SabineTawni
<p>Don't you just love the "it's only hair" comment? Can you imagine saying to someone with psoriasis, eczema, vitiligo, "It's only skin." Idiots!</p>
<p>Don't you just love the "it's only hair" comment? Can you imagine saying to someone with psoriasis, eczema, vitiligo, "It's only skin." Idiots!</p> Hi - I am just reading this p…tag:alopeciaworld.com,2019-02-10:2022678:Comment:14476372019-02-10T20:42:18.897ZLJBMDhttps://alopeciaworld.com/profile/LJBMD
<p>Hi - I am just reading this post now as we are new to AA. May I ask how things went for you since 2015?</p>
<p>Hi - I am just reading this post now as we are new to AA. May I ask how things went for you since 2015?</p> Lucky you!!!
I hate Canada...…tag:alopeciaworld.com,2016-01-08:2022678:Comment:12966902016-01-08T23:32:16.869ZReturn_lifehttps://alopeciaworld.com/profile/Returnlife
Lucky you!!!<br/>
I hate Canada... U guys from USA are so much more advanced than us. Obviously u still have the $$$ hurdles but at least it's a piece of cake to get that prescription. Where do I get i t if am Canadian? Crap...<br/>
All the best for u, I hope all we be better and ull get ur hair back... Because it's not only hair, its pleasure, confidence,happiness, dating, etc
Lucky you!!!<br/>
I hate Canada... U guys from USA are so much more advanced than us. Obviously u still have the $$$ hurdles but at least it's a piece of cake to get that prescription. Where do I get i t if am Canadian? Crap...<br/>
All the best for u, I hope all we be better and ull get ur hair back... Because it's not only hair, its pleasure, confidence,happiness, dating, etc Any updates? I'm in Cleveland…tag:alopeciaworld.com,2016-01-08:2022678:Comment:12963332016-01-08T01:44:41.519ZHalewhyhttps://alopeciaworld.com/profile/Halewhy
Any updates? I'm in Cleveland too. Have AA and am losing head and body hair now, potentially a TE reaction from prednisone, cortisone injections and topicsls all at once over the summer.
Any updates? I'm in Cleveland too. Have AA and am losing head and body hair now, potentially a TE reaction from prednisone, cortisone injections and topicsls all at once over the summer. Em, I don't think Dr. Burkfel…tag:alopeciaworld.com,2015-01-26:2022678:Comment:12394962015-01-26T22:41:03.705ZMerryhttps://alopeciaworld.com/profile/Merry
<p>Em, I don't think Dr. Burkfeld was talking about Xeljanz in that conversation. I had explained to her that cyclosporine works to grow my hair, but adversely affects my kidneys. I asked her if the fact that one thing worked for me made her optimistic about something else would work. She said that it did. Then I asked if she thought that everyone had something that would work, and she said that after having worked with alopecia for so long, she did think so. </p>
<p>I have tried kenalog…</p>
<p>Em, I don't think Dr. Burkfeld was talking about Xeljanz in that conversation. I had explained to her that cyclosporine works to grow my hair, but adversely affects my kidneys. I asked her if the fact that one thing worked for me made her optimistic about something else would work. She said that it did. Then I asked if she thought that everyone had something that would work, and she said that after having worked with alopecia for so long, she did think so. </p>
<p>I have tried kenalog injections, DNCB, cyclosporine, orencia infusions, plaquinel, cellcept, and vytorin. She didn't say anything about requiring that patients have already tired other things, but it would help to convince the insurance company to cover it.</p>
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