Alopecia World
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Has anyone tried distracting this disease with another?
Replies to This Discussion
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Permalink Reply by Dollhead on
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I don't know why you would want to do that. Yes, Alopecia has its own wonderful (SNORT!) set of challenges, but at the end of the day, for the most part, it's just baldness and can be dealt with. Why would you want to give yourself another disease just to have hair?
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I cant believe you said that. Its so obvious why im ready to take risk. Why do soldiers in the army receive so many shots one being hepatitis. Or some kids expose to chicken pox if they already haven't had it. I would think its because Doctors believe if you receive the disease in a set of series you will develop an immunity. Or you would only have 30 or so years to live. I know it sounds crazy but so do all cures and some treatment at first. Would you ask why a woman would wear a wig, makeup, weave or tracks. This is a website where people seek understanding about alopecia. But it doesnt mean you have to cope with it. Do you have the disease and have ever wore a hat or wig or anything to feel better? I would get why because its obvious. Ive felt suicidal about it but than gave myself hope thinking what if a cure pops up a year later. If your fat and unattractive would you cope by saying your beautiful on the inside? Or do something about it like work out as if youll die if you dont. Work on your makeup game and hairstyles. You will have a better attitude about life, with results. Youd research diet plans and count calories and say "O my favorite snack has way to much sodium i should cut that out and try something different and drink more water". Or get liposuction or any of the cosmetic surgeries that celebs have gotten that you could die from or be scarred for life. But its obvious why. Now do you have any information on white blood cells being distracted by another agent that would then allow hair to grow back. If not, help research it. And i dont mind dying as a lab rat so noone else ever has to deal with this disease again. It may not cause physical pain but its still a struggle for women and men alike. Ya know.
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I've had Alopecia since I was ten and have had to wear a wig for the last 43 years of my life, so I'm more than familiar with everything that comes with this disease. But in the grand scheme of things, I'm healthy. I have full use of all my limbs, my organs work, I can see, smell, and taste. Would I rather not have Alopecia? Of course! Would I trade otherwise good health just so I can have hair growing out of my head? "This disease I agreed to give myself damaged my lungs/makes it painful for me to walk/impairs my vision, but look at this gorgeous mane of hair I've got!" I can buy hair, as much of it as I want if that's what I want to "make myself presentable". I cannot buy good health.
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Are you kidding me. Buying a wig improves your health but it is mental or emotional. And again "you" may not be willing to walk with hurt lungs to feel good but ultimately its your mental state that is damaged regardless due to alopecia. You feel your coping is different but its the same. If you truly can deal with alopecia in fullness then dont wear a wig. Be as you are and without having to explain yourself everywhere you go. And again there is always a group of people who were lab rats for different treatment and cures. Thats why you saw 40 odd sum years. Why is trying something new so bad. But i bet if this worked youd put your order in. But see thats after the fact and after someone took the risk. Do you feel same way about females who get butt and breast implants or angelina jolie with the i wanna be super skinny syndrome. To each is own. But your no different from me, its just that your 40 plus years of age and have gotten set in old ways but i am 24 and have been dealing for 6 years. I am not ready to except things as they are. If that means sacrifice then so be it. Whats sad about our society is that people will say your wrong or you cant do something. And then flight happens or telecommunications or space travel or a cure for a disease. Then those same folk wanna fly to paris and buy an iphone and debate aliens or god and ofcourse buy a cure or treatment for a disease or a virus. But if i dont try then what should i expect to get in return. A head full of hair. Dont think so.
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It is just hair; you cannot trade that for good health. It's unfortunate that you feel so cavalier about something that you cannot replace once it's gone. My husband died from kidney disease after two transplants and having lived with kidney disease from the age of 17. He would have given anything to have good health up to and including being bald as a cue ball if it meant not having to go through catheterization, surgeries, near death, and dialysis and he would in no way at all risk a new transplant by giving himself a disease just so he could have hair. I have a friend whose daughter has Lupus and has almost died from it more than once. Her alopecia because of it is the least of her concerns, and if a doctor told her they could cure the Lupus and make her completely healthy but she wouldn't have any hair, she would continue wearing a wig and take the treatment. I stand by my statement; I am not willing to risk otherwise good health just to have hair growing out of my head. I've been a caregiver and I have seen people I love wish for the same good health you want to sacrifice just so you can have hair. There are some trade-offs that are not worth what you think you're going to get in return. And for the record, if you have hurt or impaired lungs, you won't be walking very far for very long.
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Honestly you sound dead to me. Its like everyone around you died so you dont have strength anymore. If its just hair than snatch that wig off and then live through the pain. I believe its taking you 40 plus years to see that because youve trickex yourself into thinking you have gotten over this but thats not getting through. You are still avoiding the obstacle. Its like a burn victim who wants wear a mask thinking cosmetic surgery isnt an option or it will hurt you. Your already hurt thats why you wear the mask. Your just hiding it from the world but you cant run from yourself. I believe you can learn more about the struggle you have and face the world and yourself without that mask. But its tough to live day in and out in your raw form. And im not trying to kill myself with some deaddly disease. But maybe small dosage with some other agent will cause an effect. Its just white blood cells attacking hair follicles. Get them to attack the alopecia and bam. Hair grows. But if dont understand you cant change jack. How are you gonna sit there and say its just hair with a wig on. Stop it. 40 years. Come on.
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Buying good health is perception. Your point of view is like "i dont wanna eat meat but i will still eat tofu that taste like it and prentend im eating meat". Would you give children soda that taste like beer. All your doi g is tricking yourself. Thats a way of coping. Buts thats your choice.
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Yes, it is my choice. It's much better and easier to learn through example instead of experience, but I had to experience things both pleasant and unpleasant to figure that out. Good luck with your choice; hopefully you won't have to deal with unfortunate consequences and look back on them in hindsight wishing you'd done something different.
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No, your right i will not stop fighting until my effort creates an impact even in the smallest way. Whether i fail or succeed i will have no regrets. And i will be able to look myself in the mirror in my raw condition knowing i never quit. And maybe one day our disease will not be a struggle. Things will change as they always do.
Respectfully though; if beauty is only skin deep then why to do you wear a wig?
You dont have to answer that to me. But my opinion is that everything we concieve is in our minds connected to our emotions. We all care about what people think about us aswell as what we think of ourselves.
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Because I live in the real world that ostracizes bald women. I have to work, and I'm not so naive as to believe that not wearing one won't cost me employment, either through being a distraction or because a hiring manager has a problem with it. I pick my battles, and I'm enough of a realist to know it's pointless to win a battle and lose the war.
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That is pure bullcrap. Their are women who dont get jobs because of how dark their skin is or because their very unattractive. Are telling me that the dark skin girl should be a realist and accept racist ass employers opinion. That girls coping is now bleaching her skin to fit in with jerks who dont respect her for who she is. An unattractive womens coping would be a boob job that unless she lets show with revealing clothes, she wont have a good chance getting that position. Thats sad and pathetic. If you were a realist then you realize that what you are doing maintains and could cause more pain to you and only you. You will never be at the point achieving some REAL self respect. But you will say what i am doing is irrational. You live a LIE. Im strong enough to go without but i definitely want the real thing and i am willing to put forth effort to have it.
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