confused with how to react?? - Alopecia World2024-03-28T09:22:25Zhttps://alopeciaworld.com/forum/topics/confused-with-how-to-react?feed=yes&xn_auth=noMy daughter just developed al…tag:alopeciaworld.com,2009-03-15:2022678:Comment:2484282009-03-15T10:45:32.443Zerrantpigeonhttps://alopeciaworld.com/profile/errantpigeon
My daughter just developed alopecia last week.<br />
The only thing I feel able to say right now is that I am sorry that you are feeling this way and you're right. It's not fair. Your feelings are important and valid.<br />
I know it can be helpful for some people at various points in their personal journeys to reflect on how their situation is really 'better' than others, and that they are 'lucky' it's not worse. But this doesn't negate or invalidate your honest and real feelings. I hope we wouldn't say…
My daughter just developed alopecia last week.<br />
The only thing I feel able to say right now is that I am sorry that you are feeling this way and you're right. It's not fair. Your feelings are important and valid.<br />
I know it can be helpful for some people at various points in their personal journeys to reflect on how their situation is really 'better' than others, and that they are 'lucky' it's not worse. But this doesn't negate or invalidate your honest and real feelings. I hope we wouldn't say to a person who lost a leg "just think how lucky you are that you didn't lose <i>both</i> legs!" If that person can come to that perspective on her own and that is her way of coping, then great, but I think it's dismissive to make such a comment to someone else and expect her to feel better for it.<br />
So all that is to say I'm sorry and it's not fair. You are feeling what you feel…tag:alopeciaworld.com,2009-02-25:2022678:Comment:2356852009-02-25T02:02:16.610ZTed Michael Morganhttps://alopeciaworld.com/profile/TedMichaelMorgan
You are feeling what you feel. You are being honest with yourself. My longings come in other ways, but I feel pain about my own unfulfilled desires--to look other than I do, to realize dreams other than those I have realized so far. Keep being honest with what you feel and what you desire.
You are feeling what you feel. You are being honest with yourself. My longings come in other ways, but I feel pain about my own unfulfilled desires--to look other than I do, to realize dreams other than those I have realized so far. Keep being honest with what you feel and what you desire. Hey Stephani,
I completely e…tag:alopeciaworld.com,2009-02-25:2022678:Comment:2356232009-02-25T00:33:25.831ZDominiquehttps://alopeciaworld.com/profile/Dominique
Hey Stephani,<br />
<br />
I completely empathise with what you're going through. I've been bald since I can remember, and I'm now 23 years old.<br />
<br />
I went through some really hard periods when I was a teenager, hiding under hats, not knowing whether to take it as a compliment that people couldn't imagine me any other way. If your hair grows back - people won't like you less. I sometimes find it helpful to turn that around and challenge the thought - for example - would you think worse of your friend if they…
Hey Stephani,<br />
<br />
I completely empathise with what you're going through. I've been bald since I can remember, and I'm now 23 years old.<br />
<br />
I went through some really hard periods when I was a teenager, hiding under hats, not knowing whether to take it as a compliment that people couldn't imagine me any other way. If your hair grows back - people won't like you less. I sometimes find it helpful to turn that around and challenge the thought - for example - would you think worse of your friend if they lost their hair and chose not to wear a wig (or did something that changed their outwards appearance?) The answer is probabaly no - they'd still be your close friend. So - it is unlikely they would treat you any differently.<br />
<br />
Your self esteem and confidence will return... Going through what we all have around here - usually makes you a really strong person - and most people are alot stronger than they think they are. You've gotten this far - it's a daily decision to step out of the house in the morning and challenge the world to open their eyes to the diversity of humanity. You're probably at the point where it's automatic now... like me ... but tis still a decision and challenge you take up every day.<br />
<br />
One thing I've done in the past to boost my self confidence was getting a friend to do a photo shoot of me. Nothing better than having beautiful photos of yourself to look at. It also through me out of my comfort zone - which is a great way to force yourself to look at your personality and who you are and realise how incredible and unique you are.<br />
<br />
<br />
I recently bought my first wig - and your words:<br />
"somehow i love being unique and when i wear it and i fit in the crowd it drives me crazy inside and i cant deal with it" - struck me as so true. I'm so used to people doing a double take, or looking at me with curiosity - that when they don't - It feels really really weird to not be noticed. I barely wear my wig now - it makes me more self concious than not, and isn't worth it.<br />
<br />
Those days you wake up and want hair - they are tough. I dont' think (for me at least) those days have anything to do with people outside of you - they are just a 'This is not fair! I want hair, for me! -- It almost just this unquenchable desire to touch, brush, play with and own your own head of hair. An experience you've never had, but that you really want. There is nothing to substitute it (even the best wigs).<br />
<br />
*hugs* You were okay once, you will be again. Listen to your friends/family when they say you are beautiful - they know you better than anyone. When they say they can't imagine you any other way - think rationally about it - remember when you first put on a wig - how bizarre it looked to have something around your face - they're just trying to express that they love you exactly the way you are - and perhaps can't understand how you can feel so strongly about something they take for granted.<br />
<br />
ahh.. hun. What you have said resonates so strongly with my own fears and concerns from a few years past. Hang in there. hello there to you stephanie,…tag:alopeciaworld.com,2009-02-24:2022678:Comment:2352632009-02-24T08:53:15.254ZBuddy Daniels Friedmanhttps://alopeciaworld.com/profile/BuddyDanielsFriedman
hello there to you stephanie, Buddy is the name and I understand your inner feeling as you are expressing it, I go thru it too. It has been since I was 36 that in 3 month I was A.U. BACK IN 1985, I am 60 now look a lot younger than the other 60 year old friends, but it is ok, I have learned to cope with it and all the feelings that come with it. All I can say is when we want hair we just have to put it on and get on with it, i DO THIS THING IN MY HEAD WHEN THINGS GET TO MUCH, here it is..... I…
hello there to you stephanie, Buddy is the name and I understand your inner feeling as you are expressing it, I go thru it too. It has been since I was 36 that in 3 month I was A.U. BACK IN 1985, I am 60 now look a lot younger than the other 60 year old friends, but it is ok, I have learned to cope with it and all the feelings that come with it. All I can say is when we want hair we just have to put it on and get on with it, i DO THIS THING IN MY HEAD WHEN THINGS GET TO MUCH, here it is..... I DO THE PROCESS REMOVE THE EMOTION, sounds easy, & when you do it enough it works , & I just get on with it & get more done.<br />
I would like to add you to my list of friends would you do that?<br />
Thanks Buddy I hope to add more picyures soon. Sometimes people don't have a…tag:alopeciaworld.com,2009-02-16:2022678:Comment:2291012009-02-16T04:04:41.723ZTallgirlhttps://alopeciaworld.com/profile/Tallgirl
Sometimes people don't have a clue what to say so they mumble out anything or miss the point. They like to hear themselves talk, and feel like noble Florence Nightengales when they think they have said something medical or helpful. But very few of US know anyone else with Alopecia, so those haired people are even MORE clueless. Just keep coming on this site to really talk, and politely ignor those who say hurtful things. They will only be informed of the conditions that actually affect their…
Sometimes people don't have a clue what to say so they mumble out anything or miss the point. They like to hear themselves talk, and feel like noble Florence Nightengales when they think they have said something medical or helpful. But very few of US know anyone else with Alopecia, so those haired people are even MORE clueless. Just keep coming on this site to really talk, and politely ignor those who say hurtful things. They will only be informed of the conditions that actually affect their own family members or themselves. You do your own self affirmation, because they don't know how. Stephaine,
I can totally rela…tag:alopeciaworld.com,2009-02-15:2022678:Comment:2285502009-02-15T02:29:56.461ZZoeyhttps://alopeciaworld.com/profile/Zoey
Stephaine,<br />
I can totally relate- I always want hair and wonder why me. Why did this happen to me.. But, we have to try and think of the positives.<br />
I wish I had the courage is go without my hair outside, I either wear my scarves or my wigs outside. I can not manage to go without my wig. (I know I need help)<br />
But, we all struggle all the time, we just need to keep positive thougths :o)
Stephaine,<br />
I can totally relate- I always want hair and wonder why me. Why did this happen to me.. But, we have to try and think of the positives.<br />
I wish I had the courage is go without my hair outside, I either wear my scarves or my wigs outside. I can not manage to go without my wig. (I know I need help)<br />
But, we all struggle all the time, we just need to keep positive thougths :o) hey steph, you r cool no matt…tag:alopeciaworld.com,2009-02-14:2022678:Comment:2284192009-02-14T22:15:22.932ZSharanhttps://alopeciaworld.com/profile/Sharan
hey steph, you r cool no matter what and if you did have hair, you would have to consider cut, colour, washing, conditioning, gel or mousse, straightening spray, hairdryer, straightening irons, brushes and combs, clasps and bobbles omg I loove my smooth, uncomplicated life. Stay positive and be kind to yourself. My mum really loves me wearing a wig but I have stopped cause I dont. I used to wear one to please her but that done me no good whatsoever. Be who you are, Im a very proud alopecian.
hey steph, you r cool no matter what and if you did have hair, you would have to consider cut, colour, washing, conditioning, gel or mousse, straightening spray, hairdryer, straightening irons, brushes and combs, clasps and bobbles omg I loove my smooth, uncomplicated life. Stay positive and be kind to yourself. My mum really loves me wearing a wig but I have stopped cause I dont. I used to wear one to please her but that done me no good whatsoever. Be who you are, Im a very proud alopecian. I know what it is like when I…tag:alopeciaworld.com,2009-02-07:2022678:Comment:2233892009-02-07T22:53:28.610Zjackiehttps://alopeciaworld.com/profile/jackiejaonis
I know what it is like when I can only see the thing that I don't have-it can drive me crazy and no matter what other people say it doesn't make it ok! I hate that anyone has to go through what you are going through. I hate that the society we live in thinks anything of it. I know though that some of us are meant to be teachers. About how we are not the hair or body or thing that we wear...you have been teaching for a long time. I see your pics and you are a beautiful girl. I bet you some of…
I know what it is like when I can only see the thing that I don't have-it can drive me crazy and no matter what other people say it doesn't make it ok! I hate that anyone has to go through what you are going through. I hate that the society we live in thinks anything of it. I know though that some of us are meant to be teachers. About how we are not the hair or body or thing that we wear...you have been teaching for a long time. I see your pics and you are a beautiful girl. I bet you some of those that are telling you with good intentions that you are more beautiful without hair are somewhere deep down envious of you...look around, I have noticed that there are allot of bad hairdo's out there. I hope knowing that most of us are feeling crazy inside helps you cause if it isn't our hair it is our nose or teeth or big bellies...I am thinkin' about you....Jackie UPENN research currently unde…tag:alopeciaworld.com,2009-02-07:2022678:Comment:2233382009-02-07T21:13:03.376ZBaldGirlsDoLunch.orghttps://alopeciaworld.com/profile/BaldGirlsDoLunchInc
UPENN research currently under commercial investigation by venture capitalists in Follica is in no way applicable to alopecia areata.
UPENN research currently under commercial investigation by venture capitalists in Follica is in no way applicable to alopecia areata. I would say that the technolo…tag:alopeciaworld.com,2009-02-07:2022678:Comment:2233182009-02-07T20:56:44.064ZJanehttps://alopeciaworld.com/profile/Jane
I would say that the technology available to us now and impending future should provide some relief. But, in the mean time I would suggest investing in a human-hair wig to transition into advanced treatment. Don’t allow yourself to be upset by superficial effects of your hairloss, it does not diminish you in any way and as we now know, is only a fleeting thing.<br />
<br />
The UPenn follicular regeneration treatment seems like it would be ideally suited to you once/as it becomes available.<br />
<br />
Take care.
I would say that the technology available to us now and impending future should provide some relief. But, in the mean time I would suggest investing in a human-hair wig to transition into advanced treatment. Don’t allow yourself to be upset by superficial effects of your hairloss, it does not diminish you in any way and as we now know, is only a fleeting thing.<br />
<br />
The UPenn follicular regeneration treatment seems like it would be ideally suited to you once/as it becomes available.<br />
<br />
Take care.