From Totally Bald to Hair Regrowth in One Month! (UPDATE: Six Month Regrowth Pictures)

I first noticed my hair falling out in the spring of 2009.Being a black woman who had been wearing braids off and on for many years, I thought braiding my hair too tight was the problem. I took out the braids but my hair continued falling out. I was diagnosed with Alopecia Areata a year later & given 5 weeks of Prednisone. Needless to say, that didn't help at all. As I continued losing hair I researched the different types of alopecia on the internet. When I started losing my eyebrows & eyelashes I knew I had Alopecia Universalis. I tried to decrease the stress in my life & kept praying that one day my hair would spontaneously grow back on its own. While on vacation last year I met a man with the same autoimmune disease who told me about Xeljanz. Finally! A cure!!! But the drug costs over $3000 a month and my insurance would not cover it. My cousin was familiar with the fact that there are discounts available for many expensive medications. I called Pfizer and found out they have a hardship program (Xelsource)for low income patients which allows you to receive Xeljanz ABSOLUTELY FREE!!! They will mail you two forms for you and your doctor to fill out and once it it is verified that your income is low enough and your insurance denies coverage they will Fed Ex Xeljanz directly to your home for FREE! They send you a 30 day supply (two small pills a day) each month. What has really inspired me are the photos of another AU sufferer whose hair started growing back after a month on Xeljanz. She has been on it 6 months now and recently had her first haircut in 4 years. She is sporting a cute, short hairdo. Check her out at Pikore.com the alopeciaexperience instagram. I just started Xeljanz 3 weeks ago on July 28th and hope to be posting pictures of my hair regrowth soon to share with all of you! UPDATE: Saw light blonde, spiky hairs on September 1st after one month on drug! Went to doctor this week and now have dark terminal hairs, mixed with blonde, on my scalp and eyebrow and eyelash regrowth. UPDATE: 3 months, hair getting darker and longer, eyebrows growing in on both sides, a few eyelashes on my left upper lid. See pictures below. UPDATE: 4 months, started taking Biotin and upped doseage to 3 Xeljanz a day. Tons of new growth in resistant bald patches and scalp hair is longer and darker. Eyelashes emerging from both sides. I bought my first mascara in 6 years. Waiting for a few more lashes on right side to use it. Have lots of eyebrows on both sides. Go see my doctors this week on Thursday. They will be TOTALLY shocked and amazed at my progress since last appointment in September. Keep the faith everyone. Xeljanz works!!! UPDATE: Third Doctors' Visit: My doctor's are at the Dermatoligy Clinic at the University of California, San Francisco (UCSF) Boy were my they EXCITED about all my hair growth during the last 3 months! The last time they saw me I had tiny white spiky peach fuzz, with a few dark terminal hairs mixed in. This time I have long dark patches of hair almost an inch long, with regrowth of about 80 percent of my scalp! In between the dark patches, I have short spiky blonde regrowth in my former bald spots. That regrowth is barely visible on camera right now but the doctors saw it and ran their fingers over my entire scalp. Two sets of doctors, nurses and residents came into the room at separate times because everyone could not fit into the examining room at once. Plus I brought a friend with AU and his parents with me to meet the doctor's. Everyone was laughing, happy and amazed at my growth. Each set of doctors took pictures of my complete scalp, eyebrows and eyelashes. The doctors want the pictures for a future Grand Rounds or Dermatology Conference so they can present my case to other doctors and medical students at the University. I'm so happy that my regrowth on Xeljanz will be used to give hope to others! More details below about my friend with AU who came with me to see the Clinic and meet the doctors.

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Xeljanzmiracle well done for this moderate regrowth!

It is not cosmetically acceptable yet but lets hope it will be in the future!

Do u use pulse doses of corticosteroids along with xeljanz?

No.

are you planning to carry on with this regimen?

Yes

There should be a way to boost results, such as doubling the daily dose or combine Xeljanz with corticosteroids, isn't it?

Everyone's progress is at a different rate depending on their background, genetics, rate of hair growth, etc. For example, I am a Black woman. My hair grows differently (out instead of down). So I don't expect my hair regrowth to look like others of different ethnicities. What may be "cosmetically unacceptable" to others is TOTALLY AMAZING to me and my friends. I started regrowing hair in a month while others on here are still waiting after many months. I'm blessed to be able to take 3 pills a day FOR FREE thru Pfizer's Hardship Program. It took me a year and a half to lose all of my hair initially, and I had ABSOLUTELY NONE FOR 6 YEARS, so I am VERY PLEASED with my results in 6 months on Xeljanz. So again, all of our circumstances are different. What are yours? Are you on Xeljanz? Considering it for yourself?

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how this work to get back hair what kind of med you use 

Jammy jamshid, go to the beginning of this thread to get the information you need.
I'm so happy that this works for you. I recently lost all of my hair and eyebrows n lashes and I am finding it so difficult to deal with. I live in South Africa ... Any idea how I can. Get my hands on this .. Any info will be greatly appreciated.
Sorry Roxy. I understand your pain and frustration. I don't know the availability of Xeljanz in South Africa. Call Pfizer and ask them.

Hello.

My name is Cindy. Four years ago I lost all of my thick curly hair followed by complete loss of body hair, including the hair in my nose and my ears. Needless to say, I was devastated. I had read about a Dr. Brett King at Yale New Haven and his success using Xeljanz on an AU patient who suffered from Psoriatic arthritis. They noticed that this young man had full regrowth of all of his body hair once he started this medication.. In addition to my AU, I have suffered from severe eczema since the age of 5. I have been on Prednisone, Metotrexate, Cyclosporin and a lifetime of meds. I wrote to Dr King and told him about my lifelong struggle with eczema. I had an appointment with him the next week despite thousands of people who reached out to him. Dr King specializes in treating recalcitrant skin disease. I started on Xeljanz after a big battle with my insurance company with the help of Dr. King and my children.I now have beautiful white hair on my head, my body hair has returned, including my eyelashes!!! In addition to which, my eczema is all but clear except for the occassional flares. Dr King saved my life. People do not understand the intense pain and suffering that eczema patients experience...and for the first time in my life, I feel comfortable in my own skin. I take 15 mg Xeljanz daily. On my last visit to Dr King, I asked if minded me sharing my story and he said of course because the more awareness we bring to this, the more people may get the desperate help that they need. I was worried about sharing for those who may not have access to this med but as the person above explained, Pfzier does have a patient assistance program. Dr King is the kindest, most compassionate Dr that I have ever had the pleasure of meeting. He literally saved my life and getting my hair back was just the icing on the cake. I wish you all the beat of luck!!! Never loose hope as this is just the beginning of what is to come!!!

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