Hi Good Positive People:)
Have you found that when you apply for studies on Alopecia of any kind, Areata, Totalis, and Universalis that if you've had the disorder for more than 5 years they exclude you from the study? It almost makes me feel hopeless and like me having to live like this doesn't impact me or my life. Why do they do this?
No didn't know that. No studies in my area, or should I say within a reasonable drive.
I’ve seen some studies requiring 7+ years
i guess it depends on the study
I'd be curious to see those. I would love to participate in one
Hello, I think you should give them proof of your good cause. After 5 years is a serious time. Frankly speaking, you should connect with my friend from https://ca.edubirdie.com/college-paper-writing-services, he knows a lot about these problems
Hey Thanks Karian!
I forgot to add that this man's hair grew back quite quickly (months).
Dreamscometrue, I am dancing on air for you!! Thirty years is a long time to have to deal with this rotten disease, and I wish you nothing but the absolute best.
Thank you! Oh yes, its been quite the journey; the depression, isolation, the hopelessness, having to explain I'm not infectious, the gamut goes on and on. Its tough to deal with this and its even tougher thinking there's no hope. I do see a glimmer of light, and I often wonder if I do get my hair back, will I recognize myself as I was before
Yes, it is quite a journey. One of the hardest parts for me has always been dealing with the idiotic comments people make (e.g., "It's only hair. At least it's not life-threatening", etc.). I try to tell myself that they are only trying to make me feel better, but I honestly think they are really trying to make themselves feel better! Truthfully, people like us with AU are a vivid reminder to them of the fear of their own vulnerability, and they would rather not think about that. Yet these same people are very sympathetic to cancer victims who lose their hair (TEMPORARILY) due to chemo. I find it appalling that insurance companies will pay for wigs for cancer patients' TEMPORARY hair loss, but will often not cover wigs for alopecia areata patients' LONG-TERM (sometimes PERMANENT) hair loss. We have a disease-a very real disease-and until insurance companies and society in general are forced to are recognize that, a cure or effective treatment to control that disease will be slow in coming. Again, please please keep us all posted on your hair regrowth.