All Discussions Tagged 'self' - Alopecia World2024-03-28T19:24:47Zhttps://alopeciaworld.com/forum/topic/listForTag?tag=self&feed=yes&xn_auth=noWhat is it like living with Alopecia?tag:alopeciaworld.com,2020-03-25:2022678:Topic:17379842020-03-25T02:55:31.290ZGabehttps://alopeciaworld.com/profile/Cheltenham
<p>I own the lifestyle brand <a href="https://www.cheltenhamave.com/about" rel="noopener" target="_blank">Cheltenham Ave</a> centered around living well with alopecia. (Titled after the street I lived on when I was diagnosed.) One of the most popular questions I see is "What is it like living with alopecia". If anyone is interested please reply to this post and I will use your reply in the blog post I'm creating. Think Buzzfeed style - with your reply and an image or gif.</p>
<p>If you'd like…</p>
<p>I own the lifestyle brand <a href="https://www.cheltenhamave.com/about" target="_blank" rel="noopener">Cheltenham Ave</a> centered around living well with alopecia. (Titled after the street I lived on when I was diagnosed.) One of the most popular questions I see is "What is it like living with alopecia". If anyone is interested please reply to this post and I will use your reply in the blog post I'm creating. Think Buzzfeed style - with your reply and an image or gif.</p>
<p>If you'd like to be a part of changing the narrative from "suffering with" alopecia to "living well with" alopecia reply with:</p>
<p></p>
<p>1. Your answer to the question " what is it like living with alopecia?" </p>
<p>2. Current Age</p>
<p>3. Type of alopecia you have </p>
<p>4. First name </p>
<p>5. optional: social media handle (Twitter, Instagram, blog site, etc.) </p>
<p></p>
<p><strong>Example: Living with alopecia has been a journey of self-love and finding the perfect lightweight beanie. - Gabe, (26) Alopecia Areata, <a href="https://www.instagram.com/beanie_og/" target="_blank" rel="noopener">@beanie_og</a></strong></p>
<p><strong>Example: Living with alopecia is a 0 min morning hair routine.</strong></p>
<p><strong> </strong></p>
<p>Thank you!</p>
<p>(By replying to this you're allowing me permission to post.)</p> 5 years with alopecia, looking back on my first post heretag:alopeciaworld.com,2017-08-08:2022678:Topic:13885842017-08-08T17:05:22.560ZKeshiahttps://alopeciaworld.com/profile/Keshia
<p>Hey everyone, </p>
<p>I just looked back on my first post here and guess what it said: </p>
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<p>"<span>Really struggling tonight, looking back at me before I lost my hair, and I was so damn beautiful I can hardly believe it. I feel like growing hair is like winning the lottery... does anyone know if people who have been completely bald have grown their hair back? I feel incomplete... I am afraid to go ahead with life, I feel fake without hair."</span></p>
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<p><span>I can't…</span></p>
<p>Hey everyone, </p>
<p>I just looked back on my first post here and guess what it said: </p>
<p></p>
<p>"<span>Really struggling tonight, looking back at me before I lost my hair, and I was so damn beautiful I can hardly believe it. I feel like growing hair is like winning the lottery... does anyone know if people who have been completely bald have grown their hair back? I feel incomplete... I am afraid to go ahead with life, I feel fake without hair."</span></p>
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<p><span>I can't believe I ever felt that way. Alopecia has changed my life in ways I never thought possible. I wouldn't ever go back to having hair if given the option. Alopecia has taught me to embrace myself, and my body, in ways I never thought possible with hair! </span></p>
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<p><span>To those of you new to Alopecia... DO NOT FEAR IT. Grieve. Feel the loss. But know that better things are coming. It's all in your support systems, the way you view yourself, and having bald role models (that really helped me). </span></p>
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<p><span>SO MUCH LOVE TO YOU! Message me any time!</span></p>
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<p><span>Keshia</span></p> Why are some women so unwilling to accept that some men are just no good?tag:alopeciaworld.com,2012-09-17:2022678:Topic:9689302012-09-17T19:00:18.893ZLilyBell*Murphy'sLawLuvsMehttps://alopeciaworld.com/profile/lilybell
<p>It never fails to amaze me that even when someone finds out that a man is of bad moral character –they will still defend him.</p>
<p>WHY? Is it because they are so blinded by his BS? Is because they are so desperate for male attention that they are willing to lower their standards in order to have some, MAKE THAT ANY male attention – no matter how unworthy that man is? Does being a female suffering with hair loss make us more vulnerable to these men, more accepting of these men who are far…</p>
<p>It never fails to amaze me that even when someone finds out that a man is of bad moral character –they will still defend him.</p>
<p>WHY? Is it because they are so blinded by his BS? Is because they are so desperate for male attention that they are willing to lower their standards in order to have some, MAKE THAT ANY male attention – no matter how unworthy that man is? Does being a female suffering with hair loss make us more vulnerable to these men, more accepting of these men who are far than being ‘desirable partners’ or even worthy friends?</p>
<p>Do we females with hair loss settle for these frogs?</p>
<p>Why are some females so willing to listen to the lies and misrepresentations of such men? Why so quick to defend those men?</p>
<p>Why do some women even turn on other women who have been hurt by such men – refusing to believe bad things happened to these women?</p>
<p>I don’t get it.</p>
<p>If one woman calls you a jackass, ignore them, but if 5 women call you a jackass, make an appointment with the tack shop and get fitted for your saddle.</p> Online dating - Just a reminder and just my opiniontag:alopeciaworld.com,2012-08-20:2022678:Topic:9600532012-08-20T19:48:40.907ZLilyBell*Murphy'sLawLuvsMehttps://alopeciaworld.com/profile/lilybell
<p>In this day and age it is never a bad idea to be ‘too careful’. This site is a support site for those of us who are experiencing hair loss or who are close to someone that is experiencing hair loss. This is not a ‘dating site’ but yes some on here do meet others that they desire to get to know better.</p>
<p>I know of one couple that met through this site that appears to be a ‘success story’. But , bear in mind that when someone’s self-esteem is suffering, whether it be from hair loss, or…</p>
<p>In this day and age it is never a bad idea to be ‘too careful’. This site is a support site for those of us who are experiencing hair loss or who are close to someone that is experiencing hair loss. This is not a ‘dating site’ but yes some on here do meet others that they desire to get to know better.</p>
<p>I know of one couple that met through this site that appears to be a ‘success story’. But , bear in mind that when someone’s self-esteem is suffering, whether it be from hair loss, or growing older, or weight issues, issues of abandonment, etc. some men are drawn to those women, and not all of those men are kindly men who desire to understand and perhaps help such women.</p>
<p>Some men like, no make that NEED, a woman to have self-esteem issues as a way to control that woman, to keep her off balance, to implement their will over her. That man probably deep down has his own self esteem issues and uses yours to make himself feel better. That man can be a dangerous person to those of us who have low self-esteem, making a bad issue a gut wrenching, awful experience – and one which may take a long time to get over. They seem so normal at first, kind, funny, wanting you to share your insecurities while carefully guarding their own.</p>
<p>They seem charming and flatter you – until you get to know the ‘real them’. They are insidious – before you know it you have feelings for them and you can’t understand where that caring person that you first encountered went to, and long to get ‘that person’ back. Some men are better at this ‘dance’ then others – they will reel you back into the relationship by reverting to that kind person – then once they feel you have reconnected they go back to who they really are. This keeps you constantly off balance and that makes you much more easy for them to control you and the situation. If you wonder where that ‘kind, loving man you first ‘met’ went - the answer is, he was never that man to begin with.</p>
<p>Did I meet such a person, yes, but not on this site. I met them in the ‘real world’. Imagine how much easier it is to deceive on a computer where you cannot see their facial expressions, or read their sensitivity level. Yes I was taken in by one such man who targeted me and my low self-esteem and that ‘experience’ left a permanent mark on my psyche. BTW this happened to me when I had a full head of hair - from all outward appearances there was no reason for him to suspect I had low self-esteem, I was never lacking for male attention, was told often by others I was attractive (although I never believed them), I did not think I had any outward ‘signs’ my self-esteem was not good – and yet HE could tell, because HE knew what to look for, because HE was a predator who carefully culled women like me, because he would only be interested in a woman who did have low self-esteem. It took a while, a long while for him to reveal his true self – predators are often skilled at such ‘hiding’.</p>
<p>As a side note, I eventually did meet a man who is caring and loving and who has NEVER used my insecurities against me and for him. Was it hard to let him into my life – you bet it was. Was I guarded- yeap – and I explained to him why. He understood and was willing to go at my pace. Eventually I realized I could trust him. Do I still have self-esteem issues? Yeap, I still do, although they are getting better despite my continued hair loss. He often tells me I am beautiful and that he is lucky to have me and usually I just say a polite ‘thank you’ – which he never accepts – he says he will continue to tell me until I finally realize it myself. He jokes when I do – watch out! – he will take credit for ‘creating a monster’ of self-esteem which always makes me laugh. Actually, I am the lucky one. Sure we have other issues to deal with – just like any other couple – but he is a good man – and good men, while out there, are hard to find. There are a lot of toads pretending to be good men. Don’t kiss them thinking they will somehow magically turn into a prince. It just does not work that way.</p>
<p>So be careful, look for signs early on – listen to that little inner voice that is telling you something is off. Do not trust blindly but rather make him earn your trust. And be safe.</p>