All Discussions Tagged 'loss' - Alopecia World2024-03-28T23:24:23Zhttps://alopeciaworld.com/forum/topic/listForTag?tag=loss&feed=yes&xn_auth=noIs This "The Cure" We've All Been Waiting For?tag:alopeciaworld.com,2022-08-30:2022678:Topic:19612052022-08-30T02:57:21.558ZAlopecia Worldhttps://alopeciaworld.com/profile/alopeciaworld
<p><span style="font-size: 18pt;"><strong>The Key to Locks: Columbia Team’s Breakthrough Led to Hair Loss Treatment</strong></span></p>
<p><span style="font-size: 12pt;">By Alan Dove</span></p>
<p><span style="font-size: 12pt;">For over a decade, Columbia geneticist Angela Christiano, PhD, has attended the annual meeting of the National Alopecia Areata Foundation, where hundreds of individuals affected by the hair loss disorder gather to support one another and learn about the latest scientific…</span></p>
<p><span style="font-size: 18pt;"><strong>The Key to Locks: Columbia Team’s Breakthrough Led to Hair Loss Treatment</strong></span></p>
<p><span style="font-size: 12pt;">By Alan Dove</span></p>
<p><span style="font-size: 12pt;">For over a decade, Columbia geneticist Angela Christiano, PhD, has attended the annual meeting of the National Alopecia Areata Foundation, where hundreds of individuals affected by the hair loss disorder gather to support one another and learn about the latest scientific research. The meeting is a safe space where patients with alopecia, many of whom have lost all their hair, joyfully remove their wigs and head coverings for the three-day celebration, without fear of shame or judgment.</span></p>
<p><span style="font-size: 12pt;">But this year’s meeting was a bit different. Christiano had trouble recognizing conference attendees she’s known and worked with for years, because many of them now have full heads of hair.</span></p>
<p><span style="font-size: 12pt;">For people with alopecia areata, an autoimmune disease that can cause hair loss so complete that people even lose their eyebrows, the change in appearance was dramatic.</span></p>
<p><span style="font-size: 12pt;">It was also a direct result of Christiano’s groundbreaking research on the condition, which led the FDA in June to approve(link is external and opens in a new window) the first systemic treatment specifically developed for severe alopecia areata.</span></p>
<p><span style="font-size: 12pt;">“It’s a strange feeling. It’s what every geneticist dreams of, to find the genes for a condition and develop a treatment that can directly benefit patients. But it’s extremely rare that it actually works out that way,” says Christiano, who has studied alopecia areata for more than 20 years, motivated by her own bout with the disease.</span></p>
<p><span style="font-size: 12pt;"><a href="https://www.cuimc.columbia.edu/news/key-locks-columbia-teams-breakthrough-led-hair-loss-treatment" target="_blank" rel="noopener"><strong>Click here to continue reading...</strong></a></span></p>
<p></p>
<center><iframe src="https://www.youtube.com/embed/01woTEx3gqI?wmode=opaque" allowfullscreen="" width="560" height="315" frameborder="0"></iframe>
</center> AA and Statinstag:alopeciaworld.com,2021-07-18:2022678:Topic:19471002021-07-18T21:23:34.131Zbutchhttps://alopeciaworld.com/profile/butch
<p>This may be an old topic, but has anyone experience a corellation between taking a statin and AA-type hair loss? </p>
<p>This may be an old topic, but has anyone experience a corellation between taking a statin and AA-type hair loss? </p> "Shreya's Very Own Style" - a children's book about alopeciatag:alopeciaworld.com,2020-07-20:2022678:Topic:18613852020-07-20T05:07:06.722ZSuhani Parikhhttps://alopeciaworld.com/profile/SuhaniParikh
<p>I'm so excited to share that after two years of work, my debut children's book, "Shreya's Very Own Style" is now available for pre-order!</p>
<p></p>
<p>About: Though Shreya is a champion on the soccer field, the coolest scientist at her school and dances like a star, she just can't seem to figure out how else to style her hair. Afterall, how would she explain the patches on her head with no hair at all? "Shreya's Very Own Style" will start conversations about self-love and…</p>
<p>I'm so excited to share that after two years of work, my debut children's book, "Shreya's Very Own Style" is now available for pre-order!</p>
<p></p>
<p>About: Though Shreya is a champion on the soccer field, the coolest scientist at her school and dances like a star, she just can't seem to figure out how else to style her hair. Afterall, how would she explain the patches on her head with no hair at all? "Shreya's Very Own Style" will start conversations about self-love and inner-confidence and help spread awareness about alopecia among communities and schools. Recommended age: 4-9 years old</p>
<p></p>
<p></p>
<p><a href="http://www.raisemarigolds.com/shop" target="_blank" rel="noopener">Pre-order today!</a></p>
<p></p>
<p><a href="https://storage.ning.com/topology/rest/1.0/file/get/7032300285?profile=original" target="_blank" rel="noopener"><img src="https://storage.ning.com/topology/rest/1.0/file/get/7032300285?profile=RESIZE_710x" class="align-full"/></a></p> Alopecia/Hair Loss caused by Topamaxtag:alopeciaworld.com,2020-01-15:2022678:Topic:16768492020-01-15T04:23:03.282Zdnp224https://alopeciaworld.com/profile/dnp224
<p>Hi,</p>
<p></p>
<p>I recently tried Xeljanz for my diffuse alopecia, but it did not work for me and my doctor told me to stop using it. My next step is to go off my Topamax medication. 've been on topamax for approximately 12 years (for chronic headaches). Has anyone on here experienced hair loss from topamax? When I searched online I saw 100s of posts/articles on the issue. But was hoping to talk to someone about similar experiences.</p>
<p></p>
<p>Thanks!</p>
<p>Hi,</p>
<p></p>
<p>I recently tried Xeljanz for my diffuse alopecia, but it did not work for me and my doctor told me to stop using it. My next step is to go off my Topamax medication. 've been on topamax for approximately 12 years (for chronic headaches). Has anyone on here experienced hair loss from topamax? When I searched online I saw 100s of posts/articles on the issue. But was hoping to talk to someone about similar experiences.</p>
<p></p>
<p>Thanks!</p> Has anyone tried Cepharanthine, an approved medicine from Japan for alopecia?tag:alopeciaworld.com,2020-01-13:2022678:Topic:16748542020-01-13T08:43:27.661ZMarcia7854https://alopeciaworld.com/profile/Marcia7854
<p>Hi Everyone,</p>
<p>Has anyone heard of or better yet tried Cepharanthine to treat their hair loss? I've been reading a lot about Cepharanthine lately and it seems to be very popular in Japan but most people outside of Japan have not heard of it. Its approved by the Japanese ministry of health to treat alopecia. </p>
<p>It's available to order online without needing a prescription and it looks really good, but I just wanted to see if anyone has had any firsthand experience with…</p>
<p>Hi Everyone,</p>
<p>Has anyone heard of or better yet tried Cepharanthine to treat their hair loss? I've been reading a lot about Cepharanthine lately and it seems to be very popular in Japan but most people outside of Japan have not heard of it. Its approved by the Japanese ministry of health to treat alopecia. </p>
<p>It's available to order online without needing a prescription and it looks really good, but I just wanted to see if anyone has had any firsthand experience with it?</p>
<p></p>
<p>Please let me know :)</p> Really struggling with androgenetic alopecia/female-pattern baldness. Here's my story; please help :(tag:alopeciaworld.com,2019-08-27:2022678:Topic:15182782019-08-27T14:03:00.211ZBadgerhttps://alopeciaworld.com/profile/Badger
<p>I'm crying as I write this. I'm 24 and I'm losing my hair. And I'm sorry for the long post.</p>
<p>Although doctors have told me that it's a waste of time getting it officially confirmed, it seems more than likely that I have PCOS following an ultrasound last year.</p>
<p>At first I didn't think it was such a big deal, but then my hair started falling out last July.</p>
<p>It might even have been before that, as I was convinced that it was thinner, but I hadn't noticed any abnormal hair…</p>
<p>I'm crying as I write this. I'm 24 and I'm losing my hair. And I'm sorry for the long post.</p>
<p>Although doctors have told me that it's a waste of time getting it officially confirmed, it seems more than likely that I have PCOS following an ultrasound last year.</p>
<p>At first I didn't think it was such a big deal, but then my hair started falling out last July.</p>
<p>It might even have been before that, as I was convinced that it was thinner, but I hadn't noticed any abnormal hair shedding. But I went to my usual hairdresser and asked about it, and she admitted to me that yes, it did look thinner than normal. And throughout the whole of August, September (during which the family holiday was ruined as every time I swam in the pool, huge wads of hair would come out and tangle around everyone) and October, I felt like I was going mad as I tried to figure out what was causing it while constantly being told I was just being paranoid by my boyfriend and my family, who all said it was exactly the same as always, that I was just losing a bit more than normal because it was summer. It was so frustrating and heart-breaking that those closest to me simply denied what I knew to be true, and it was made even worse by the fact that my mum had severe shedding from antibiotics and hers came back so she believed she knew best and that mine would come back too, AND the fact that my sister had to undergo chemotherapy and lost all her hair (which has now grown back). I feel so superficial at times, complaining about my hair when she went through what she did, but I can't help it.</p>
<p>Anyway, I know myself, I know what's normal and what isn't. I went to the doctors and they all frowned and told me that PCOS doesn't cause hair loss (which made me lose total faith in them, as it does), but they agreed to refer me to a dermatologist, who thought it could be telogen effluvium, and so she prescribed me with Elocon. I used it religiously, and it did nothing to help the hair grow back.</p>
<p>I was then put on spironolactone as the same dermatologist grudgingly said it could be down to PCOS, but she wasn't sure. The spironolactone also did nothing except for making me pee loads and thus interrupted my sleep, as I couldn't take it during the day because of work. I stopped taking it.</p>
<p>Eventually my family and boyfriend admitted that they could now see the problem, that my hair was constantly covering everything around the house, clogging the hoover, etc etc., that my hair looked thin. It was a bit of a relief, but on the other hand it made me feel worse as maybe it was becoming noticeable to those who didn't even know what to look for.</p>
<p>I then saw a different dermatologist and she said it's definitely not telogen effluvium, that it's classic androgenetic alopecia despite it not being in my family, and basically to get over it and buy some minoxidil, and to also change my birth control pill as my idiot doctor had me on one that had androgens in it.</p>
<p>So I've changed the pill to Yasmin and my hair seems to be worse than ever, but I've been on it for less than a month so hopefully this will change. I just don't know where to go from here. I even had my hair cut for the first time in a year as I dreaded going, getting it cut a lot shorter, but it hasn't helped and it still lays flat and limp, without any of the lovely natural waves I had before.</p>
<p>I'm scared to start minoxidil because I don't want to have to do it for the rest of my life, I don't want to risk the side effects and to use chemicals every day on my body, and I'm dreading the initial shed period because I'm going to start a teaching course in a few weeks and I don't want the kids to notice and bully me.</p>
<p>I'm so scared about minoxidil but I also don't want to have to wear wigs, which I believe will inhibit my life in so many ways...I won't want to swim anymore, or go out in the rain or wind, go fishing, do any kind of exercise thanks to the unbearable heat underneath... They're just so uncomfortable.</p>
<p>I'm also worried my boyfriend will get so fed up of me complaining about the situation and feeling down so much that he'll just not be able to cope anymore. I know he won't leave me due to the hair loss itself; we got together just as it was starting, when the relationship was new and maybe not as strong as it is now, but he stayed knowing everything. I just feel so down some days, like I don't get enthusiastic to see him, I don't want to be affectionate, and I'm just trapped in my own world, thinking about my hair. It steals the focus from other things so much, things that I should be looking forward to or just boring work that I should be getting on with but can't.</p>
<p>No-one else around me really understands. They do their best but they don't get it, and I don't feel close enough or brave enough with my friends to tell them about it. They all have such beautiful hair and then there's me, feeling like some sort of skull from a horror movie with dead hair attached. Even if I told them, what can they do? They wouldn't understand it either.</p>
<p>I suppose the point of this post is like my own therapy, and I'd really like to hear from other people that have the same problem as me so that we can support one another. </p>
<p>If anyone has any tips or advice, please share.</p>
<p></p>
<p>Thanks for reading...</p>
<p></p> Androgenetic alopeciatag:alopeciaworld.com,2019-06-15:2022678:Topic:14784202019-06-15T15:12:58.054ZMilliehttps://alopeciaworld.com/profile/Millie882
<p></p>
<div>Hi everyone,</div>
<div>For my MSc in Psychology, I am exploring the lived experiences of women with androgenetic alopecia (or female pattern hair loss). The purpose of the study is to improve the understanding of the impact the condition has on womens' lives and, thereby, the support available. I am seeking a small number of participants to interview.<span> Interviews will last a maximum of one hour and can take place over Skype. </span></div>
<div>The study has full ethical…</div>
<p></p>
<div>Hi everyone,</div>
<div>For my MSc in Psychology, I am exploring the lived experiences of women with androgenetic alopecia (or female pattern hair loss). The purpose of the study is to improve the understanding of the impact the condition has on womens' lives and, thereby, the support available. I am seeking a small number of participants to interview.<span> Interviews will last a maximum of one hour and can take place over Skype. </span></div>
<div>The study has full ethical approval from my University in London and full details of the study can be provided on request. If you are female, between the ages of 18 and 52 and have lived with androgenetic alopecia for five years or more, please get in touch. Looking forward to hearing from you!</div> Why does my hair go thinner every day and getting damaged as well?tag:alopeciaworld.com,2019-01-30:2022678:Topic:14444842019-01-30T09:45:14.981ZMaira Rafiqhttps://alopeciaworld.com/profile/MairaRafiq
<p>I was taking too much due to some personal issue and due to this i was not taking proper diet and due to stress and insufficient diet my hair line is receding. I start losing my hair and I was very worried. I couldn't handle too much stress at a time. I was like a little baby crying. Then i visited doctor, he recommended me to take a hair treatment or a medicine treatment. I have a phobia of medicines but i was very afraid of hair treatment that may be it had a side effect so that left of my…</p>
<p>I was taking too much due to some personal issue and due to this i was not taking proper diet and due to stress and insufficient diet my hair line is receding. I start losing my hair and I was very worried. I couldn't handle too much stress at a time. I was like a little baby crying. Then i visited doctor, he recommended me to take a hair treatment or a medicine treatment. I have a phobia of medicines but i was very afraid of hair treatment that may be it had a side effect so that left of my hair may not be lost. But doctor told me its results and the process of treatment. He also told me that not to take stress anymore as i already suffered from it. What should i do? Is it ok to take some hair treatment?</p> Why my hair are going thin day by day and getting damaged?tag:alopeciaworld.com,2019-01-26:2022678:Topic:14434252019-01-26T09:51:13.845ZMaira Rafiqhttps://alopeciaworld.com/profile/MairaRafiq
<p>I don't know why I start losing my hair. My hair get damaged at the edges. Hair line is receding. I am taking too much stress for it and I am very worried about it. Please suggest me some solution of this problem. One of my friend suggest me to take some hair treatments and she told me different hair clinic and <a href="https://www.hairtransplantdubai.com/" rel="noopener" target="_blank">Hair Transplant Dubai</a> Clinic is one of them. I don't know em very confuse just suggest me something…</p>
<p>I don't know why I start losing my hair. My hair get damaged at the edges. Hair line is receding. I am taking too much stress for it and I am very worried about it. Please suggest me some solution of this problem. One of my friend suggest me to take some hair treatments and she told me different hair clinic and <a href="https://www.hairtransplantdubai.com/" target="_blank" rel="noopener">Hair Transplant Dubai</a> Clinic is one of them. I don't know em very confuse just suggest me something please!!! </p> Is scalp micropigmentation worth the price?tag:alopeciaworld.com,2018-05-24:2022678:Topic:14192212018-05-24T14:27:23.275Zlola_attaquehttps://alopeciaworld.com/profile/lolaattaque
<p>I used to think I was willing to pay anything to fix my thinning hair... I have androgenetic alopecia and have diffuse thinning around the top and sides of my head. Suffice to say that I am very unhappy with my hair. However, with those pigment products (caboki, toppik) I can get away with looking a bit better -i just hate the way they feel and i can't get them to sit quite right or really cover everything.</p>
<p>I got a consultation from Bravi for SMP. It would be about $5,000. Yikes!! I…</p>
<p>I used to think I was willing to pay anything to fix my thinning hair... I have androgenetic alopecia and have diffuse thinning around the top and sides of my head. Suffice to say that I am very unhappy with my hair. However, with those pigment products (caboki, toppik) I can get away with looking a bit better -i just hate the way they feel and i can't get them to sit quite right or really cover everything.</p>
<p>I got a consultation from Bravi for SMP. It would be about $5,000. Yikes!! I struggle with the feeling that it might boost my confidence enough, but can i justify that price?? I work in non profit so it's not like I have ample income. </p>
<p>What are your experiences with SMP?</p>