All Discussions Tagged 'awareness' - Alopecia World2024-03-28T12:15:00Zhttps://alopeciaworld.com/forum/topic/listForTag?tag=awareness&feed=yes&xn_auth=no"Shreya's Very Own Style" - a children's book about alopeciatag:alopeciaworld.com,2020-07-20:2022678:Topic:18613852020-07-20T05:07:06.722ZSuhani Parikhhttps://alopeciaworld.com/profile/SuhaniParikh
<p>I'm so excited to share that after two years of work, my debut children's book, "Shreya's Very Own Style" is now available for pre-order!</p>
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<p>About: Though Shreya is a champion on the soccer field, the coolest scientist at her school and dances like a star, she just can't seem to figure out how else to style her hair. Afterall, how would she explain the patches on her head with no hair at all? "Shreya's Very Own Style" will start conversations about self-love and…</p>
<p>I'm so excited to share that after two years of work, my debut children's book, "Shreya's Very Own Style" is now available for pre-order!</p>
<p></p>
<p>About: Though Shreya is a champion on the soccer field, the coolest scientist at her school and dances like a star, she just can't seem to figure out how else to style her hair. Afterall, how would she explain the patches on her head with no hair at all? "Shreya's Very Own Style" will start conversations about self-love and inner-confidence and help spread awareness about alopecia among communities and schools. Recommended age: 4-9 years old</p>
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<p><a href="http://www.raisemarigolds.com/shop" target="_blank" rel="noopener">Pre-order today!</a></p>
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<p><a href="https://storage.ning.com/topology/rest/1.0/file/get/7032300285?profile=original" target="_blank" rel="noopener"><img src="https://storage.ning.com/topology/rest/1.0/file/get/7032300285?profile=RESIZE_710x" class="align-full"/></a></p> What is it like living with Alopecia?tag:alopeciaworld.com,2020-03-25:2022678:Topic:17379842020-03-25T02:55:31.290ZGabehttps://alopeciaworld.com/profile/Cheltenham
<p>I own the lifestyle brand <a href="https://www.cheltenhamave.com/about" rel="noopener" target="_blank">Cheltenham Ave</a> centered around living well with alopecia. (Titled after the street I lived on when I was diagnosed.) One of the most popular questions I see is "What is it like living with alopecia". If anyone is interested please reply to this post and I will use your reply in the blog post I'm creating. Think Buzzfeed style - with your reply and an image or gif.</p>
<p>If you'd like…</p>
<p>I own the lifestyle brand <a href="https://www.cheltenhamave.com/about" target="_blank" rel="noopener">Cheltenham Ave</a> centered around living well with alopecia. (Titled after the street I lived on when I was diagnosed.) One of the most popular questions I see is "What is it like living with alopecia". If anyone is interested please reply to this post and I will use your reply in the blog post I'm creating. Think Buzzfeed style - with your reply and an image or gif.</p>
<p>If you'd like to be a part of changing the narrative from "suffering with" alopecia to "living well with" alopecia reply with:</p>
<p></p>
<p>1. Your answer to the question " what is it like living with alopecia?" </p>
<p>2. Current Age</p>
<p>3. Type of alopecia you have </p>
<p>4. First name </p>
<p>5. optional: social media handle (Twitter, Instagram, blog site, etc.) </p>
<p></p>
<p><strong>Example: Living with alopecia has been a journey of self-love and finding the perfect lightweight beanie. - Gabe, (26) Alopecia Areata, <a href="https://www.instagram.com/beanie_og/" target="_blank" rel="noopener">@beanie_og</a></strong></p>
<p><strong>Example: Living with alopecia is a 0 min morning hair routine.</strong></p>
<p><strong> </strong></p>
<p>Thank you!</p>
<p>(By replying to this you're allowing me permission to post.)</p> Teen With Alopecia Had Her Mom Paint Her Bald Head For Her Senior Photo Shoottag:alopeciaworld.com,2018-01-07:2022678:Topic:14073882018-01-07T20:55:14.298ZCheryl, Co-founderhttps://alopeciaworld.com/profile/cherylcarvery
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<p>"Madisyn Babcock was diagnosed with alopecia areata earlier this year and soon after, her hair began falling out. Alopecia areata is an autoimmune disease that causes hair to fall out in small, random patches. But Babcock decided to spread awareness about the disease by putting her bald head on display in a photo shoot."</p>
<p>"Not only did she bravely stand in front of the camera without any hair for her high school senior photo shoot, but she also had her artist mother paint…</p>
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<p>"Madisyn Babcock was diagnosed with alopecia areata earlier this year and soon after, her hair began falling out. Alopecia areata is an autoimmune disease that causes hair to fall out in small, random patches. But Babcock decided to spread awareness about the disease by putting her bald head on display in a photo shoot."</p>
<p>"Not only did she bravely stand in front of the camera without any hair for her high school senior photo shoot, but she also had her artist mother paint flowers on her scalp to draw even more attention to her head—making a bold and beautiful statement."</p>
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<p><a href="http://storage.ning.com/topology/rest/1.0/file/get/2059819242?profile=original" target="_self"><img src="http://storage.ning.com/topology/rest/1.0/file/get/2059819242?profile=original" width="526" class="align-full"/></a></p>
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<p>You can read more and see more of the photos <a href="https://www.simplemost.com/teen-alopecia-mom-paint-bald-head-senior-photo-shoot/?partner=raycom&utm_content=buffera4259&utm_medium=social&utm_source=facebook.com&utm_campaign=buffer" target="_blank" rel="noopener">here</a>.</p>
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<p>I think it is beautiful. What do you think?</p>
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<p>Source: Simplemost.com</p> Dr. Phil looking for guests with alopeciatag:alopeciaworld.com,2017-12-19:2022678:Topic:14050232017-12-19T19:56:00.964ZAlopecia Worldhttps://alopeciaworld.com/profile/alopeciaworld
<p><a href="https://plugger.drphil.com/plugger/respond/?plugID=17298" rel="noopener" target="_blank"><img class="align-right" src="http://storage.ning.com/topology/rest/1.0/file/get/2059819452?profile=original" width="212"></img></a> Dr. Phil McGraw, perhaps the most well-known mental health professional in the world, is the host of the #1 daytime talk show Dr. Phil.</p>
<p>Presently, he is looking for people who have been diagnosed with alopecia to tell their stories.</p>
<p>You must be willing to appear on the show.</p>
<p>Also...</p>
<p><strong>YOU MUST UPLOAD A CLEAR RECENT PHOTO OF YOURSELF…</strong></p>
<p><a href="https://plugger.drphil.com/plugger/respond/?plugID=17298" target="_blank" rel="noopener"><img width="212" class="align-right" src="http://storage.ning.com/topology/rest/1.0/file/get/2059819452?profile=original"/></a>Dr. Phil McGraw, perhaps the most well-known mental health professional in the world, is the host of the #1 daytime talk show Dr. Phil.</p>
<p>Presently, he is looking for people who have been diagnosed with alopecia to tell their stories.</p>
<p>You must be willing to appear on the show.</p>
<p>Also...</p>
<p><strong>YOU MUST UPLOAD A CLEAR RECENT PHOTO OF YOURSELF SMILING.</strong></p>
<p><strong>NO HATS, NO SUNGLASSES AND PLEASE BE SURE TO SMILE AND SHOW OFF YOUR PEARLY WHITES!</strong></p>
<p>If you are interested, <a href="https://plugger.drphil.com/plugger/respond/?plugID=17298" target="_blank" rel="noopener">please visit the following webpage</a> to submit your name, contact information, and other relevant details:</p>
<p><a href="https://plugger.drphil.com/plugger/respond/?plugID=17298" target="_blank" rel="noopener">https://plugger.drphil.com/plugger/respond/?plugID=17298</a></p>
<p>All the best,</p>
<p>Alopecia World Team <br/> <a href="http://www.alopeciaworld.com">www.alopeciaworld.com</a></p>
<p>"It's Hair Loss Support At Its Best"</p> NBA player makes movie about alopeciatag:alopeciaworld.com,2016-02-13:2022678:Topic:13033322016-02-13T02:33:19.813ZJerahttps://alopeciaworld.com/profile/jera
<p>“There are kids and adults that have committed suicide over this,” said Charlie Villanueva, the former Detroit Pistons forward who now is a reserve for the Dallas Mavericks.</p>
<p>“It’s not a life-threatening disease, that’s why a lot of people overlook it.</p>
<p>“But it’s life-threatening because, emotionally and mentally, it can screw you up with the bullying and not feeling confident and low self-esteem. It definitely has its downside.”</p>
<p>That’s why Villanueva has set out to…</p>
<p>“There are kids and adults that have committed suicide over this,” said Charlie Villanueva, the former Detroit Pistons forward who now is a reserve for the Dallas Mavericks.</p>
<p>“It’s not a life-threatening disease, that’s why a lot of people overlook it.</p>
<p>“But it’s life-threatening because, emotionally and mentally, it can screw you up with the bullying and not feeling confident and low self-esteem. It definitely has its downside.”</p>
<p>That’s why Villanueva has set out to educate people about alopecia. He has been afflicted with the disease, and is putting together a movie about how it has affected his life.</p>
<p>Villanueva has had two screenings — one in Dallas and another in New York — about the movie. A third screening will take place Sunday in Toronto, during the NBA’s All-Star Weekend.</p>
<p>By September, Villanueva hopes to have raised enough money to have the entire project finished and in movie theaters across the world.</p>
<p>Read more in the <a href="http://www.freep.com/story/sports/nba/pistons/2016/02/12/charlie-villanueva-alopecia-movie/80297304/" target="_blank">Detroit Free Press</a></p> What has your experience searching for a wig/wig stylist been like?tag:alopeciaworld.com,2015-08-03:2022678:Topic:12735912015-08-03T20:03:06.432ZtripleAhttps://alopeciaworld.com/profile/tripleA
<p>I have had AA since I was five, and then it turned into AT when I was 13, and now I have lost my eyebrows and am slowly losing my eyelashes too (yay!).</p>
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<p>I have been wearing wigs since I was a freshman in high school and feel like it's still a constant struggle to find one that works for me. Right now I have been spending around 2k for a new wigs every 12-14 months, with varying levels of success. And I know that there are a bunch of people on here that have been struggling as…</p>
<p>I have had AA since I was five, and then it turned into AT when I was 13, and now I have lost my eyebrows and am slowly losing my eyelashes too (yay!).</p>
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<p>I have been wearing wigs since I was a freshman in high school and feel like it's still a constant struggle to find one that works for me. Right now I have been spending around 2k for a new wigs every 12-14 months, with varying levels of success. And I know that there are a bunch of people on here that have been struggling as much as I have. And that's why I have started making a documentary about it.</p>
<p>I am traveling to India in September to where much of the hair is donated to make wigs, and where a lot of it is processed and sold (at an extremely high rate) to be made into wigs. When I come back, I will be interviewing people who sell and style wigs about their experience working with people with hair loss, and the frustrations they go through finding a good product that keeps their customers happy.</p>
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<p>Of course, the most important thing I need for this documentary is the stories of women who have been struggling with hair loss, only to have the added frustration of trying to find a good wig solution (if they choose to go that route). I also want to talk with people who have been able to make the choice to go au natural and not wear a wig at all!</p>
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<p>If you are interested in telling me your story, please let me know on here and I would love to learn more about it. Particularly if you live in a small town or city where it's hard to find anyone with any knowledge of wigs and wig styling/maintenance.</p>
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<p>I know that AlopeciaWorld is a very skeptical site that doesn't want their users to feel taken advantage of, so please trust me when I say that I just want help bringing my documentary to life, but it's very hard to find others in the Alopecia community in the real world, and I thought this site would be the best place to start!</p> Free alopecia awareness bracelettag:alopeciaworld.com,2013-11-08:2022678:Topic:11102532013-11-08T19:04:46.978ZPeggy Knighthttps://alopeciaworld.com/profile/PeggyKnight
<p>If you haven't already, head on over to <a href="http://peggyknight.com/alopecia-awareness-bracelets/" target="_blank">http://peggyknight.com/alopecia-awareness-bracelets/</a> for information on how you can receive a free Alopecia Awareness bracelet courtesy of Follea and Peggy Knight. (U.S. only)</p>
<p><span style="font-size: 13px;">Happy Friday everyone!</span></p>
<p>If you haven't already, head on over to <a href="http://peggyknight.com/alopecia-awareness-bracelets/" target="_blank">http://peggyknight.com/alopecia-awareness-bracelets/</a> for information on how you can receive a free Alopecia Awareness bracelet courtesy of Follea and Peggy Knight. (U.S. only)</p>
<p><span style="font-size: 13px;">Happy Friday everyone!</span></p> Alopecia Awareness on Radio Showtag:alopeciaworld.com,2013-05-11:2022678:Topic:10401892013-05-11T03:01:13.685ZDr. Linda Amersonhttps://alopeciaworld.com/profile/DrLindaAmerson259
<p>Hello everyone! I host a weekly radio show...Ask the Hair & Scalp Doctor...Weds from 11am cst to 12 noon (usually) sometimes I feature a 2 hour segment.</p>
<p>I am inviting all of you to please tune in to listen to my HOT guests on <a href="http://www.DfwiRadio.com">www.DfwiRadio.com</a>. The topics I discuss include: alopecia testimonials, nutrition, scalp disorders, image, beauty, etc.</p>
<p>Some of my previous guests who have shared their alopecia story include: Cheryl…</p>
<p>Hello everyone! I host a weekly radio show...Ask the Hair & Scalp Doctor...Weds from 11am cst to 12 noon (usually) sometimes I feature a 2 hour segment.</p>
<p>I am inviting all of you to please tune in to listen to my HOT guests on <a href="http://www.DfwiRadio.com">www.DfwiRadio.com</a>. The topics I discuss include: alopecia testimonials, nutrition, scalp disorders, image, beauty, etc.</p>
<p>Some of my previous guests who have shared their alopecia story include: Cheryl Carvey-Jones, Author-Sandra Dubose, Faith Renee Spells...more to come...Best Selling Author Pam Lemery-Fitros, Award Winning Author Jodi Pliszka on <span style="text-decoration: underline;"><span style="color: #888888;"><strong>May 15, 2013</strong></span></span> will tell her alopecia story.</p>
<p>I am seeking other alopecians who would be interested in being a guest on my radio show to tell your story, to help with Alopecia Awareness. All you need to do is call into the station 214 317 4855! If you are interested please contact me...dramerson@hairandscalpessentials.com and you may visit my website <a href="http://www.hairandscalpessentials.com">www.hairandscalpessentials.com</a>.<a href="http://storage.ning.com/topology/rest/1.0/file/get/2059818127?profile=original" target="_self"><img src="http://storage.ning.com/topology/rest/1.0/file/get/2059818127?profile=original" width="358" class="align-full"/></a></p> Alopecia support braceletstag:alopeciaworld.com,2012-10-08:2022678:Topic:9762112012-10-08T08:31:01.014ZVicki Sampsonhttps://alopeciaworld.com/profile/VickiSampson
<p>Hi all,</p>
<p>I really want to get hold of a few support wristbands for alopecia but am struggling to find any in the UK. Any one know where i can get some?</p>
<p>many thanks</p>
<p>vicki</p>
<p>Hi all,</p>
<p>I really want to get hold of a few support wristbands for alopecia but am struggling to find any in the UK. Any one know where i can get some?</p>
<p>many thanks</p>
<p>vicki</p> Alopecians and Trichsters on Youtubetag:alopeciaworld.com,2011-01-27:2022678:Topic:5477792011-01-27T15:56:45.545ZFrank Pratthttps://alopeciaworld.com/profile/FrankPratt28
I'll edit this discussion as time goes on and more alopecians and trichsters pop up on YT. Feel free to sub to them and encourage them.<br />
<br />
Alopecia<br />
<a href="http://www.youtube.com/user/CourtandiCamm">http://www.youtube.com/user/CourtandiCamm</a><br />
<a href="http://www.youtube.com/user/EliciaAlopecia">http://www.youtube.com/user/EliciaAlopecia</a><br />
<a href="http://www.youtube.com/user/timmycook11">http://www.youtube.com/user/timmycook11…</a>
I'll edit this discussion as time goes on and more alopecians and trichsters pop up on YT. Feel free to sub to them and encourage them.<br />
<br />
Alopecia<br />
<a href="http://www.youtube.com/user/CourtandiCamm">http://www.youtube.com/user/CourtandiCamm</a><br />
<a href="http://www.youtube.com/user/EliciaAlopecia">http://www.youtube.com/user/EliciaAlopecia</a><br />
<a href="http://www.youtube.com/user/timmycook11">http://www.youtube.com/user/timmycook11</a><br />
<a href="http://www.youtube.com/user/NaemiB">http://www.youtube.com/user/NaemiB</a><br />
<a href="http://www.youtube.com/user/Myshellybell">http://www.youtube.com/user/Myshellybell</a><br />
<a href="http://www.youtube.com/user/JoAnnGray">http://www.youtube.com/user/JoAnnGray</a><br />
<a href="http://www.youtube.com/user/crownedregal09">http://www.youtube.com/user/crownedregal09</a><br />
<a href="http://www.youtube.com/user/94gunsmoke">http://www.youtube.com/user/94gunsmoke</a><br />
<a href="http://www.youtube.com/user/HumblyBeautiful">http://www.youtube.com/user/HumblyBeautiful</a><br />
<a href="http://www.youtube.com/user/tmysx21">http://www.youtube.com/user/tmysx21</a><br />
<a href="http://www.youtube.com/user/ladisory">http://www.youtube.com/user/ladisory</a><br />
<a href="http://www.youtube.com/user/larabadiola">http://www.youtube.com/user/larabadiola</a><br />
<a href="http://www.youtube.com/user/jenniebabb">http://www.youtube.com/user/jenniebabb</a>