All Discussions Tagged 'Xeljanz' - Alopecia World2024-03-29T06:55:24Zhttps://alopeciaworld.com/forum/topic/listForTag?tag=Xeljanz&feed=yes&xn_auth=no33 years of AA fixed with Tofacitinib but symptoms stopped my progress now need to source 2% ointmenttag:alopeciaworld.com,2022-03-01:2022678:Topic:19558192022-03-01T21:01:42.628ZRob1969https://alopeciaworld.com/profile/Rob1969
<p>Hello, I am new to this forum, but not new to Alopecia. Having suffered since 20 years old.</p>
<p>I have not accepted my AA easily and have always been on the lookout for a solution. I went to see a private dermatologist around 5 years ago who told me of the research in progress with Tofacitinib, I kept checking in only to find it hadn't been approved for use in the UK, nevertheless I found I could buy it in India and proceeded to buy Pfizers Tofacitinib in 60 x 5mg tablets at $580 I was…</p>
<p>Hello, I am new to this forum, but not new to Alopecia. Having suffered since 20 years old.</p>
<p>I have not accepted my AA easily and have always been on the lookout for a solution. I went to see a private dermatologist around 5 years ago who told me of the research in progress with Tofacitinib, I kept checking in only to find it hadn't been approved for use in the UK, nevertheless I found I could buy it in India and proceeded to buy Pfizers Tofacitinib in 60 x 5mg tablets at $580 I was buying three tubs at a time and they would arrive in only a week. I took them to my dermatologist and he confirmed them to be legitimate. </p>
<p>I was surprised after only 3 weeks to start seeing progress and after 4 months I was looking a little messy but didn't want to shave it off it was far from hair but I did have a furry covering all over my head apart from very light that would indicate male pattern baldness on the top.</p>
<p>To those who are saying about getting monitored by their GP when they buy Tofacitinib privately your GP will not help you but a private hospital (I used BMI hospital and paid to see a Rheumatoid Arthritis expert as these are the consultants trained to prescribe Tofacitinib should help you. but finding the right one is hard. The reason mine helped was I told him I intended to take the medication regardless and I would prefer that I could monitor it than not, and wrote a letter confirming explicitly that no responsibility for my actions would be on the consultant and it was at my risk with or without his help that I would take the medication. He accepted this, though I guess many won't.</p>
<p>It was a shock that after 33 years it actually could be activated to grow, I had tried prednisolone a few times and with methotrexate prescribed but the results where bad and the weight gain was even worse.</p>
<p>With Tofacitinib the biggest problem was I gained three stone (45lb/20kg) in only 4 months and I could barely breath when going up stairs or walking. My wife said I looked terrible and ill and my kids where worrying. I wanted to be selfish to get my hair back but eventually gave in and come off the tablets. I lost two stone in two months and after only a couple of weeks my breathing was fine again.</p>
<p>I have resided to aim at getting tofacitinib ointment/cream and applying it for my eyebrows and beard area. If I could recover this area I would be happy enough.</p>
<p>My question is this, does anyone have any source or knowledge how to purchase Tofacitinib Ointment, I have only found one pharmacy online that sells it (in the USA) but they will not sell to me with an USA prescription, which I will possibly fly to the states to try to get privately if I have to.</p>
<p>If anyone has any info would appreciate, if anyone has any questions regarding my experiences wit Tofacitinib feel free to ask.</p>
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<p><strong>AW: Other discussions on Tofacitinib</strong></p>
<p><a href="https://alopeciaworld.com/main/search/search?q=Tofacitinib">https://alopeciaworld.com/main/search/search?q=Tofacitinib</a></p> Stopped Xeljanz and hairs are falling again. Need helptag:alopeciaworld.com,2021-12-21:2022678:Topic:19533522021-12-21T04:01:28.360ZSanhttps://alopeciaworld.com/profile/San489
<p>Hey guys! I cured my AU with generic Xeljanz in a short span and I was fine for few months. Later I started lowering my dosage and now my hairs are falling and I have huge patches. This is really heartbreaking to me. I'm losing confidence to face people again. Please help me. I'm currently on 20mg a day. Do you guys have experienced the same?</p>
<p>Hey guys! I cured my AU with generic Xeljanz in a short span and I was fine for few months. Later I started lowering my dosage and now my hairs are falling and I have huge patches. This is really heartbreaking to me. I'm losing confidence to face people again. Please help me. I'm currently on 20mg a day. Do you guys have experienced the same?</p> Tofajak tablets ?tag:alopeciaworld.com,2021-09-15:2022678:Topic:19489382021-09-15T08:22:11.576Zbabashantihttps://alopeciaworld.com/profile/babashanti
<p>Hello, i have a question that maybe someone can help with.</p>
<p>I have been offered some Tofajak tablets manufactured by Cipla and sold by LetsMeds pharmacy in india who say that they can ship to Germany and the rest of Europe for 100 USD per pack of 60 which seems very cheap,</p>
<p>So my question is are these the same as the Xeljanz ones and has anyone ever bought and had shipped to Germany/Europe successfully?</p>
<p>I have earlier tried from Beacon from Bangladesh but they didnt arrive…</p>
<p>Hello, i have a question that maybe someone can help with.</p>
<p>I have been offered some Tofajak tablets manufactured by Cipla and sold by LetsMeds pharmacy in india who say that they can ship to Germany and the rest of Europe for 100 USD per pack of 60 which seems very cheap,</p>
<p>So my question is are these the same as the Xeljanz ones and has anyone ever bought and had shipped to Germany/Europe successfully?</p>
<p>I have earlier tried from Beacon from Bangladesh but they didnt arrive because i guess of the customs in Germany, which was an expensive situation, anyway thanks all.</p>
<p></p> When Will XELJANZ Be Approved?!tag:alopeciaworld.com,2020-09-01:2022678:Topic:18936472020-09-01T16:45:48.089Zken123https://alopeciaworld.com/profile/kendall123
<p>Hey! Does anyone have any idea when Xeljanz will be FDA approved for Alopecia Areata? Thx in advance! </p>
<p>Hey! Does anyone have any idea when Xeljanz will be FDA approved for Alopecia Areata? Thx in advance! </p> Ordering from Bangladeshtag:alopeciaworld.com,2020-03-08:2022678:Topic:17234552020-03-08T20:35:48.614ZHollyann70https://alopeciaworld.com/profile/HollyCrawford
<p>Hi myself have had AU for over 10 years . And my daughter now has AA. I’ve seen many people talking about ordering from Bangladesh/ Beacon Pharmaceuticals. I have emailed and called for two weeks. Can anyone advise me as to how or who I should email directly? Do I need a prescription? I’m desperate. I also have seen posts that you can get three months free from Pfizer. Is that a simple process. Thanks so much! <br/>Holly </p>
<p>Hi myself have had AU for over 10 years . And my daughter now has AA. I’ve seen many people talking about ordering from Bangladesh/ Beacon Pharmaceuticals. I have emailed and called for two weeks. Can anyone advise me as to how or who I should email directly? Do I need a prescription? I’m desperate. I also have seen posts that you can get three months free from Pfizer. Is that a simple process. Thanks so much! <br/>Holly </p> Xejanz MA/RItag:alopeciaworld.com,2020-01-20:2022678:Topic:16807752020-01-20T15:30:13.400ZDavehttps://alopeciaworld.com/profile/Dave398
<p>Hello! I received a prescription for xejanz which became denied by insurance, which I expected. Is anyone in the MA / RI area that knows any doctors that can get around the insurance approval? Or anyways to get it? Thanks so much!</p>
<p>Hello! I received a prescription for xejanz which became denied by insurance, which I expected. Is anyone in the MA / RI area that knows any doctors that can get around the insurance approval? Or anyways to get it? Thanks so much!</p> Xeljanz for excessive shedding (AA Icognita)tag:alopeciaworld.com,2019-10-31:2022678:Topic:16030772019-10-31T18:57:21.496Zdnp224https://alopeciaworld.com/profile/dnp224
<p><span>I began Xeljanz for my Alopecia Areata Icognita 1 week ago. About how long have most of you gone before you noticed the medicine taking affect? When will my shedding slow down? REALLY hoping this medicine works for me.</span></p>
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<p><span>Thanks!!</span></p>
<p><span>Dana</span></p>
<p><span>I began Xeljanz for my Alopecia Areata Icognita 1 week ago. About how long have most of you gone before you noticed the medicine taking affect? When will my shedding slow down? REALLY hoping this medicine works for me.</span></p>
<p></p>
<p><span>Thanks!!</span></p>
<p><span>Dana</span></p> Anyone in Canada get their Tofacitinib covered by insurance??tag:alopeciaworld.com,2019-10-07:2022678:Topic:15701702019-10-07T22:50:57.973ZFingers_Crossedhttps://alopeciaworld.com/profile/NarNar
<p>I live in Canada and I am just wondering if anyone was able to get their insurance company to cover the cost of the medication and if so, how?? I am currently just paying out of pocket and the cheapest I could find was 1600$/bottle at Costco. </p>
<p></p>
<p>Any help is greatly appreciated :)</p>
<p>I live in Canada and I am just wondering if anyone was able to get their insurance company to cover the cost of the medication and if so, how?? I am currently just paying out of pocket and the cheapest I could find was 1600$/bottle at Costco. </p>
<p></p>
<p>Any help is greatly appreciated :)</p> Xeljanz Topical (Tofacitinib 2% Ointment) Online?tag:alopeciaworld.com,2019-06-07:2022678:Topic:14779632019-06-07T00:20:15.748ZBaldiehttps://alopeciaworld.com/profile/Baldie
<p>I was hit with almost all the side effects when I tried Xeljanz. I lasted 4 months and had about 30% regrowth but had a fatty liver problem, a bacterial infection and joint pain, so discontinued use. I'd like to try topical Xeljanz and am wondering if anyone knows of an online/foreign resource to get it that's cheaper than the $300 per ounce here in the US? Any referrals would really be appreciated </p>
<p>I'd really like to give non-systemic Xeljanz a try!</p>
<p>I was hit with almost all the side effects when I tried Xeljanz. I lasted 4 months and had about 30% regrowth but had a fatty liver problem, a bacterial infection and joint pain, so discontinued use. I'd like to try topical Xeljanz and am wondering if anyone knows of an online/foreign resource to get it that's cheaper than the $300 per ounce here in the US? Any referrals would really be appreciated </p>
<p>I'd really like to give non-systemic Xeljanz a try!</p> xeljanz side effectstag:alopeciaworld.com,2019-05-11:2022678:Topic:14748392019-05-11T13:44:41.702Zacowan95https://alopeciaworld.com/profile/acowan95
<p>Has anyone had breathing problems while taking Xeljanz? If so, did it eventually go away? I recently had shortness of breath and got taken off the pill until further notice. My doctor said my lungs were fine so I’m not understanding why I had to stop the medicine.</p>
<p>Has anyone had breathing problems while taking Xeljanz? If so, did it eventually go away? I recently had shortness of breath and got taken off the pill until further notice. My doctor said my lungs were fine so I’m not understanding why I had to stop the medicine.</p>