All Discussions Tagged '#Love' - Alopecia World2024-03-28T12:02:02Zhttps://alopeciaworld.com/forum/topic/listForTag?tag=%23Love&feed=yes&xn_auth=noMy Story- My Results on Xeljanz under the care of Dr. King in CT-Remission Statustag:alopeciaworld.com,2018-01-21:2022678:Topic:14087642018-01-21T17:22:00.176ZAlopeciaInRemissionCThttps://alopeciaworld.com/profile/AlopeciaInRemissionCT
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<p>Hey guys, just thought i'd share my story and I hope it is helpful for all of you! It all started in May 2011, I woke up one morning with a quarter size patch of hair removed from my head. I had no idea what started this at the time or why it was happening to me. Fast forward a few months later I was almost completely bald and diagnosed with what was initially alopecia areata which turned into Alopecia Universalis. I went to doctor after doctor, with little answer until one…</p>
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<p>Hey guys, just thought i'd share my story and I hope it is helpful for all of you! It all started in May 2011, I woke up one morning with a quarter size patch of hair removed from my head. I had no idea what started this at the time or why it was happening to me. Fast forward a few months later I was almost completely bald and diagnosed with what was initially alopecia areata which turned into Alopecia Universalis. I went to doctor after doctor, with little answer until one morning my former boss at the time, well knowing my story and struggle with alopecia told me about a case on Good Morning America that may really help me. </p>
<p>I went home as soon as I could that day and found any info I could. The news story was about a young man named Kyle who had plaque <b>Psoriasis/ Alopecia Universalis </b>who had begun a trial of Xeljanz for 12 months under Dr. King's care and completely regrew his hair back. I contacted Dr. King and was able to get an appointment, this was back in 2014. I was so excited, nervous and dreaming of a life where I wouldn't have to wake up early every morning to draw my eye brows on, wear wigs and worry about this deep insecurity that I had since all of this happened to me. For many of you, this is relatable and my heart goes out to you guys. It gets better, I promise.</p>
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<p>For forward to today 2018, Being on the medication Xeljanz on since 2014, I recently saw Dr. King, He had been slowly supporting my decision to take the medication sporadically and after only taking 4 pills a month which in his words (does absolutely nothing) We decided to embark on a journey medication free. I am in remission and so grateful for it. Yes I get spots but they are very small and few to be found. I cannot believe the progress I had on this medication. If anyone has questions or is looking to get on it, I have several months supply left that I will not be needing if anyone is interested in acquiring these bottles please message me, they are unopened and fresh within their shelf life. I know the hardship that goes into getting these bottles covered under insurance, and how expensive it can be, I would hate for this all to go to waste since I will not be utilizing them all in time. </p>
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<p>Thank you so much,</p>
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<p>Dani =)<a href="http://storage.ning.com/topology/rest/1.0/file/get/2059820012?profile=original" target="_self"><img src="http://storage.ning.com/topology/rest/1.0/file/get/2059820012?profile=original" width="720" class="align-full"/></a><a href="http://storage.ning.com/topology/rest/1.0/file/get/2059820085?profile=original" target="_self"><img src="http://storage.ning.com/topology/rest/1.0/file/get/2059820085?profile=original" width="750" class="align-full"/></a><a href="http://storage.ning.com/topology/rest/1.0/file/get/2059820319?profile=original" target="_self"><img src="http://storage.ning.com/topology/rest/1.0/file/get/2059820319?profile=original" width="750" class="align-full"/></a><a href="http://storage.ning.com/topology/rest/1.0/file/get/2059820277?profile=original" target="_self"><img src="http://storage.ning.com/topology/rest/1.0/file/get/2059820277?profile=original" width="750" class="align-full"/></a><a href="http://storage.ning.com/topology/rest/1.0/file/get/2059820840?profile=original" target="_self"><img width="750" src="http://storage.ning.com/topology/rest/1.0/file/get/2059820840?profile=RESIZE_1024x1024" width="750" class="align-full"/></a><a href="http://storage.ning.com/topology/rest/1.0/file/get/2059820942?profile=original" target="_self"><img width="750" src="http://storage.ning.com/topology/rest/1.0/file/get/2059820942?profile=RESIZE_1024x1024" width="750" class="align-full"/></a><a href="http://storage.ning.com/topology/rest/1.0/file/get/2059821156?profile=original" target="_self"><img width="750" src="http://storage.ning.com/topology/rest/1.0/file/get/2059821156?profile=RESIZE_1024x1024" width="750" class="align-full"/></a><a href="http://storage.ning.com/topology/rest/1.0/file/get/2059821260?profile=original" target="_self"><img width="750" src="http://storage.ning.com/topology/rest/1.0/file/get/2059821260?profile=RESIZE_1024x1024" width="750" class="align-full"/></a></p> You're not alonetag:alopeciaworld.com,2016-02-25:2022678:Topic:13079162016-02-25T02:37:38.081Zmmassellahttps://alopeciaworld.com/profile/mmassella
<p>One year ago I was diagnosed with alopecia areata. Recently, it has taken its toll on me and I've lost all my hair. Fortunately, it is growing back. But it can fall out again. Although, this disease isn't life threatening, it has one of the highest rates of suicide for an autoimmune disease. So, I have decided to post this picture of my baldish head without a wig or extensions to stand up against physical insecurities. And show everyone who is struggling that a physical insecurity doesn't…</p>
<p>One year ago I was diagnosed with alopecia areata. Recently, it has taken its toll on me and I've lost all my hair. Fortunately, it is growing back. But it can fall out again. Although, this disease isn't life threatening, it has one of the highest rates of suicide for an autoimmune disease. So, I have decided to post this picture of my baldish head without a wig or extensions to stand up against physical insecurities. And show everyone who is struggling that a physical insecurity doesn't need to run your life. Whether its your hair, your weight, or anything your struggling with, you are not alone. and decide TODAY to take a stand. Don't let your appearance run your life. My hair is not who I am.</p>
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