I've had alopecia areata for about 9 years now and I've been wearing a wig for 4 years. My mother started a support group in my area (Rochester, NY) so that I would have the opportunity to finally meet other people with this condition. She is the most amazing woman. I have a wonderful boyfriend of 3 years who loves me exactly the way I am. I am so appreciative of the people who take the time to start websites and on-line groups because it raises much needed awareness and provides support for all "alopecians" no matter what stage of this condition we're in.
Hi Elizabeth, It was so great to meet you and your Mom! Thanks for the meeting. I took my wig to Sherry and she put the silk in it. It's better, Except that now I have to wear wig tape and of course it is irritating my skin.Well you can't win them all lol! Take care.
Maureen
Hi Elizabeth, I can't wait to meet you your Mom and all the other Alopeicans. . I'm trying to talk my son into coming, but if there aren't any men going I think he would be very embarrassed. He has said no to me so far lol. See you soon!
Maureen
Hi Elizabeth, Do you happen to know the locations of any support groups downstate? I live south of you in the Mid Hudson Valley and just can't seem to find anything around here. Thanks, Jamie
Hi Elizabeth, Thanks for the add. I talked to your Mom last night. I will be attending the support meeting on Thursday. Look forward to meeting all of you.
Have a great day!
Maureen
Nothing ventured, nothing gained. Big round of applause for taking your time and giving it a go. I read somewhere on the NAAF website that there is a Federal bill in the works for Medicare / Medicaide patients. I think the number was $700/yr. Third party payers (i.e. private insurance) usually set up and follow the minimums set by federal insurance.
Hi, Elizabeth I came to the Rochester meeting a few weeks ago. You were right, I'm glad I joined both groups. Can't wait for the next meeting in Roch. Allie
Wow that's close to me! I am from Watertown. I didn't write it because I wasn't sure that you would know where it is! I did some of my practicums in Syracuse at LeMoyne elementary. What do you teach?
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Maureen
Maureen :)
Maureen
Have a great day!
Maureen
=]
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