Changing our world one head at a time!
Lolin's Groups
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Adults who have grown up with alopecia
89 members
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Alopecians All Over New York State
21 members
Lolin's Page
Profile Information
- Relationship Status:
- Married
- About Me:
- Hi! My name is Lolin and I am 30 years old. I am currently living in the St. Paul area here in Minnesota. About 22 years ago while my mother was brushing my long, curly, dark brown hair, she noticed small clumps of hair from the back of my head falling out. That happened a couple more times after that and before you knew it I had 3 small bald spots on the back of my head. And it stayed that way until 5 years ago. My hair started to slowly thin out. Then suddenly like a thief in the night Alopecia had completely taken what little hair I did have. I wear a wig everyday, everywhere. I am still having a very hard time talking about it or admitting that I even Alopecia. Last September, I decided, during Alopecia Awareness Month that I would actually walk out of the house and go shopping with just a baseball hat on. I felt the eyes on me and could only imagine what people may have been whispering to each other. The funny thing is, I was completely embarrassed. I think nothing of it if I see someone who has lost their hair walking around the mall or at the beach. So why do I care???
Anyway, I am looking for people that I can be me with. I don’t know too many people with Alopecia personally but would love to! Message me anytime! And i've got myspace too!
www.myspace.com/lolin78
- Do you have alopecia?
- Alopecia totalis
- Are you 18 or older?
- Yes
Lolin's Blog
hmm
i have had AA for a looooonnnnnnnggggggg time now and only started talking about it 3 years ago when i got to the point that i couldn't hide it as well and needed a wig. ok so today i goy my first negative reaction when i told this one person about my AA. some of you know me,i can't repeat what was said quiet yet but would like to know what some of the nagative comments you have gotten and how you handled it. hugs and kittens, Lolin
Posted on July 8th, 2008 at 11:25pm — 4 Comments
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How are you? I love your name ive never heard it before its very pretty!
anyways just wanted to introduce myself. im pretty new to Alopecia World and wanted to meet others like me! If you ever wanna chat I would love too!
Have a great night!
CASEY
The NAAF support group is a great resource, and a great bunch of people. You should definetely not feel uncomfortable around the bunch, they are always very welcoming.
I was hoping to be able to make the picnic this Sunday, however I am going to have to be out of town. ( I am sad) Heidi and I have been talking about having a formal support group meeting (not a picnic) in September. (As September is Alopecia Awareness Month)....you should definetley come.
Also, we have four 'Women's Hair Loss Socials' at my work. This is NOT a selling event, and there is absolutely no pressure. It is just an opportunity for women struggling with the same 'things' to meet, chat, and give each other encouragement. It has been really well attended, and I would be happy to send you an invite to our next event.
I think that both groups would be great resources for you to meet people locally....lets say in touch and I will make sure you know what is going on in our local community!
Let me know if you go on Sunday! Bethany
I noticed that you are from St. Paul...I live in Apple Valley, MN.
Have you at all given thought to coming to the Alopecia Support group that is local. A very non-agressive way to talk with and meet people with Alopecia.
We have a good time, and talk through issues.
Would love for you to come with me sometime...let me know if you would be interested!
Have a great day!
People will judge, we all do it and we always will. Unfortunately, judging and gossiping are two different things and people who gossip are not usually very intelligent. When I was very little my father used to read this poem to me about a wise old owl who spoke less and heard more. I try to remember that all the time and to always be considerate of others. If someone needs their eyes and ears opened then we all have to act together and make them realize how foolish they're being. I see myself as a teacher and role model and try to practise what I preach and I would hope that if you were in a similar situation that you would stand up for yourself too. Have a nice day!
Hows life in Minnesota?
Roger.
I just read your profile and I'm amazed about how people feel so different about alopecia.
I need to say that I also ALWAYS wear a wig. Everywhere and always except when I'm at home. I've had AT for only a few months. In march my hair was already thinner but I was still able to have a ponytail and to go out even without a hat. Now, all my hair is gone and I really don't mind. Hair, to me, has never been anything special. I've never been that kind of person who was able to style it in great and different way. Now I can wear different wigs and I look different and I feel great.
I LOVE the pic you have posted above... I may have to borrow it from you.
Have a great weekend!
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