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LeslieAnn Butler left a comment for Madisonsmom May 27

Madisonsmom left a comment for Helen's Mommy Apr 17

Helen's Mommy left a comment for Madisonsmom Apr 16

Madisonsmom left a comment for Helen's Mommy Apr 16

Helen's Mommy left a comment for Madisonsmom Apr 16

Madisonsmom replied to the discussion Madison's intro Mar 25

Madisonsmom left a comment for Janna Mar 25

Madisonsmom replied to the discussion Madison's intro Mar 25

About Me:: I'm a mother of 3 boys & 1 beautiful little girl. Madison is 7 and has alopecia universalis since age 4.

At 4:31pm on May 27th, 2008, LeslieAnn Butler said…: Hi Sharon,
I have had au for 20 years. Just wanted you to know that if you need support, I will help...
LeslieAnn

At 6:37pm on April 16th, 2008, Helen's Mommy said…: Sharon,

Does this mean you she will soon be sporting a wig? What does she think of about it? Lynn

At 9:07pm on April 15th, 2008, Helen's Mommy said…: Hi,

Madison is very cute, especially in her dress up clothes. Since you said you are participating in the M.D. Anderson study I was wondering if you live in Houston?. We live locally and would love to meet if you do! My daughter is about to be 4 next month. She has had it since her 3rd birthday. She wears hats when we go out and nothing when inside. Occasionally she takes off her hat with close friends & family. As we approach the 1 year mark, I have kind of been thinking about maybe getting a hair hat in case she wants to wear it sometimes? What do you think of those? When did you start discussing/ accepting that her hair might not come back with Madison? Lynn

At 11:06am on April 14th, 2008, Cindy Samantha's Mom said…: Happy Alopecia Day Madison!!!

your friend, Samantha

At 10:04am on March 25th, 2008, Janine said…: What a beautiful girl! This is a very supportive group of moms/dads

At 2:00pm on March 24th, 2008, Janna said…: Hello! Welcome to the website. This place seems unlike any other, with so many supportive people. I, too, have a daughter with alopecia. She's adorable, sweet natured and confident. (Can't say the same for myself some days) lol. She's going to be 3 in July, and has had it since the age of 8 months. Madison looks like a little princess!

I look forward to getting to know you both!

At 12:30pm on March 22nd, 2008, Jessica said…: She's so BEAUTIFUL!!! Thanks for the comment, I'm so happy I have found this site it makes everything a little bit easier to know are not the only ones going through this.

At 5:29am on March 20th, 2008, Isabelle and Anthéa said…: thanks for your comment. anthéa is 6 years old and has alopecia since age 4 like madison.
see you soon

At 11:07pm on March 19th, 2008, Cindy Samantha's Mom said…: Hi Sharon..

Nice to meet you...Your daughter sounds comfortable with who she is..I am glad to hear she is having a good experience in school. I have to say that I admire your daughter and all the other kids out there who have the courage to go to school hairless..Samantha does not leave the house without her wig on. She loves it so I am lucky..I never allowed her to be seen with patches and once we could not cover them any longer we got her a wig..We did not have to push her to wear a wig..She thinks it is cool and I think Hannah Montana helped. I am private about her AA and only our close friends and family know..It is my choice, but of course I can't stop Samantha from sharing if she chooses to do so. Samantha has had AA for almost a year now and once summer was over she aggressively lost her hair..It has been hard and now she has almost no lashes or brows..It will be nice to get know some of the other parents on this board who are facing the same issues...I hope to see you around..Cindy

At 10:02pm on March 19th, 2008, YoKasta Martinez (aka kastababy) said…: I've had alopecia since I was 4 years old; during that time I have lived mostly with alopecia totalis, but more recently I have dealt mainly with severe alopecia areata. I have a special affinity for children with alopecia, seeing as how I was a child with alopecia myself.