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Miranda

Miranda 22, Female Albuquerque, United States: bnzhfpjhlr0; Share

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Parents of Children with Hairloss (77 members)

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What has alopecia done for you?

Replied May 11

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Nicole and Miranda are now friends

Aug 5

Cindy Samantha's Mom left a comment for Miranda Jul 24

Miranda left a comment for Cindy Samantha's Mom Jul 22

Cindy Samantha's Mom left a comment for Miranda Jun 28

Cindy Samantha's Mom left a comment for Miranda Jun 21

Cindy Samantha's Mom left a comment for Miranda Jun 18

Roger left a comment for Miranda Jun 13

Cindy Samantha's Mom left a comment for Miranda Jun 13

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Relationship Status:: Married

About Me:: I'm the mother of identical twins and a little baby. One of my twins, Della, was diagnosed with alopecia right before her second birthday. Since then, we have been seeing the same dermatologist with no results. Of course we have had usual regrowth, but within a month there are more, bigger spots. Recently we tried a treatment that involved a topical steroid with a cream called Protopic. The combination of the two thinned the skin on her head so thin that she developed dark spots and was tested for cancer. Since then our doctor and our family decided no more treatments that have side effects that outweigh the results. So, we're holding off on treatment, seeing how there is no cure.

Our biggest challenge now is using a wig, and my twins will begin kindergarten in August. They have never been in a school environment so it is intimidating to us all. But I know they will succeed. My grandpa always asks, "Do you think you will ever amount to something?" I know they will because they have already gone beyond all odds, and shine through with their smiles and crazy ways.

Are you 18 or older?: Yes

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Well, I AM RJ posted a forum called "What has alopecia done for you?" I wanted to read the responses, and well just got down.Everyone seemed strengthened for it and strong. So, I started thinking "what has alopecia done for me?" My answer, nothing. It has made my daughter's life such a struggle so far, and I am not looking forward to the future with all of the frustrations to come with teasing and dating. I don't know what to do. I am so upset tonight with the thoughts that this disease has over… Continue

Posted on May 11th, 2008 at 12:12am — 10 Comments (Add)

Enough all ready...!!!

It's been three days and she isn't liking her wig much anymore. It is really bothering her that the hair is always in her face. She wants the hair but it's just too much for her. She can't get past that. I don't know what to do. I want to protect her, and I love her with out it, but she is uncomfortable in her own skin, and behind this mess of hair. She was crying to me today when she put it on after I washed it, again. She misses being able to put hair ties in her hair, and wearing a pony tail.… Continue

Posted on March 16th, 2008 at 12:00am — 8 Comments (Add)

Della's Wig.

To my surprise she loves it, and I miss her. I was so used to seeing her face. I posted her new pictures. I think it is too thick. HAHA first I complain about her not having enough hair and now it's too much. I am a picky, picky person.

Posted on March 14th, 2008 at 1:05pm — No Comments (Add)

Anticipation

So, we received the finally clips and wig tape for my daughter's wig. Now, we are just waiting until tomorrow to get her wig styled. She is so excited, and so am I. It took a lot to decide on the wig route, and now that it's here we are barely able to sit still. I think this route is going to be great, because regardless of what happens, she can feel confident in her wig, until she is ready to take it off. I hope that that day comes where she is not intimidated by others, or her self. I think th… Continue

Posted on March 11th, 2008 at 11:57am — 2 Comments (Add)

Kindergarten is approaching...

It's March rigth now, and my twins are going to begin Knidergarten in August. I'm a stay at home mom, so they don't have a class or close peers right now, and I am completely nervous about Della beginning kindergarten. I don't want her to be teased. I have thought hard a trough about a wig, and finally we have decided to get her one, for the time being anyways. We do the styling on Thursday, and she is really excited, I am just not sure if I can handle it. All of the care and maintenance of a wi… Continue

Posted on March 10th, 2008 at 4:21pm — 3 Comments (Add)

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At 10:17pm on August 2nd, 2008, Cheryl Carvery said…: I read about your song on another profile!

Grow Hair, Grow!
I know you can!
But if you can't it's okay,
I'm beautiful anyway!

I love it! Hopeful, positive as well as preparing your daughter for either outcome.

At 9:01pm on July 23rd, 2008, Cindy Samantha's Mom said…: Miranda, I was so sorry to hear about Della's experience with the treatment. Our doctors have been cautious. But, I am glad to hear she is having regrowth. I hope the reduced stress level is the trigger for her regrowth.

We went to the doctor today and they were happy to see the regrowth Sam is having. They told me can bump up to 2 times a week again. But, we still are using the .001 dose which is half...I am so hoping she can go wigless by the end of the year...
Hope you are enjoying your summer..Cindy

At 10:00pm on June 27th, 2008, Cindy Samantha's Mom said…: Girl, how Della doing with the treatment? We are starting to see regrowth 4 months later...TTYL.....

At 8:36pm on June 20th, 2008, Cindy Samantha's Mom said…: Miranda, how is Della handling the treatment thus far..After set backs and 17 applications spread out over the last 6 months it appears Sam is getting hair with color. It is just starting to flourish and can be hard to see , but at times you can see it in the right light. She is getting patches of white hairs in different areas of her head and some are beginning to change color.. Time will tell if this is real....Cindy

At 6:52am on June 18th, 2008, Cindy Samantha's Mom said…: How is Della doing?

At 7:11pm on June 13th, 2008, Roger said…: So cute kids!

Roger.

At 6:01pm on June 13th, 2008, Cindy Samantha's Mom said…: Miranda, you are applying it to the whole head each week? Are you sure you are doing the same thing and not DCP? We are just doing areas at a time and yes she will be real itchy. We have never given Sam predisone for anything. Di you apply the 1% or the 5%? Samantha has had to stop for a few weeks, but we are starting up again this weekend. She developed a full body rash and the doctor believes her whole body is reacting. The rash has finally cleared this week and has had a good rest. The doctor has cut the dose to .05%. She said this could be a good thing, that she has seen regrowth after this kind of response. So far, I have seen some patches of white hair in a few places and I hoping it will turn to color soon. She has a few strands of hair in color, but there are no real signs of growth yet. I am just waiting to see. We will apply tomorrow and hope she does not get a rash again...
Sam still has a mark too...keep me posted..

At 8:46pm on June 8th, 2008, Cindy Samantha's Mom said…: Miranda, good luck with the doctor this week..I wanted to let you know that I posted 2 pictures of Sam with the headband that has hair sewn into it..She loves them now that the weather is warm here..We are in a heat wave..YIKES..Cindy

At 9:50am on June 6th, 2008, Linsey said…: Hey there, my heart goes out to you! I see that your twins are starting kindergarten in August. I have a friend who will be joining the site soon named Jennifer McCrary. She just went through this with her son. She sent letters and pamplets out to the teachers and parents so the other kids would understand, and not be shocked when they saw her son. Maybe you two could help each other through this.
Let me know if you are interested, and I will put her in touch with you.

At 11:28pm on June 5th, 2008, Jodi Wertz said…: Hi! Thanks for the welcome! Your children are beautiful!!
I have read some articles online about correlations between preemies and AA, autoimmune disease, etc.
This is all new to us, so I'm reading a lot. Actually too much. I'm not getting enough sleep.
I'm going to post an update about Sarah Beth. I requested bloodwork be done last week and we got the results 2 days ago. She has hypothyroidism. She started on meds today. We don't know if the hair loss is from her thyroid problem or if she is fighting AA and hypothyroidism. She has an appointment next week with an endocrinologist. Her hair started falling out 3 months ago. She has about 70% loss on her scalp now and no body hair except for eyelashes and eyebrows.
Your family will be in our prayers. Tell Della we think she's BEAUTIFUL!!!