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Kristyn 19, Female Canada: 560dsuv6uqcb; Share

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LeslieAnn Butler left a comment for Kristyn May 27

LeslieAnn Butler left a comment for Kristyn May 22

Zoe Dusting left a comment for Kristyn May 1

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Relationship Status:: Single

About Me:: Hello everyone! I'm 18 (turning 19 on April 10th!) and am a first year student at the University of Ottawa. I was diagnosed with alopecia a few months ago. On October 25th, 2007 I woke up and went to the bathroom, only to see that half of my left eyebrow had fallen out. RIght now, my left eyebrow is gone and the hair on my head is rapidly falling out, although my eyelashes and right eyebrow are still intact. Having never heard of the disease prior to being diagnosed, the whole thing has caused quite a disruption in my life, to say the least! Everyday is a struggle but I hope that meeting people here and learning about their journeys will help me with mine!
Obviously alopecia is not the only thing I have going on in my life (although sometimes I feel like it is!)... I love musical theatre, fastball, writing, and traveling. In 2005 I spent three months in Paris as a foreign exchange student, and I'm going back this June with my best friend. I moved nine hours away from home to live in Ottawa this past September for university and I love living here, although sometimes it's hard to be so far away from my family and friends, especially since I was just diagnosed in December.

Are you 18 or older?: Yes

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For my best friend

Something I wrote for my best friend, Kevin. Writing when I'm feeling down helps me deal. It's a little personal, but hey, it's my blog, right? :) The people that know me best know that these past few months have been the hardest of my entire life. Unfortunately, in effect, these people have been burdened with my tears, my frustrations, my anxiety, depression, despair, moodiness, anger, and denial. This "note" is my way of explaining myself and my behaviour these past few months. It's a look… Continue

Posted on March 30th, 2008 at 1:44pm — 3 Comments (Add)

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At 7:59pm on May 27th, 2008, LeslieAnn Butler said…: You can also order it by just clicking my web site on my page -- and KEEP DANCING!
Take care!

At 7:33pm on May 22nd, 2008, LeslieAnn Butler said…: Hi Kristyn,
I just wanted to let you know that HOORAY! Advance copies of my book, "If Your Hair Falls Out, Keep Dancing!"are available now! You can order one online by going to: www.leslieannbutler.npauthors.com
--Let me know how you like it!
LeslieAnn

At 9:57pm on April 30th, 2008, Zoe Dusting said…: Hey Kris!
Whats crack a lackin? I haven't talked to you in a while. How are you doing? Is uni finished for you? How did it end up going? Have you moved home for the summer?! Okay well i hope to hear from you soon!! Take care baby bear.
xo
Z

At 8:33am on April 4th, 2008, Michaela said…: I don´t know, I want buy a wig. Have you got a wig? Sorry, for my bad english.

At 1:15pm on April 3rd, 2008, LeslieAnn Butler said…: Hi Cute Kristin,
Thanks! I added you to the mailing list. You will love the book, I promise! Hugs, LeslieAnn

At 12:58pm on April 3rd, 2008, Canadian Girl said…: Hey Kristyn,
You are not alone girl :0) I just got diagnosed 1 month ago and have now shaved my head!! I couldn't stand the bald spots or the handfulls of hair falling out daily. It was the most liberating thing iv'e even done in my life. I can't believe how much it has changed my life...for the good!!! I know it's hard...but try and remind yourself it's only hair. Keep in touch!!
Sarah

At 5:44pm on March 31st, 2008, LeslieAnn Butler said…: Kristyn, you are gorgeous!
Thanks for your interest in the book. It's due to be released this August. If you will give me your email address, I will put you on the mailing list to let you know when and where it's available. Yes, I will have it listed on the web site with a link to the publisher...anyway, if you don't want to post your email here, you can send it to me at LABARTIST@aol.com.
Hugs, LeslieAnn

At 9:20pm on March 30th, 2008, Cheryl Carvery said…: Hi Kristyn,

I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.

Cheryl
co-founder

At 8:47pm on March 30th, 2008, Alex said…: yess i love traveling....i actually just got back from hawaii yesterday...its absolutely gorgeous there....ive also been to london, paris and almost all of the states....how about u? do u travel alot?

At 7:42pm on March 30th, 2008, Zoe Dusting said…: I totally know how you feel about being the only one! And tons of people have it, but the ones with alopecia areata especially can hide it so well. It's just like me, lots of people have no idea that i lose my hair! School is going pretty well..only one week left of classes!! eek! I have to pull up my socks for exams though. Staring to panic a little haha. Did you live in rez for your first year? What uni are you going to? I can only imagine that you miss your family and friends! They're really the ones that help you through huh? You're so brave! I'm pretty lucky because both of my sisters live in victoria with me and my mom and dad just live about 3 hours away. I can just imagine the way you are feeling right now. The first time i had it, i didn't even notice it. It was my mom who pointed out my bald spots and since i had no idea i wasn't worried about it at all. The second time my hair started to fall out I was a MESSSSS. I was like a psycho ball of sadness. But i tried all sorts of different things; acupuncture, naturopath, injections, energy healing. you name it. In the end my hair did grow back and it stayed for about a year and a half. And then it started to fall out again, but then it grew back. And now it's falling out again! Talk about roller coaster. But I think it gets a little bit easier everytime. Have you considered getting cortisone injections? I've had quite a few and my hair always has grown back. I'm not sure if it is becuase of the cortisone or just its natural cycle but it seems to grow back a couple of months after the injections. They feel kinda nasty and they hurt a little but it's manageable. Or what about a hair piece? I noticed that you said that you were looking into a "wig" (i hate that word). I've never had one of those but i have had a hair piece which was amazing. Since i still had hair left, there wasn't much point in gettting a full on wig but i still didn't really feel comfortable about my bald spots. So i got a hair piece. It's basically just a bunch of real hair, that clips into your existing hair. They match the color perfectly and it just blends right into your existing hair. You can wash them, dry them curl them straighten them. It's pretty coool i'd say. I have a couple of pictures with it on. (I call it my mushroom top. haha anyways...) People are amazed when i tell them that it's not real. I have to show them how it works etc. Okay well i think i've over messaged you by now. I'll talk to you soon!!
-zoe
p.s. is your hair still falling out?

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