Changing our world one head at a time!

claire taylor 32, Female manchester, United Kingdom: Share

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emma left a comment for claire taylor Oct 8

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claire taylor added 9 photos. View Photos Oct 6

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Relationship Status:: Married

About Me:: I am claire from manchester england, im 32 and have had alopecia universalis for about 17 years, I wear wigs and honestly love them,
I love music and going to gigs fave music is Arctic Monkeys, Stone Roses, The Beatles, Happy Mondays, The Enemy, The Jam,Paul Weller loads more.
I get married in 8 weeks time to Dave my long suffering husband to be I have 3 children Alex 11,Jack 8 and baby Alfie 2
I would love to hear from anyone!!!!
I have got years of expieriance on dealing with some of the issues that alopecia can cause and would really like to help anybody and if you think my advice is not so good you can say shut up Claire ha ha I wont mind xx
I have added some pictures of my wonderful friends and family who all support me I dont know if this is the norm on here but i would like people to see them, I will get some of them to join this site, I feel it would be good for them to chat and meet others who have the same condition as me, and maybe speak to other family/friends who have a loved one with alopecia.

Do you have alopecia?: Alopecia totalis

Are you 18 or older?: Yes

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At 3:09pm on October 8th, 2008, emma said…: hi hunb, theres nothing i can pinpiont to cause im not really a stressful person let things go over my head altho i am a bit of a thinker.. i went dermatologist on monday waited about 2mths for appointment tho and he just said 50-50 no sign of regrowth bit its really big i cant wear my hair down but can cover it in ponytail.. im just that fed up i just want to shave it hun.. im not to sure on what wigs to but didnt relise there so many options and styles ect lol.. my family and friends ok with it think they find it bit difficult to talk about but i just chack a joke and they seem ok .. ive told ppl in work as if i do have brave days wen i hav my hair down but scrapped back in head band i dodnt want them to see and not know what it was plus if i woke one day and i didnt have any best to get it out of way really ... i watched your video i thought it was fab your very brave and your attitude is fab.. im kinda like that no point in getting worked over something i cant change altho id be lying if i said i didnt have down days ... and i promise if i dont use my wigs you can get first dibs lol .. hunni xx

At 3:57pm on October 7th, 2008, emma said…: lol ill have a look at that hun.. ive been looking in that paul hair world in manchester.. im not under any hospital at the moment took them all there time to get me an appointment with dermatologist, he gave me some cream and something to stop the itching, im not sure what to do i just keep thinking at least i can hide it but i feel dead scruffy sorry hun waffling .. x

At 3:53pm on October 6th, 2008, emma said…: at the moment i can cover it as long as i have it in a pony tail cant have it down no more.. i just have the one patch its quiet big and my hair has thinned out too.. im thinking of shaving it have going for the wig option. went to dermatologist today no sign of regrowth, ive had it for 4mth's just semms to be getting bigger but no other patches which i find the most frustraing i just wish it would either go or grow if that makes sence lol... dermatologist was no help bless him.. i guess ill just have to wait and see but swaying more to shave it also itchyness is driving me mad tooo x

At 3:03am on October 6th, 2008, emma said…: hey hun, im from middleton , do you know it, where abouts you from x

At 1:25pm on October 3rd, 2008, Mandy Beard said…: Hiya Claire, well wow!! you really do like your gigs.
Ihave never seen the Artic Monkeys, but would love to as just know that they would be amazing live. So how did you find out about the artics gig that was held in a secret location? bet that was fantastic being a smaller venue.
I have never really been into the Stone Roses, it's not that I don't like them, I'v just never really listened to them, I'v been into loads of bands over the years so I suppose I'v always probably been busy listening to something else. I have had friends over the years that have been into Stone Roses in a big way, and they was always telling me to have a listen to them. Maybe I will give them a listen, which is the best album to listen to? then I will let you know what I think.
Apart from seeing some good local bands, I haven't really seen anything for ages.!
I was meant to be at the V festival 07 and was really looking forward to it, it's a great festival and quite near to where I live so its a bit of a crime not going! I had been in Ireland fo the summer and was meant to be flying back a couple of days before V but fell ill and had to stay in hospital in Ireland for the week, gutted! Since which time my hair loss became progressively worse and I lost most of my brows and lashes too. Because I was at college this last twelve months I threw myself into my study. I hate to say it but because my confidence was so low, I stopped doing the things I enjoy, and have been a bit of an old biddy to be honest lol, which is the complete opposite to my personality.
Anyway I'v gone through a bit of a transition the last few weeks, partly I'd say because I am staring a new job with a great bunch of people, and partly meeting and reading about some of the great people on Alopecia world, including yourself, it has really helped me. I'm in quite a good mind set at the moment, and looking forward to getting back on track, doing the things I enjoy and just being myself.
Out of the bands you metioned I have only seen supergrass live, they were good. I would have seen the Fratellis and the Coral too, had I not been stuck in hospital in Ireland grrr!! oh well plenty of time. I have seen the Bootleg Beatles a couple of times, they were quite good too.
So what are your fave bands apart from the stones and the artics?
Anyways, Take care, Mandyxx

I feel that I'v gone through a bit of a transition the last few

At 10:28am on October 2nd, 2008, Nick said…: aww thanks =)

how are you?

At 5:54pm on October 1st, 2008, Gill said…: Hi Claire
Your wigs are beautiful, and really look as if it is your natural hair. And you look lovely on your special day.

At 12:22pm on September 30th, 2008, Mandy Beard said…: Hiya Claire,
I enjoyed looking at your photgraphs, you look absolutely beautiful, and congratulations on your wedding.
You seem very positive and inspiring.
I too love going to gigs, and love the Beatles and Artic Monkeys.
Do you ever get to any festivals?
Your hair looks great! where do you get your hair from if you don't mind me asking?
Anyway, take care,
Mandy xx

At 4:34pm on August 26th, 2008, julie said…: hey Claire... your pics are SO pretty of your wedding and the others.. you are gorgeous. Maybe I am wrong I guess I just have the stereotype that no man would ever want to see me because of this, but you found a good man didnt you? LOL I just wish I knew what to do, its just like it doesnt lay right because of the places and I dont need a full thing but I need something for it to lay right and I dont know what options I have and what to do... I'm scared I guess too as I dont want to have to resort to something but I may have to.. I tried microlinks but that did nothing, ever heard of that? Do you know anyone on this site who maybe is like me who isnt AU but FPB in places and at times thats more distressing than all of it gone as I dont know how to place it............ guess I should just take the plunge one day and take it all off and resort to the wig option.. Its just I lost my job from it, I've destroyed relationships, this is ruining my life and I dont know what to do other than bear with it, get something, but I feel either way I will be miserable as I am not happy with either option and that seems desparate to me... Guess my priorites are wrong but this is just hard for me, and I feel I'm the only one on here who is dealing with it so hard, I am ashamed at myself as everyone else on here seems so positive and happy and I just cant seem to find a solution..... what should I do if its just in places...? TY

At 11:18pm on August 22nd, 2008, julie said…: you are so pretty and congratulations on your marriage.. i've had a tough time and wish i could be as strong as you.. i'm scared to shave it all off and wear something but i may have to do that one day... i've destroyed everything in my path trying to fix this and i pray about it but it seems every day is the same fear inside me and its hard.....