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Jennifer - Mom of Scott's Page

Jennifer - Mom of Scott's Friends

About Me:: My name is Jennifer and I have 3 beautiful boys. I have a 7 year old and 5 year old twins. One of my twins, Scott, was diasgnosed with alopecia areata just before his 4th birthday. He has had 2 "episodes" so far. The 1st time he lost 20% of his hair and it all grew back within 6 months. The 2nd episode was almost a year to the day later and he lost 50%. We are starting to see regrowth now. We have grown his hair long enough to cover most spots now and we use a hair crayon on his scalp to camouflage the spots that are more obvious. This second episode has been much more difficult to handle but things are looking up right now!

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At 10:49am on May 7th, 2008, Miranda said…: Hi...
Well, we are flying phoenix to see a pediatric dermatologist. We are going to start something called Squaric Acid Dibutylester. We tried all of the possibilities that new mexico has to offer. This is the treatment that Cindy's daughter uses. We have never gotten results from any treatment before.

I just signed up with the National Alopecia Registry at MD Anderson. They called me back and signed up my other twin because they said they are in great need of twins. I guess with twins they find out the answers better, especially if only one is effected. We now have to send some blood samples from both girls, but if they find something promising Della will be one of the first able to try it.

At 12:21pm on May 6th, 2008, Miranda said…: Hi Jen! I haven't talked with you for awhile! How is everything going?!

At 12:25am on May 5th, 2008, Michelle (mom of Sam) said…: Hi Jen, yes, my twins are identical. The twins had Chicken Pox in February and we noticed a small bald spot on the back of Sam's head a few weeks later. The pediatrician is pretty confident that this triggered Sam's AA. My twins also have autism so Sam doesn't notice anything different. I can't wait to see the pediatric derm so he can give us an idea of what to expect. If we do any treatments, they will have to be holistic as we do not believe in the use of meds unless medically necessary. We were told to try Aloe Vera. Have you tried this? Michelle

At 9:51am on April 17th, 2008, Debbie G. said…: thanks for the message jennifer! I would love to chat more, i don't know how you feel about leaving your email on my page? let me know! my son blake is currently just using an ointment that is usually used as an immune-supresent medicine. we rub it on his spots and then hair will usually regrow. that is all we use or have ever used on him. how about you? do you use anything on scott?

At 12:37pm on April 15th, 2008, Debbie G. said…: hi Jennifer~

My name is Debbie and I have a son Blake who is 7 and has had alopecia since he was 1yr. old. He is currently regrowing almost all of his hair(he was completely bald for quite a few years) but has some bald spots in the back. I would love to chat w/ you more especially about the hair crayon you use...I've never heard of it! Take Care~Debbie

At 10:38pm on April 12th, 2008, Andrew said…: Hi Jennifer! If you ever want advice...just send me a message. I have been were Scott is. It's tough, but with support from a great mom like you....I know he will be fine!

At 7:04pm on April 5th, 2008, Miranda said…: Hey Jennifer, I just replied to your e-mail!

At 11:43am on April 4th, 2008, Miranda said…: Hi Jennifer,
No, I never did get an e0mail from you, can you resend it?

At 6:37am on April 4th, 2008, Angell said…: Hi Jennifer and welcome to the site. Your boys are just beautiful. I have one son and he is already 19 years old. I hope you are made to feel as welcome as I was when I joined just a couple of weeks ago.

Angell