My daughter is 7 and had her first bald spot show up about 2 years ago. She now has lost about 60% of the hair on her head.
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Hey, I just found Alopecia World. AWESOME!!! I'm excited to have a place to go to discuss AA and get some help and info about this adventure my girl is going to have to experience. She has been really adjusting well to loosing her hair, or seems to be anyway. I'm curious to know if anyone has had better experience with certain wigs over others. I'm at a total loss as to what to do about hair. So far, we've been doing really well with scarves and hats but sometimes it doesn't seem appropriate. (I.E. Weddings, Dance Recitals, etc....) So if anyone has any advice let me know.
Hi Kim, Thanks for the post..I am equally sorry we have not sent a letter too..We have been on the go with camp and vacation. It has been on my mind to have Sam write a letter, but we have slacked a bit..Sam is sporting her new wig from the kids club. We did trim it some more on Friday and will post a pic soon...Enjoy the rest of summer. We go back to school next week..YIKES..I need more time home with Sam..Cindy
Hi Kim. Just saying hi and wanted to see how things are going...I hope to have Sam write Jessica another letter when we get back from our trip ....Cindy
Hi Kim,
Your daughter Jessica is adorable.
I wrote a book that might help you with the situation with your daughter. It has a chapter devoted to kids with alopecia. It's called, "If Your Hair Falls Out, Keep Dancing!" Go to my page to find out more...you can order it at the link on my page.
Take care,
LeslieAnn
Anytime Kim...I have been learning along the way myself..I am looking forward to taking her to the kids hair club tomorrow. Please send me your address as well. Samantha told me yesterday that she would always be pen pals with kids with Alopecia...We are waiting for your address too..I sent you an email through this website. if you did not get it, there is a pic of envelope at the top of your page and you can click on it. It is a nice way to send private messages at times. I will let you know how it goes tomorrow. Cindy
Kim..Here is a link for Hairclub of Men in Utah.If any of these locations are near you I suggest calling the kids club number to get the paper work..The hair pieces are free..We have our first apt on Sat. http://www.hairclub.com/utah.php.. Also, have you tried contacting children with hairloss. They will send you a temp wig to keep and to a place to get a custom wig made. Again it is at no cost to you. Also, Samantha wears a headband that has sewen into them and she loves them. Infact, it was all she wore last week in Florida and she wears them on the weekends. You can visit hatswithhair.com. I hope this info helps..You can ask me Sat if i like the hairclub for kids.HEHE..
The wig Sam wears now I bought and it is an Amy Gibson child wig. I got this wig because she can swim and sleep in, which of course she has never done. She prefers her swim cap. It seems like my concerns about what I was looking for in a wig have changed a little, but I still want these two features in a wig.
Samantha would love another pen pal..She loves to write..I will email you our address...
Are you trying any treatments at the moment? We are working with Children's Hospital in Boston now are doing a irritant treatment. We are in the early stages, but my motherly instinct thinks it will kick in soon....cindy
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Your daughter Jessica is adorable.
I wrote a book that might help you with the situation with your daughter. It has a chapter devoted to kids with alopecia. It's called, "If Your Hair Falls Out, Keep Dancing!" Go to my page to find out more...you can order it at the link on my page.
Take care,
LeslieAnn
Cindy
HAPPY MOTHERS DAY
Maria
The wig Sam wears now I bought and it is an Amy Gibson child wig. I got this wig because she can swim and sleep in, which of course she has never done. She prefers her swim cap. It seems like my concerns about what I was looking for in a wig have changed a little, but I still want these two features in a wig.
Samantha would love another pen pal..She loves to write..I will email you our address...
Are you trying any treatments at the moment? We are working with Children's Hospital in Boston now are doing a irritant treatment. We are in the early stages, but my motherly instinct thinks it will kick in soon....cindy
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