Where acceptance is all there is!
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Carrie commented on the blog post I am 24 years old and was just diagnosed with AA. I knew someone in high school that had AA totalis … Aug 16
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Profile
- Relationship Status:
- Single
- About Me:
- I had Alopecia Areata as a kid. I had very long, thick hair. I was on the swim team. Well my hair would get very knotted having it up in a cap and my mom or dad wold comb out the snarls every night. My mom found my fisrt patch. I started seeing a dermatolist who perscribed a gell that worked great. My hair grew back and no one really new except my family.
20 years later it came back. Over the past few years I got a few small random patches and steroid injections have been working. However recently things seem to have really progressed. My small patch has gotten bigger and bigger. I was scheduled to go in for the shots and decided I should check for any new patches. Well I found 6 small patches. I am terrified that they will progress like the other one and I will no longer be able to hide it.
In the same sense that I am afraid of loosing my hair, I also feel validated because for months I had been finding loose hairs everywhere. But whenever I would mention it to friends or family they would say "oh that's normal you should see how much hair I pull out of the drain" Deep down I knew that this was not normal for me. I am not just paranoid this is really happening.
Because I am still at a stage that people really would never know unless I tell them, I decided that now is the time to reach out to others who have experienced this and prepare myself for what may come.
- Are you 18 or older?
- Yes
Carrie's Blog
Preparing myself
My hair is falling out. I am trying to wrap my brain around that. I, who have always had thick beautiful hair, may actually go bald. It's terrifying. My hair is my best physical feature. I really don't know if my already low self esteem can handle this.
So next weekend I'm going hat shopping. I always hated myself in hats. I'm looking for a baseball cap. Wind is not my friend. I need a cap to wear on weekends, to picnics and anything outside. I'm also going to try on other kinds of hats. See wh… Continue
Posted on August 4th, 2008 at 11:30am —
4 Comments
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Nice to meet you. I am planning an informal get together in Boston on the weekend of September 13th. I think it will probably be brunch or something like that. There is a tattoo convention that weekend that my hubby and I would like to attend, so I thought we could work it all in together, considering I work every weekend and I am taking that one off. I hope you can come. Believe me when I tell you that once you meet others, it feels like we are all one big extended family. I have been AU for seven years so I have lots more "acceptance" time than you, I'm a big advocate for Alopecia awareness and I talk about it with everyone who will listen. I also read that you were looking for hats, etc. I have an ebay store that I sell hats, scarves, bandanas, doo rags, etc. I would be happy to send you some. Just let me know. I have many different baseball caps. That is usually all I wear unless I am dressing up, then it's a lovely scarf. If you would like to contact me, you can email me at hottie_dotty@hotmail.com. I look forward to meeting you.
Love and Hugs,
Dotty
i understand ! maybe i understand all to well, and i can feel every bodies pain? its not good, but you'll find your way in time...
What is your alopecia story? I've had it for 30 years. Just wanted to stop by and say hello!
LeslieAnn
Roger.